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BEGIN:STANDARD
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260129T180000
DTEND;TZID=America/Toronto:20260129T193000
DTSTAMP:20260403T134325
CREATED:20260105T194852Z
LAST-MODIFIED:20260105T194852Z
UID:9575-1769709600-1769715000@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada-Research Grant Announcement 2026
DESCRIPTION:Mark your calendar for Thursday\, January 29\, 2026\, from 6:00–7:30 p.m. ET\, and join Defeat Duchenne Canada online for an evening celebrating the incredible progress of their  community and the promise of the future.
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-research-grant-announcement-2026/
CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Research-grant-cycle-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260131T110000
DTEND;TZID=America/Edmonton:20260131T123000
DTSTAMP:20260403T134325
CREATED:20260105T200351Z
LAST-MODIFIED:20260105T200351Z
UID:9591-1769857200-1769862600@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario (SCAGO) Learning for Life - Clinical Trials 101 What Every Patient Should Know Before Enrolling
DESCRIPTION:Considering a clinical trial? Join SCAGO for an informative virtual session designed to help patients and caregivers understand the process\, benefits\, and important considerations before enrolling.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-scago-learning-for-life-clinical-trials-101-what-every-patient-should-know-before-enrolling/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767591298846.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260203T100000
DTEND;TZID=America/Edmonton:20260203T110000
DTSTAMP:20260403T134325
CREATED:20260126T212803Z
LAST-MODIFIED:20260128T191051Z
UID:9674-1770112800-1770116400@canadianrdn.ca
SUMMARY:RQMO: 1st Zebinary of the Month of Zebra 2026
DESCRIPTION:1st Zebra of the Month of Zebrier 2026 of the RQMO \nSpeakers:\n– Dr. Roberta\, La Piana\, Assistant Professor\, Department of Neurology and Neurosurgery\, McGill University\n– Dr. Thomas Durcan\, Associate Professor\, Department of Neurology and Neurosurgery\, McGill University
URL:https://canadianrdn.ca/event/rqmo-1st-zebra-of-the-month-of-zebrier-2026/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260203T170000
DTEND;TZID=America/Edmonton:20260203T183000
DTSTAMP:20260403T134325
CREATED:20260105T200023Z
LAST-MODIFIED:20260105T200023Z
UID:9585-1770138000-1770143400@canadianrdn.ca
SUMMARY:RealiseD Webinar 3: Single arm\, RCT or something in between – how to enrich clinical trial design and analysis in rare diseases
DESCRIPTION:Single-arm trials remain a cornerstone of rare disease research\, but their limitations and complexities cannot be ignored. In the third webinar\, experts Yulia Dyachkova (Merck Healthcare)\, Jenny Devenport (Roche)\, Cornelia Dunger-Baldauf (Novartis) abd Guillaume Canaud will lead a deep dive into the evolving role of SATs in drug development. The discussion will cover regulatory and HTA perspectives\, review case studies of success and failure\, and explore advanced statistical methods designed to optimise trial design. This session is not just about understanding the current landscape—it is about shaping the future of evidence generation for rare and ultra-rare diseases.
URL:https://canadianrdn.ca/event/realised-webinar-3-single-arm-rct-or-something-in-between-how-to-enrich-clinical-trial-design-and-analysis-in-rare-diseases/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/RealiseD-Visuals-Webinars-2026-800x450-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260204T120000
DTEND;TZID=America/Edmonton:20260204T130000
DTSTAMP:20260403T134325
CREATED:20260126T210631Z
LAST-MODIFIED:20260126T210631Z
UID:9653-1770206400-1770210000@canadianrdn.ca
SUMMARY:D2R-Webinar | Anti-Black Racism in Health Research
DESCRIPTION:In honour of Black History Month\, D2R invites you to an interactive webinar on “Anti-Black Racism in Health Research.” This session will explore the history of slavery in Canada\, trace the evolution of anti-Black racism within Canadian health research\, and highlight practices and strategies to address and counter these challenges.
URL:https://canadianrdn.ca/event/d2r-webinar-anti-black-racism-in-health-research/
CATEGORIES:Healthcare,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/EDI-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260205T100000
DTEND;TZID=America/Edmonton:20260205T120000
DTSTAMP:20260403T134325
CREATED:20260126T213014Z
LAST-MODIFIED:20260126T213014Z
UID:9677-1770285600-1770292800@canadianrdn.ca
SUMMARY:RQMO: 2nd Zebinary of the Month of Zebra 2026
DESCRIPTION:Speaker: Dr. André Megarbane\, Professor\, Department of Human Genetics\, lebanese American University\, Beirut\, Lebanon
URL:https://canadianrdn.ca/event/rqmo-2nd-zebinary-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260206T100000
DTEND;TZID=America/Edmonton:20260206T120000
DTSTAMP:20260403T134325
CREATED:20260126T211405Z
LAST-MODIFIED:20260126T211405Z
UID:9659-1770372000-1770379200@canadianrdn.ca
SUMMARY:OSSU World Café Conversations Series:"Find and Seek: Conversations on Matching Researchers and Lived Experience Partners"
DESCRIPTION:OSSU World Café Conversations series with Maureen Smith🇨🇦\, Aleisha F. and supported by Ontario SPOR SUPPORT Unit (OSSU): \n“Find and Seek: Conversations on Matching Researchers and Lived Experience Partners”
URL:https://canadianrdn.ca/event/ossu-world-cafe-conversations-seriesfind-and-seek-conversations-on-matching-researchers-and-lived-experience-partners/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768404542117.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260209T100000
DTEND;TZID=America/Edmonton:20260209T120000
DTSTAMP:20260403T134325
CREATED:20260126T213141Z
LAST-MODIFIED:20260128T191059Z
UID:9680-1770631200-1770638400@canadianrdn.ca
SUMMARY:RQMO: 3rd Zebinary of the Month of Zebra 2026
DESCRIPTION:3rd Zebinary of the Month of Zebrier 2026 \nSpeaker: – David Cohen\, Professor\, Faculty of Health\, Sorbonne University\, Paris\, France
URL:https://canadianrdn.ca/event/rqmo-3rd-zebinary-of-the-month-of-zebrier-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Lisbon:20260210T080000
DTEND;TZID=Europe/Lisbon:20260212T170000
DTSTAMP:20260403T134325
CREATED:20250812T193701Z
LAST-MODIFIED:20250812T193701Z
UID:8705-1770710400-1770915600@canadianrdn.ca
SUMMARY:8th TREAT-NMD® International Conference – Lisbon\, 2026
DESCRIPTION:Join TREAT-NMD at this vital\, in-person gathering where patients\, clinicians\, researchers\, industry\, and regulators come together to tackle the biggest challenges in neuromuscular treatment development\, diagnosis and care. Topics will include; disrupted clinical trial delivery\, regulatory uncertainty\, global access inequalities and shrinking public funding\, they’ll tackle these themes with a holistic\, solutions-driven approach and a patient centric and global focus.
URL:https://canadianrdn.ca/event/8th-treat-nmd-international-conference-lisbon-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/town-5621642_1280-702x526-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260210T170000
DTEND;TZID=America/Edmonton:20260210T183000
DTSTAMP:20260403T134325
CREATED:20260105T200202Z
LAST-MODIFIED:20260105T200202Z
UID:9588-1770742800-1770748200@canadianrdn.ca
SUMMARY:RealiseD Webinar 4: Enhancing patient-centricity in Rare Disease Clinical Trials
DESCRIPTION:The final webinar focuses on what truly matters: the patient. Rare disease trials often struggle to capture outcomes that reflect patient priorities but RealiseD is working to change that. Rudradev Sengupta\, Senior Trial Design Lead at One2Treat\, will present an approach that embeds patient voices into every stage of trial design and analysis. By using hierarchical endpoints and net treatment benefit\, this framework balances benefits and risks in alignment with patient preferences\, enabling transparent discussions among stakeholders and ensuring that success is defined by what matters most to patients. This is a vital conversation for anyone committed to making clinical research more humane and impactful.
URL:https://canadianrdn.ca/event/realised-webinar-4-enhancing-patient-centricity-in-rare-disease-clinical-trials/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Coming-Soon.-5-800x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260211T100000
DTEND;TZID=America/Edmonton:20260211T120000
DTSTAMP:20260403T134325
CREATED:20260126T213301Z
LAST-MODIFIED:20260128T191032Z
UID:9683-1770804000-1770811200@canadianrdn.ca
SUMMARY:RQMO: 4th Zebinary of the Month of Zebra 2026
DESCRIPTION:Speaker: – Jacques P. Tremblay\, Ph.D\, Full Professor\, Department of Molecular Medicine\, Faculty of Medicine\, Université Laval
URL:https://canadianrdn.ca/event/rqmo-4th-zebra-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260216T100000
DTEND;TZID=America/Edmonton:20260216T120000
DTSTAMP:20260403T134325
CREATED:20260126T213452Z
LAST-MODIFIED:20260126T213452Z
UID:9686-1771236000-1771243200@canadianrdn.ca
SUMMARY:RQMO: 5th Zebinary of the Month of Zebra 2026
DESCRIPTION:Speakers: – Christine Yergeau\, Msc\, RARE Network Manager. QC\n– Lilit Antonyan\, Research Pillars Coordinator at RARe.qc
URL:https://canadianrdn.ca/event/rqmo-5th-zebinary-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260217T170000
DTEND;TZID=America/Edmonton:20260217T183000
DTSTAMP:20260403T134325
CREATED:20260204T173625Z
LAST-MODIFIED:20260204T173625Z
UID:9754-1771347600-1771353000@canadianrdn.ca
SUMMARY:Cassie&Friends: Rare Talks-When Answers Take Time: Real Lives\, Rare Disease\, and Support That Matters
DESCRIPTION:Held during Rare Disease Month\, this annual virtual event brings together families\, youth\, and the broader childhood rheumatic disease community to make rare experiences visible—and to remind families that they are not alone. Through shared stories\, trusted information\, and meaningful connection\, RareTalks offers support for every stage of the journey\, from first symptoms to long-term care.
URL:https://canadianrdn.ca/event/cassiefriends-rare-talks-when-answers-take-time-real-lives-rare-disease-and-support-that-matters/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770054142899.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260219T100000
DTEND;TZID=America/Edmonton:20260219T120000
DTSTAMP:20260403T134325
CREATED:20260126T213630Z
LAST-MODIFIED:20260128T191004Z
UID:9689-1771495200-1771502400@canadianrdn.ca
SUMMARY:RQMO: 6th Zebinary of the Month of Zebra 2026
DESCRIPTION:Speaker: – Josée Chénard\, TS\, PH.d\, Professor\, Department of Social Work\, Université du Québec en Outaouais
URL:https://canadianrdn.ca/event/rqmo-6th-zebinary-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z6.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260219T130000
DTEND;TZID=America/Edmonton:20260219T143000
DTSTAMP:20260403T134325
CREATED:20260212T210210Z
LAST-MODIFIED:20260212T210210Z
UID:9794-1771506000-1771511400@canadianrdn.ca
SUMMARY:Canada's Drug Agency: How Global Policy Changes Are Reshaping HTA for Rare Diseases
DESCRIPTION:HTAi’s Rare Disease Interest Group will celebrate 2026 Rare Disease Day with a conversation on how global policy changes are reshaping HTA processes for rare disease technologies. The webinar aims to update the global HTA community on recent advances in rare disease policy\, particularly following the adoption of the World Health Assembly (WHA) Resolution on Rare Diseases\, and to explore its implications for HTA systems globally. The multi-stakeholder expert panel will discuss how global policy commitments can translate into meaningful regional\, national\, and local action within HTA. This event is the inaugural webinar in a year-long webinar series\, catalyzing discussions on how legislative changes in health systems are reshaping HTA for rare diseases through regional real-world case studies and examples.
URL:https://canadianrdn.ca/event/canadas-drug-agency-how-global-policy-changes-are-reshaping-hta-for-rare-diseases/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/02/CDA-HTI.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20260224T090000
DTEND;TZID=Europe/Brussels:20260224T160000
DTSTAMP:20260403T134325
CREATED:20260204T172630Z
LAST-MODIFIED:20260204T172630Z
UID:9745-1771923600-1771948800@canadianrdn.ca
SUMMARY:Rare Disease Day 2026: Advancing the Rare Brain Disease Ecosystem
DESCRIPTION:Placing brain health at the core of rare brain disease prevention and management\, this event gathers multidisciplinary experts from research\, clinical care\, patient advocacy\, and industry to share perspectives and priorities on the rare brain disease research\, care\, and policy space. The meeting will focus on reviewing key developments in regulatory frameworks and discussing strategies to advance the RBD Ecosystem and develop a comprehensive Knowledge Hub.
URL:https://canadianrdn.ca/event/rare-disease-day-2026-advancing-the-rare-brain-disease-ecosystem/
CATEGORIES:Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770040565588.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260224T100000
DTEND;TZID=America/Edmonton:20260224T120000
DTSTAMP:20260403T134325
CREATED:20260126T213821Z
LAST-MODIFIED:20260128T190951Z
UID:9692-1771927200-1771934400@canadianrdn.ca
SUMMARY:RQMO: 7th Zebinary of the Month of Zebra 2026
DESCRIPTION:Speakers: – Kim Auclair\, consultant\, speaker and blogger\n– Elsie Côté\, Founder and President of Sirote-moi
URL:https://canadianrdn.ca/event/rqmo-7th-zebinary-of-the-month-of-zebrier-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260225T100000
DTEND;TZID=America/Edmonton:20260225T110000
DTSTAMP:20260403T134325
CREATED:20260204T173332Z
LAST-MODIFIED:20260204T173332Z
UID:9751-1772013600-1772017200@canadianrdn.ca
SUMMARY:PhenoTips: Matchmaking for Rare Disease Diagnosis
DESCRIPTION:Matchmaking for Rare Disease Diagnosis is a panel discussion and interactive Q&A with patient matchmaking pioneers\, Dr. Nara Sobreira\, Matthew Osmond\, CGC\, and Dr. Orion Buske.
URL:https://canadianrdn.ca/event/phenotips-matchmaking-for-rare-disease-diagnosis/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1769808186313.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260226T100000
DTEND;TZID=America/Edmonton:20260226T120000
DTSTAMP:20260403T134325
CREATED:20260126T213956Z
LAST-MODIFIED:20260126T213956Z
UID:9695-1772100000-1772107200@canadianrdn.ca
SUMMARY:RQMO: Last Zebinary of the Month of Zebra 2026
DESCRIPTION:Speaker: – François Bernier\, entrepreneur\, strategist\, co-founder of Horizon b2b
URL:https://canadianrdn.ca/event/rqmo-last-zebinary-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260227T100000
DTEND;TZID=America/Edmonton:20260227T110000
DTSTAMP:20260403T134325
CREATED:20260212T205931Z
LAST-MODIFIED:20260212T205931Z
UID:9791-1772186400-1772190000@canadianrdn.ca
SUMMARY:CORD Rare Disease Day 2026 Webinar
DESCRIPTION:ACCELERATED ACCESS TODAY\, DEMONSTRATING VALUE FOR 2026 AND BEYOND \nThis Rare Disease Day\, join CORD for a 1-hour webinar marking the first 1.5 years of Canada’s Rare Disease Drug Strategy (RDDS). The session celebrates progress in accelerated access while focusing on what comes next: demonstrating value.
URL:https://canadianrdn.ca/event/cord-rare-disease-day-2026-webinar/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770744153270.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260227T120000
DTEND;TZID=America/Toronto:20260227T133000
DTSTAMP:20260403T134325
CREATED:20260212T210455Z
LAST-MODIFIED:20260212T210455Z
UID:9797-1772193600-1772199000@canadianrdn.ca
SUMMARY:Massey College: Rare Disease Day
DESCRIPTION:This Rare Disease Day\, Massey College is the Massey community to join us for a special Fireside Chat on an issue that touches more lives than many realize.\nLindy Forte\, Mai K.\, Catherine Stratton\, MPH\, and Ian Stedman will share brief opening reflections from their respective perspectives on rare diseases. Together\, they’ll explore how we can move beyond viewing rare diseases as isolated diagnoses and instead recognize them as part of one heterogeneous community united by shared experiences. The discussion will also highlight some of the most pressing challenges in the rare disease space today.
URL:https://canadianrdn.ca/event/massey-college-rare-disease-day/
CATEGORIES:Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770824462923.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260228T100000
DTEND;TZID=America/Toronto:20260228T160000
DTSTAMP:20260403T134325
CREATED:20251204T203609Z
LAST-MODIFIED:20251204T203609Z
UID:9257-1772272800-1772294400@canadianrdn.ca
SUMMARY:RQMO 2026 International Rare Disease Day
DESCRIPTION:On February 28th\, from 10 a.m. to 4 p.m.\, we invite you to participate in the RQMO 2026 International Rare Disease Day. The event will be held in hybrid mode\, meaning that it will be possible to attend in person or virtually.
URL:https://canadianrdn.ca/event/rqmo-2026-international-rare-disease-day/
CATEGORIES:Caregiver,Events,Healthcare,Hybrid,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/12/1764607278340.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Guadeloupe:20260303T080000
DTEND;TZID=America/Guadeloupe:20260304T170000
DTSTAMP:20260403T134325
CREATED:20260113T165427Z
LAST-MODIFIED:20260113T165427Z
UID:9614-1772524800-1772643600@canadianrdn.ca
SUMMARY:EP PerMed Hackathon
DESCRIPTION:This is your chance to be a part of an immersive event at the forefront of innovation in personalised medicine. Join ER PerMed and work together with experts\, innovators\, and visionaries to shape the future of healthcare.
URL:https://canadianrdn.ca/event/ep-permed-hackathon/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767705972185.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260304T110000
DTEND;TZID=America/Edmonton:20260304T123000
DTSTAMP:20260403T134325
CREATED:20260126T210847Z
LAST-MODIFIED:20260126T210847Z
UID:9656-1772622000-1772627400@canadianrdn.ca
SUMMARY:Stem Cell Network: Clinical Translation in Cell and Gene Therapy
DESCRIPTION:Stem Cell Network and BioCanRx are pleased to present this webinar on clinical translation\, offering trainees\, early-career investigators\, and researchers a high-level introduction to how cell and gene therapies (including regenerative medicine and cancer biotherapeutics) move from the lab to clinical trials.
URL:https://canadianrdn.ca/event/stem-cell-network-clinical-translation-in-cell-and-gene-therapy/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768827404847.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260306T090000
DTEND;TZID=America/Toronto:20260306T160000
DTSTAMP:20260403T134325
CREATED:20260126T211704Z
LAST-MODIFIED:20260225T183444Z
UID:9662-1772787600-1772812800@canadianrdn.ca
SUMMARY:McMaster University Workshop-Measuring the Impacts of Engaging People with Lived and Living Experience
DESCRIPTION:Join this in-person workshop focused on how to measure and evaluate the impacts of engaging people with lived and living experience in health research\, systems\, and policy. \nThe session will share practical approaches\, real-world case examples\, and lessons learned from engagement evaluation. Participants will learn how to select and apply evaluation tools to measure impact and address common challenges.
URL:https://canadianrdn.ca/event/workshop-measuring-the-impacts-of-engaging-people-with-lived-and-living-experience/
CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/20231027-11372350-WEB-REZ.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260306T100000
DTEND;TZID=America/Toronto:20260307T130000
DTSTAMP:20260403T134325
CREATED:20260212T211012Z
LAST-MODIFIED:20260212T211012Z
UID:9803-1772791200-1772888400@canadianrdn.ca
SUMMARY:Rare Kidney Disease Foundation: 5th International ADTKD Summit
DESCRIPTION:The Rare Kidney Disease Foundation presents: RKDF 5th International ADTKD Summit – A Time For Action Friday\, March 6\, 10AM – 1:00PM EST – Science Program Saturday\, March 7\, 10AM – 1:00PM EST – Patient Program
URL:https://canadianrdn.ca/event/rare-kidney-disease-foundation-5th-international-adtkd-summit/
CATEGORIES:Healthcare,Industry,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770644514287.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260311T130000
DTEND;TZID=America/Toronto:20260311T140000
DTSTAMP:20260403T134325
CREATED:20260212T210726Z
LAST-MODIFIED:20260212T210726Z
UID:9800-1773234000-1773237600@canadianrdn.ca
SUMMARY:RareKids-CAN: Rare Methods Workshop Series: Eliciting prior distributions for rare disease clinical trials
DESCRIPTION:Are you a rare disease methodologist\, investigator or trainee? Join RareKids-CAN and speaker Arlene Jiang for a Rare Methods Workshop on expert elicitation in rare disease research on March 11. \nLearn what expert elicitation is\, how it can support rare disease clinical design and how expert input can be used to construct a prior distribution.
URL:https://canadianrdn.ca/event/rarekids-can-rare-methods-workshop-series-eliciting-prior-distributions-for-rare-disease-clinical-trials/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770730225814.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260312T100000
DTEND;TZID=America/Edmonton:20260312T130000
DTSTAMP:20260403T134325
CREATED:20260311T225507Z
LAST-MODIFIED:20260311T225507Z
UID:9931-1773309600-1773320400@canadianrdn.ca
SUMMARY:CAN-Child: F-words Foundations Workshop
DESCRIPTION:Join CAN-Child’s interactive 3-hour F-words Foundations Workshop and explore how to bring the F-words for Child Development—Functioning\, Family\, Fitness\, Fun\, Friends\, and Future—into everyday practice and life!
URL:https://canadianrdn.ca/event/can-child-f-words-foundations-workshop/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1773068481975.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260317T080000
DTEND;TZID=America/Edmonton:20260317T090000
DTSTAMP:20260403T134325
CREATED:20260311T225739Z
LAST-MODIFIED:20260311T225739Z
UID:9934-1773734400-1773738000@canadianrdn.ca
SUMMARY:Palliative care for leukodystrophies and other rare neurological diseases (pediatric focus)
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/palliative-care-for-leukodystrophies-and-other-rare-neurological-diseases-pediatric-focus/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1771348322685.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260317T080000
DTEND;TZID=America/Edmonton:20260319T170000
DTSTAMP:20260403T134325
CREATED:20260204T172823Z
LAST-MODIFIED:20260204T172823Z
UID:9748-1773734400-1773939600@canadianrdn.ca
SUMMARY:Rare Disease Summit: Access USA
DESCRIPTION:The Rare Disease Summit unites stakeholders to accelerate therapeutic innovation for areas of unmet medical need. Gain actionable insights on launch planning\, market access\, reimbursement strategies and strategic partnerships to optimize rare disease commercialization and elevate patient impact.
URL:https://canadianrdn.ca/event/rare-disease-summit-access-usa/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770040824093.jpg
END:VEVENT
END:VCALENDAR