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DTSTART;TZID=Europe/Lisbon:20260210T080000
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UID:8705-1770710400-1770915600@canadianrdn.ca
SUMMARY:8th TREAT-NMD® International Conference – Lisbon\, 2026
DESCRIPTION:Join TREAT-NMD at this vital\, in-person gathering where patients\, clinicians\, researchers\, industry\, and regulators come together to tackle the biggest challenges in neuromuscular treatment development\, diagnosis and care. Topics will include; disrupted clinical trial delivery\, regulatory uncertainty\, global access inequalities and shrinking public funding\, they’ll tackle these themes with a holistic\, solutions-driven approach and a patient centric and global focus.
URL:https://canadianrdn.ca/event/8th-treat-nmd-international-conference-lisbon-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/town-5621642_1280-702x526-1.jpg
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DTSTART;TZID=Europe/Brussels:20260224T090000
DTEND;TZID=Europe/Brussels:20260224T160000
DTSTAMP:20260520T054436
CREATED:20260204T172630Z
LAST-MODIFIED:20260204T172630Z
UID:9745-1771923600-1771948800@canadianrdn.ca
SUMMARY:Rare Disease Day 2026: Advancing the Rare Brain Disease Ecosystem
DESCRIPTION:Placing brain health at the core of rare brain disease prevention and management\, this event gathers multidisciplinary experts from research\, clinical care\, patient advocacy\, and industry to share perspectives and priorities on the rare brain disease research\, care\, and policy space. The meeting will focus on reviewing key developments in regulatory frameworks and discussing strategies to advance the RBD Ecosystem and develop a comprehensive Knowledge Hub.
URL:https://canadianrdn.ca/event/rare-disease-day-2026-advancing-the-rare-brain-disease-ecosystem/
CATEGORIES:Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770040565588.jpg
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DTSTART;TZID=America/Toronto:20260227T120000
DTEND;TZID=America/Toronto:20260227T133000
DTSTAMP:20260520T054436
CREATED:20260212T210455Z
LAST-MODIFIED:20260212T210455Z
UID:9797-1772193600-1772199000@canadianrdn.ca
SUMMARY:Massey College: Rare Disease Day
DESCRIPTION:This Rare Disease Day\, Massey College is the Massey community to join us for a special Fireside Chat on an issue that touches more lives than many realize.\nLindy Forte\, Mai K.\, Catherine Stratton\, MPH\, and Ian Stedman will share brief opening reflections from their respective perspectives on rare diseases. Together\, they’ll explore how we can move beyond viewing rare diseases as isolated diagnoses and instead recognize them as part of one heterogeneous community united by shared experiences. The discussion will also highlight some of the most pressing challenges in the rare disease space today.
URL:https://canadianrdn.ca/event/massey-college-rare-disease-day/
CATEGORIES:Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770824462923.jpg
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