Canadian Rare Disease Network

Wilson Disease Association Spring Support Symposium
2026-04-11 08:00 - 17:00 (America/Edmonton)
Join the WDA Spring Support Symposium in Ann Arbor, Michigan, on April 11, 2026, to hear directly from patients and a caregiver as they share their real-life stories.

International Drug Repurposing Conference 2026
2026-05-12 08:00 - 2026-05-13 17:00 (Europe/Brussels)
Join the leading international drug repurposing conference to explore the future of patient-centric medicines repurposing.
From rare diseases and AI-driven drug discovery, to policy, funding and community-led success stories, iDR26 brings together the global drug repurposing community to navigate the next chapter in maximising patient benefit.

Voices for Rare Advocacy Day
2026-05-13 07:30 - 09:30 (America/Toronto)
A day dedicated to bringing the voices of Ontario’s rare disease community directly to policymakers.

15th edition of the International Myotonic Dystrophy Consortium (IDMC-15)
2026-05-26 08:00 - 2026-05-30 17:00 (Asia/Karachi)
The event will now make a stop in Canada, in the picturesque and warm Saguenay—Lac-Saint-Jean region of the province of Quebec.
A unique opportunity to network and share advances and initiatives in myotonic dystrophy research! Take advantage of this not-to-be-missed event!

2026 Children’s Healthcare Canada Annual Conference, “Tomorrow’s Promise, Today’s Plan: Transforming Children’s Healthcare in Canada”
2026-05-31 08:00 - 2026-06-02 17:00 (America/Edmonton)
May 31-June 2

Canadian Genomics Innovation Showcase
2026-06-02 16:00 - 20:00 (America/Toronto)
​Join the Consulate General of Canada in Boston for an exclusive program showcasing the strength and momentum of Canada’s genomics and life sciences ecosystems.

Brain-Heart Interconnectome (BHI) State of the Science Summit
2026-06-08 08:00 - 2026-06-10 17:00 (America/Toronto)
The summit is an international conference meant to highlight the latest science at the crossroads of brain and heart health, showcasing innovation and state-of-the-art research.

4th Edition of the Sickle Cell Awareness Day Education Conference
2026-06-18 08:30 - 17:00 (America/Toronto)
The Sickle Cell Disease Association of Canada (SCDAC), in partnership with the Interdisciplinary Centre for Black Health (ICBH), is bringing the sickle cell community together at the University of Ottawa for a one-day gathering of learning, collaboration and action.
This conference brings together patients, families, healthcare professionals, researchers, advocates, educators and caregivers.

RareKids-CAN: Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia
2026-06-27 13:00 - 14:00, 2026-08-29 10:00 - 11:00 (America/Halifax)
Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries.
These free sessions are designed for families, caregivers, and community members interested in learning more about pediatric rare diseases, the diagnostic journey, available supports, patient advocacy resources, and opportunities to participate in research and clinical trials.
📍 Multiple Halifax Public Library locations throughout June and August

Dysautonomia International: Piece by Piece: Building the Future of Dysautonomia Care
2026-07-09 08:00 - 2026-07-12 17:00 (America/Chicago)
Join Dysautonomia International in Houston, Texas, July 9–12, 2026 for the 14th Annual Dysautonomia International Conference, the world’s largest conference on autonomic disorders.

Sickle Cell Awareness Group of Ontario: Annual Summit 2026 Registration
2026-08-14 08:00 - 2026-08-15 17:00 (America/Toronto)
Join SCAGO for an educational two-day summit bringing together researchers, clinicians, advocates, and community members all working to transform sickle cell care.

ACHRI: 2026 Maternal & Child Health Trainee Research Day
2026-08-18 08:00 - 17:00 (America/Edmonton)
Led by the Alberta Children’s Hospital Research Institute Trainee Association (ACHRITA) in partnership with the Owerko Centre and ACHRI, the event is open to undergraduate and summer students, graduate students, postdoctoral researchers, and PGME/clinical fellows.

Cavernous Malformation Canada Clinical & Scientific Symposium
2026-09-18 08:00 - 2026-09-19 16:00 (America/Toronto)
Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only for the experienced but also those early in their understanding of this disease.

SickKids: Neurovascular Family Education Day 2026
2026-09-19 09:00 - 14:00 (America/Toronto)
Please join SickKids for an educational event for patients, families, and care-givers featuring expert speakers on Moyamoya Disease.

Regroupement Quebecois des Maladies Orphelines (RQMO) Educational Day 2026
2026-09-19 10:00 - 16:00 (America/Toronto)
This year, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme “The impacts of rare diseases – towards better inclusion”.
This awareness day aims to be a space for exchange, reflection, and sharing about the realities experienced by people living with rare diseases. RQMO wants to highlight the daily challenges, but also concrete ways to build a more inclusive society.

Sickle Cell Awareness Group of Ontario (SCAGO): Sickle Cell Awareness Month Community Engagement in Thunder Bay
2026-09-19 12:30 - 15:30 (America/Toronto)
SCAGO is excited to bring our first-ever Sickle Cell Awareness Month Community Event to Thunder Bay in collaboration with NorWest Community Health Centres (CHC)!
Join SCAGO for an afternoon of connection, education, and community as they come together to raise awareness and celebrate the strength of individuals and families impacted by sickle cell disease.

Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions
2026-09-24 08:00 - 2026-09-26 17:00 (America/Vancouver)
🔬 Thursday, September 24
CPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals, researchers, and invited network members.
🩺 Friday, September 25
Scientific Sessions — a full day dedicated to the latest PH research, clinical advancements, and collaboration among healthcare professionals and researchers. The day concludes with the Patient & Family Symposium Welcome Reception, where the entire PH community comes together.
💜 Saturday, September 26
Patient & Family Symposium — designed specifically for PH patients, caregivers, family members, and supporters. A day of education, inspiration, connection, and community.

Defeat Duchenne Canada: Family Forum 2026
2026-10-03 08:00 - 2026-10-04 17:00 (America/Toronto)
Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada will come together to learn from leading experts, share experiences, and build lasting friendships with others who understand the journey.

Kids Brain Health Network (KBHN) Annual Conference
2026-10-18 08:00 - 2026-10-20 17:00 (America/Edmonton)
Save the Date!
Kids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference, happening October 18–20, 2026, in Calgary, Alberta!
