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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251205T080000
DTEND;TZID=America/Los_Angeles:20251207T170000
DTSTAMP:20260410T144943
CREATED:20250728T214728Z
LAST-MODIFIED:20250728T214728Z
UID:8604-1764921600-1765126800@canadianrdn.ca
SUMMARY:36th International Symposium on ALS/MND
DESCRIPTION:The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year they bring together researchers from around the world to share new understanding of amyotrophic lateral sclerosis and motor neurone disease.
URL:https://canadianrdn.ca/event/36th-international-symposium-on-als-mnd/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251208T170000
DTEND;TZID=America/Edmonton:20251208T190000
DTSTAMP:20260410T144943
CREATED:20251126T191844Z
LAST-MODIFIED:20251126T191844Z
UID:9195-1765213200-1765220400@canadianrdn.ca
SUMMARY:FA Together: Learn. Share. Connect. mini-regional conference in Calgary
DESCRIPTION:
URL:https://canadianrdn.ca/event/fa-together-learn-share-connect-mini-regional-conference-in-calgary/
CATEGORIES:Events,Healthcare,In Person,Industry,National,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251213T110000
DTEND;TZID=America/Toronto:20251213T140000
DTSTAMP:20260410T144943
CREATED:20251126T191558Z
LAST-MODIFIED:20251126T191558Z
UID:9192-1765623600-1765634400@canadianrdn.ca
SUMMARY:SMA Together: Learn. Share. Connect. A Mini-Regional Conference - Toronto
DESCRIPTION:The SMA Together: Learn. Share. Connect. Mini-regional conference in Toronto is less than three weeks away! Join them\, in-person on December 13 to learn about the latest updates in spinal muscular atrophy\, including:
URL:https://canadianrdn.ca/event/sma-together-learn-share-connect-a-mini-regional-conference-toronto/
CATEGORIES:Caregiver,Conferences,Events,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Lisbon:20260210T080000
DTEND;TZID=Europe/Lisbon:20260212T170000
DTSTAMP:20260410T144943
CREATED:20250812T193701Z
LAST-MODIFIED:20250812T193701Z
UID:8705-1770710400-1770915600@canadianrdn.ca
SUMMARY:8th TREAT-NMD® International Conference – Lisbon\, 2026
DESCRIPTION:Join TREAT-NMD at this vital\, in-person gathering where patients\, clinicians\, researchers\, industry\, and regulators come together to tackle the biggest challenges in neuromuscular treatment development\, diagnosis and care. Topics will include; disrupted clinical trial delivery\, regulatory uncertainty\, global access inequalities and shrinking public funding\, they’ll tackle these themes with a holistic\, solutions-driven approach and a patient centric and global focus.
URL:https://canadianrdn.ca/event/8th-treat-nmd-international-conference-lisbon-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/town-5621642_1280-702x526-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20260224T090000
DTEND;TZID=Europe/Brussels:20260224T160000
DTSTAMP:20260410T144943
CREATED:20260204T172630Z
LAST-MODIFIED:20260204T172630Z
UID:9745-1771923600-1771948800@canadianrdn.ca
SUMMARY:Rare Disease Day 2026: Advancing the Rare Brain Disease Ecosystem
DESCRIPTION:Placing brain health at the core of rare brain disease prevention and management\, this event gathers multidisciplinary experts from research\, clinical care\, patient advocacy\, and industry to share perspectives and priorities on the rare brain disease research\, care\, and policy space. The meeting will focus on reviewing key developments in regulatory frameworks and discussing strategies to advance the RBD Ecosystem and develop a comprehensive Knowledge Hub.
URL:https://canadianrdn.ca/event/rare-disease-day-2026-advancing-the-rare-brain-disease-ecosystem/
CATEGORIES:Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770040565588.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260227T120000
DTEND;TZID=America/Toronto:20260227T133000
DTSTAMP:20260410T144943
CREATED:20260212T210455Z
LAST-MODIFIED:20260212T210455Z
UID:9797-1772193600-1772199000@canadianrdn.ca
SUMMARY:Massey College: Rare Disease Day
DESCRIPTION:This Rare Disease Day\, Massey College is the Massey community to join us for a special Fireside Chat on an issue that touches more lives than many realize.\nLindy Forte\, Mai K.\, Catherine Stratton\, MPH\, and Ian Stedman will share brief opening reflections from their respective perspectives on rare diseases. Together\, they’ll explore how we can move beyond viewing rare diseases as isolated diagnoses and instead recognize them as part of one heterogeneous community united by shared experiences. The discussion will also highlight some of the most pressing challenges in the rare disease space today.
URL:https://canadianrdn.ca/event/massey-college-rare-disease-day/
CATEGORIES:Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770824462923.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Guadeloupe:20260303T080000
DTEND;TZID=America/Guadeloupe:20260304T170000
DTSTAMP:20260410T144943
CREATED:20260113T165427Z
LAST-MODIFIED:20260113T165427Z
UID:9614-1772524800-1772643600@canadianrdn.ca
SUMMARY:EP PerMed Hackathon
DESCRIPTION:This is your chance to be a part of an immersive event at the forefront of innovation in personalised medicine. Join ER PerMed and work together with experts\, innovators\, and visionaries to shape the future of healthcare.
URL:https://canadianrdn.ca/event/ep-permed-hackathon/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767705972185.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260317T080000
DTEND;TZID=America/Edmonton:20260319T170000
DTSTAMP:20260410T144943
CREATED:20260204T172823Z
LAST-MODIFIED:20260204T172823Z
UID:9748-1773734400-1773939600@canadianrdn.ca
SUMMARY:Rare Disease Summit: Access USA
DESCRIPTION:The Rare Disease Summit unites stakeholders to accelerate therapeutic innovation for areas of unmet medical need. Gain actionable insights on launch planning\, market access\, reimbursement strategies and strategic partnerships to optimize rare disease commercialization and elevate patient impact.
URL:https://canadianrdn.ca/event/rare-disease-summit-access-usa/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770040824093.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260318T080000
DTEND;TZID=Europe/Rome:20260319T170000
DTSTAMP:20260410T144943
CREATED:20260126T212507Z
LAST-MODIFIED:20260126T212507Z
UID:9671-1773820800-1773939600@canadianrdn.ca
SUMMARY:MAINFRAME Symposium on AI-Driven Small-Molecule Drug Discovery
DESCRIPTION:Co-organized by Conscience in partnership with The Structural Genomics Consortium (SGC) and local organizers at the Vall d’Hebron Institute of Oncology (VHIO)\, the Barcelona Supercomputing Center (BSC)\, and the Institute of Research in Biomedicine (IRB)\, this two-day in-person symposium will bring together the global community working at the intersection of artificial intelligence\, computational chemistry\, and small-molecule drug discovery.
URL:https://canadianrdn.ca/event/mainframe-symposium-on-ai-driven-small-molecule-drug-discovery/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Capture.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260318T163000
DTEND;TZID=America/Toronto:20260318T193000
DTSTAMP:20260410T144943
CREATED:20260212T205707Z
LAST-MODIFIED:20260212T205707Z
UID:9787-1773851400-1773862200@canadianrdn.ca
SUMMARY:RAREDIG McGill: Rare Disease Day 2026
DESCRIPTION:McGill’s RareDIG is excited to welcome you to the eighth edition of Rare Disease Day! Millions of individuals are affected by rare diseases worldwide and Rare Disease Day is hosted in support of these patients and family members. \n\nStudents\, researchers\, physicians\, patients\, and community members will meet at Jeanne Timmins Amphitheatre at The Neuro (Montreal Neurological Institute-Hospital) in Montreal on March 18th to discuss the challenges faced by people with rare diseases\, research and advocacy efforts. Poster presentations will also be prepared by student researchers with a keen interest in making a difference in the rare disease field.
URL:https://canadianrdn.ca/event/raredig-mcgill-rare-disease-day-2026/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/webp:https://canadianrdn.ca/wp-content/uploads/2026/02/Featured-Image-RareDiseaseDay-2026.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260409T080000
DTEND;TZID=America/Toronto:20260409T170000
DTSTAMP:20260410T144943
CREATED:20260401T192410Z
LAST-MODIFIED:20260401T192410Z
UID:10067-1775721600-1775754000@canadianrdn.ca
SUMMARY:MitoRevolution Research Symposium and Innovation Day
DESCRIPTION:Researchers\, clinicians\, and trainees working in mitochondrial science are invited to attend the 6th Annual MitoRevolution Research Symposium and Innovation Day\, hosted by their partners Mito2i\, on Thursday\, April 9\, 2026\, at the MaRS Auditorium in Toronto.
URL:https://canadianrdn.ca/event/mitorevolution-research-symposium-and-innovation-day/
CATEGORIES:Caregiver,Clinical Trials,Events,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773856526059-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260411T080000
DTEND;TZID=America/Edmonton:20260411T170000
DTSTAMP:20260410T144943
CREATED:20260401T192740Z
LAST-MODIFIED:20260401T192740Z
UID:10073-1775894400-1775926800@canadianrdn.ca
SUMMARY:Wilson Disease Association Spring Support Symposium
DESCRIPTION:Join the WDA Spring Support Symposium in Ann Arbor\, Michigan\, on April 11\, 2026\, to hear directly from patients and a caregiver as they share their real-life stories.
URL:https://canadianrdn.ca/event/wilson-disease-association-spring-support-symposium/
CATEGORIES:Caregiver,Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774553166245.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20260512T080000
DTEND;TZID=Europe/Brussels:20260513T170000
DTSTAMP:20260410T144943
CREATED:20260126T212140Z
LAST-MODIFIED:20260126T212140Z
UID:9668-1778572800-1778691600@canadianrdn.ca
SUMMARY:International Drug Repurposing Conference 2026
DESCRIPTION:Join the leading international drug repurposing conference to explore the future of patient-centric medicines repurposing.\nFrom rare diseases and AI-driven drug discovery\, to policy\, funding and community-led success stories\, iDR26 brings together the global drug repurposing community to navigate the next chapter in maximising patient benefit.
URL:https://canadianrdn.ca/event/international-drug-repurposing-conference-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/idr2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260513T073000
DTEND;TZID=America/Toronto:20260513T093000
DTSTAMP:20260410T144943
CREATED:20260401T192911Z
LAST-MODIFIED:20260401T192911Z
UID:10076-1778657400-1778664600@canadianrdn.ca
SUMMARY:Voices for Rare Advocacy Day
DESCRIPTION:A day dedicated to bringing the voices of Ontario’s rare disease community directly to policymakers.
URL:https://canadianrdn.ca/event/voices-for-rare-advocacy-day/
CATEGORIES:Caregiver,Events,Healthcare,In Person,Patient Focused,Policy,Provincial
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1775052370537.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Karachi:20260524T080000
DTEND;TZID=Asia/Karachi:20260529T170000
DTSTAMP:20260410T144943
CREATED:20241215T024241Z
LAST-MODIFIED:20241215T024241Z
UID:7226-1779609600-1780074000@canadianrdn.ca
SUMMARY:15th edition of the International Myotonic Dystrophy Consortium (IDMC-15)
DESCRIPTION:The event will now make a stop in Canada\, in the picturesque and warm Saguenay—Lac-Saint-Jean region of the province of Quebec. \nA unique opportunity to network and share advances and initiatives in myotonic dystrophy research! Take advantage of this not-to-be-missed event!
URL:https://canadianrdn.ca/event/15th-edition-of-the-international-myotonic-dystrophy-consortium-idmc-15/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/12/1734027557266.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260531T080000
DTEND;TZID=America/Edmonton:20260602T170000
DTSTAMP:20260410T144943
CREATED:20250827T162014Z
LAST-MODIFIED:20250827T162014Z
UID:8774-1780214400-1780419600@canadianrdn.ca
SUMMARY:2026 Children’s Healthcare Canada Annual Conference\, “Tomorrow’s Promise\, Today’s Plan: Transforming Children’s Healthcare in Canada”
DESCRIPTION:📆Save the date: May 31-June 2
URL:https://canadianrdn.ca/event/2026-childrens-healthcare-canada-annual-conference-tomorrows-promise-todays-plan-transforming-childrens-healthcare-in-canada/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261018T080000
DTEND;TZID=America/Edmonton:20261020T170000
DTSTAMP:20260410T144943
CREATED:20251113T224713Z
LAST-MODIFIED:20251113T224713Z
UID:9153-1792310400-1792515600@canadianrdn.ca
SUMMARY:Kids Brain Health Network (KBHN) Annual Conference
DESCRIPTION:Save the Date! \nKids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference\, happening October 18–20\, 2026\, in Calgary\, Alberta!
URL:https://canadianrdn.ca/event/kids-brain-health-network-kbhn-annual-conference/
CATEGORIES:Caregiver,Conferences,In Person,Industry,National,Patient Focused,Provincial,Research Focused
END:VEVENT
END:VCALENDAR