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X-WR-CALDESC:Events for Canadian Rare Disease Network
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TZID:America/Toronto
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DTSTART;TZID=America/Toronto:20260918T080000
DTEND;TZID=America/Toronto:20260919T160000
DTSTAMP:20260624T184340Z
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UID:11099-1789718400-1789833600@canadianrdn.ca
SUMMARY:Cavernous Malformation Canada Clinical & Scientific Symposium
DESCRIPTION:Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board\, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only for the experienced but also those early in their understanding of this disease.
URL:https://canadianrdn.ca/event/cavernous-malformation-canada-clinical-scientific-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/06/4b14bd73-3e6c-41b0-9f2c-ac58e0add962.png
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DTSTART;TZID=America/Toronto:20260919T090000
DTEND;TZID=America/Toronto:20260919T140000
DTSTAMP:20260817T155910Z
CREATED:20260817T155910Z
LAST-MODIFIED:20260817T155910Z
UID:11420-1789808400-1789826400@canadianrdn.ca
SUMMARY:SickKids: Neurovascular Family Education Day 2026
DESCRIPTION:Please join SickKids for an educational event for patients\, families\, and care-givers featuring expert speakers on Moyamoya Disease.
URL:https://canadianrdn.ca/event/sickkids-neurovascular-family-education-day-2026/
CATEGORIES:Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/images.jpg
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DTSTART;TZID=America/Toronto:20260919T100000
DTEND;TZID=America/Toronto:20260919T160000
DTSTAMP:20260625T190021Z
CREATED:20260625T190021Z
LAST-MODIFIED:20260625T190021Z
UID:11109-1789812000-1789833600@canadianrdn.ca
SUMMARY:Regroupement Quebecois des Maladies Orphelines (RQMO) Educational Day 2026
DESCRIPTION:This year\, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme “The impacts of rare diseases – towards better inclusion”. \nThis awareness day aims to be a space for exchange\, reflection\, and sharing about the realities experienced by people living with rare diseases. RQMO wants to highlight the daily challenges\, but also concrete ways to build a more inclusive society.
URL:https://canadianrdn.ca/event/regroupement-quebecois-des-maladies-orphelines-rqmo-educational-day-2026/
CATEGORIES:Caregiver,Events,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781626049176.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260919T123000
DTEND;TZID=America/Toronto:20260919T153000
DTSTAMP:20260817T160846Z
CREATED:20260817T160846Z
LAST-MODIFIED:20260817T160846Z
UID:11427-1789821000-1789831800@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario (SCAGO): Sickle Cell Awareness Month Community Engagement in Thunder Bay
DESCRIPTION:SCAGO is excited to bring our first-ever Sickle Cell Awareness Month Community Event to Thunder Bay in collaboration with NorWest Community Health Centres (CHC)! \nJoin SCAGO for an afternoon of connection\, education\, and community as they come together to raise awareness and celebrate the strength of individuals and families impacted by sickle cell disease.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-scago-sickle-cell-awareness-month-community-engagement-in-thunder-bay/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1786386266288.jpg
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