BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Canadian Rare Disease Network - ECPv6.17.0//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Edmonton
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20250309T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20251102T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20260308T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20261101T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20270314T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20271107T080000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Toronto
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Halifax
BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
TZOFFSETTO:-0300
TZNAME:ADT
DTSTART:20250309T060000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0300
TZOFFSETTO:-0400
TZNAME:AST
DTSTART:20251102T050000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
TZOFFSETTO:-0300
TZNAME:ADT
DTSTART:20260308T060000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0300
TZOFFSETTO:-0400
TZNAME:AST
DTSTART:20261101T050000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
TZOFFSETTO:-0300
TZNAME:ADT
DTSTART:20270314T060000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0300
TZOFFSETTO:-0400
TZNAME:AST
DTSTART:20271107T050000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Vancouver
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20250309T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20251102T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20260308T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20261101T090000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Paris
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20260329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20261025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20270328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20271031T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260714T100000
DTEND;TZID=America/Edmonton:20260714T110000
DTSTAMP:20260710T144840Z
CREATED:20260710T144840Z
LAST-MODIFIED:20260710T144840Z
UID:11375-1784023200-1784026800@canadianrdn.ca
SUMMARY:CORD Webinar: The Cost of Waiting: Socioeconomic Impact of Rare Disease in Canada
DESCRIPTION:CORD is pleased to invite you to our upcoming webinar\, The Cost of Waiting: Socioeconomic Impact of Rare Disease in Canada . Join patients\, caregivers\, clinicians\, researchers\, policy makers and health system leaders for a conversation on the real-world impacts of delayed diagnosis and fragmented care\, and what Canada can do to reduce the burden on families while building a more responsive rare disease system.
URL:https://canadianrdn.ca/event/cord-webinar-the-cost-of-waiting-socioeconomic-impact-of-rare-disease-in-canada/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/1783432322800.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260714T103000
DTEND;TZID=America/Toronto:20260714T113000
DTSTAMP:20260702T193701Z
CREATED:20260702T161146Z
LAST-MODIFIED:20260702T193701Z
UID:11188-1784025000-1784028600@canadianrdn.ca
SUMMARY:DNA2RNA: Generative AI to Predict and Engineer Human Tissues and Cells
DESCRIPTION:Join D2R for this hybrid seminar with Professor Mo Lotfollahi from the Wellcome Sanger Institute and the Cambridge School of AI in Medicine at the University of Cambridge about “Generative AI to Predict and Engineer Human Tissues and Cells”. 
URL:https://canadianrdn.ca/event/dna2rna-generative-ai-to-predict-and-engineer-human-tissues-and-cells/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/07/d2r_-_events_-_d2r_seminar_series_newsletter_banner_template-3-newsletter_2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260716T100000
DTEND;TZID=America/Edmonton:20260716T120000
DTSTAMP:20260624T182800Z
CREATED:20260624T182800Z
LAST-MODIFIED:20260624T182800Z
UID:11085-1784196000-1784203200@canadianrdn.ca
SUMMARY:Kabuki Syndrome Foundation Live Webinar: Together for Progress
DESCRIPTION:Join the Kabuki Syndrome Foundation at their upcoming live webinar\, Together for Progress\, on July 16\, 2026. You can look forward to the latest updates on treatment development\, learn about new resources for families and clinicians\, and discover what’s next in their global efforts to improve the health of everyone with Kabuki syndrome.
URL:https://canadianrdn.ca/event/kabuki-syndrome-foundation-live-webinar-together-for-progress/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781198318313.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260722T120000
DTEND;TZID=America/Toronto:20260722T130000
DTSTAMP:20260702T193457Z
CREATED:20260624T182608Z
LAST-MODIFIED:20260702T193457Z
UID:11082-1784721600-1784725200@canadianrdn.ca
SUMMARY:RareKids-CAN: Delivering Gene Therapy Trials: Understanding Clinical Workflows\, Operations\, and the Patient Journey
DESCRIPTION:Join RareKid-CAN on July 22nd for their second webinar in our ATMP series for research coordinators\, nurses\, pharmacists\, investigators\, and other clinical research professionals. \nTheir speaker Ana Stosic will provide a practical overview of the clinical workflows involved in delivering gene therapy clinical trials for pediatric rare diseases.
URL:https://canadianrdn.ca/event/rarekids-can-delivering-gene-therapy-trials-understanding-clinical-workflows-operations-and-the-patient-journey/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1782308336701.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260722T120000
DTEND;TZID=America/Toronto:20260722T130000
DTSTAMP:20260704T234500Z
CREATED:20260704T233339Z
LAST-MODIFIED:20260704T234500Z
UID:11337-1784721600-1784725200@canadianrdn.ca
SUMMARY:Health Canada Webinar: Real-World Evidence in the National Strategy for Drugs for Rare Diseases
DESCRIPTION:This session is designed to provide you with a clear understanding of the goals\, an update on progress\, and the next steps as planning advances. It will include a short presentation from Health Canada followed by a Question & Answer session.
URL:https://canadianrdn.ca/event/health-canada-real-world-evidence-in-the-national-strategy-for-drugs-for-rare-diseases-webinar/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/health_canada_logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260724T080000
DTEND;TZID=America/Edmonton:20260724T090000
DTSTAMP:20260710T144656Z
CREATED:20260710T144656Z
LAST-MODIFIED:20260710T144656Z
UID:11372-1784880000-1784883600@canadianrdn.ca
SUMMARY:ERDERA Introductory Webinar: Situating ethics in the research continuum
DESCRIPTION:Join on 24 July for a free webinar and explore how ethics applies across different research activities\, illustrated through a real-world case study that brings the concepts to life.
URL:https://canadianrdn.ca/event/erdera-introductory-webinar-situating-ethics-in-the-research-continuum/
CATEGORIES:Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260814T080000
DTEND;TZID=America/Toronto:20260815T170000
DTSTAMP:20260702T193512Z
CREATED:20260624T183417Z
LAST-MODIFIED:20260702T193512Z
UID:11093-1786694400-1786813200@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario: Annual Summit 2026 Registration
DESCRIPTION:Join SCAGO for an educational two-day summit bringing together researchers\, clinicians\, advocates\, and community members all working to transform sickle cell care.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-annual-summit-2026-registration/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781618228846.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20260829T100000
DTEND;TZID=America/Halifax:20260829T110000
DTSTAMP:20260702T193648Z
CREATED:20260624T183145Z
LAST-MODIFIED:20260702T193648Z
UID:11091-1787997600-1788001200@canadianrdn.ca
SUMMARY:RareKids-CAN: Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia
DESCRIPTION:Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. \nThese free sessions are designed for families\, caregivers\, and community members interested in learning more about pediatric rare diseases\, the diagnostic journey\, available supports\, patient advocacy resources\, and opportunities to participate in research and clinical trials. \n📍 Multiple Halifax Public Library locations throughout June and August
URL:https://canadianrdn.ca/event/rarekids-can-kids-rare-disorders-awareness-supporting-early-recognition-families-in-nova-scotia-2/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781261330862.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260918T080000
DTEND;TZID=America/Toronto:20260919T160000
DTSTAMP:20260624T184340Z
CREATED:20260624T184340Z
LAST-MODIFIED:20260624T184340Z
UID:11099-1789718400-1789833600@canadianrdn.ca
SUMMARY:Cavernous Malformation Canada Clinical & Scientific Symposium
DESCRIPTION:Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board\, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only for the experienced but also those early in their understanding of this disease.
URL:https://canadianrdn.ca/event/cavernous-malformation-canada-clinical-scientific-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/06/4b14bd73-3e6c-41b0-9f2c-ac58e0add962.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260918T080000
DTEND;TZID=America/Toronto:20260919T170000
DTSTAMP:20260624T184512Z
CREATED:20260624T184512Z
LAST-MODIFIED:20260624T184512Z
UID:11102-1789718400-1789837200@canadianrdn.ca
SUMMARY:Cavernous Malformation Canada Patient & Family Conference
DESCRIPTION:Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers\, interactive opportunities between patients and clinicians\, and meaningful moments of connection and sharing with others impacted by cavernous malformation. 
URL:https://canadianrdn.ca/event/cavernous-malformation-canada-patient-family-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/06/ce2b7ab4-753a-41b5-80ce-de2f738e0aaf.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260919T100000
DTEND;TZID=America/Toronto:20260919T160000
DTSTAMP:20260625T190021Z
CREATED:20260625T190021Z
LAST-MODIFIED:20260625T190021Z
UID:11109-1789812000-1789833600@canadianrdn.ca
SUMMARY:Regroupement Quebecois des Maladies Orphelines (RQMO) Educational Day 2026
DESCRIPTION:This year\, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme “The impacts of rare diseases – towards better inclusion”. \nThis awareness day aims to be a space for exchange\, reflection\, and sharing about the realities experienced by people living with rare diseases. RQMO wants to highlight the daily challenges\, but also concrete ways to build a more inclusive society.
URL:https://canadianrdn.ca/event/regroupement-quebecois-des-maladies-orphelines-rqmo-educational-day-2026/
CATEGORIES:Caregiver,Events,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781626049176.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20260924T080000
DTEND;TZID=America/Vancouver:20260926T170000
DTSTAMP:20260624T183648Z
CREATED:20260624T183634Z
LAST-MODIFIED:20260624T183648Z
UID:11096-1790236800-1790442000@canadianrdn.ca
SUMMARY:Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions
DESCRIPTION:🔬 Thursday\, September 24\nCPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals\, researchers\, and invited network members. \n🩺 Friday\, September 25\nScientific Sessions — a full day dedicated to the latest PH research\, clinical advancements\, and collaboration among healthcare professionals and researchers. The day concludes with the Patient & Family Symposium Welcome Reception\, where the entire PH community comes together. \n💜 Saturday\, September 26\nPatient & Family Symposium — designed specifically for PH patients\, caregivers\, family members\, and supporters. A day of education\, inspiration\, connection\, and community.
URL:https://canadianrdn.ca/event/pulmonary-hypertension-association-canadas-ph-community-conference-scientific-sessions/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1780531229165.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260929T080000
DTEND;TZID=Europe/Paris:20261002T170000
DTSTAMP:20250812T194434Z
CREATED:20250812T194434Z
LAST-MODIFIED:20250812T194434Z
UID:8714-1790668800-1790960400@canadianrdn.ca
SUMMARY:17th International Symposium on Sjögren's Disease
DESCRIPTION:This prestigious event\, which brings together researchers\, physicians\, patients and experts from around the world to discuss the latest advancements in Sjögren’s disease.
URL:https://canadianrdn.ca/event/17th-international-symposium-on-sjogrens-disease/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
END:VCALENDAR