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X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251216T150000
DTEND;TZID=America/Edmonton:20251216T170000
DTSTAMP:20260403T134324
CREATED:20251126T193306Z
LAST-MODIFIED:20251126T193306Z
UID:9204-1765897200-1765904400@canadianrdn.ca
SUMMARY:ERDERA: Joint Transnational Call 2026
DESCRIPTION:This information webinar on the 2026 Joint Transnational Call for Proposals is scheduled for 16 December 2025\, 15:00–17:00 CET\, focusing on resolving unsolved rare genetic and non‑genetic diseases.
URL:https://canadianrdn.ca/event/erdera-joint-transnational-call-2026/
CATEGORIES:Healthcare,International,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/11/ERDERA-workshop-1-768x543-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260113T170000
DTEND;TZID=America/Edmonton:20260113T183000
DTSTAMP:20260403T134324
CREATED:20260105T195201Z
LAST-MODIFIED:20260105T200439Z
UID:9578-1768323600-1768329000@canadianrdn.ca
SUMMARY:RealiseD Webinar 1: Realising Clinical trials in Ultra-Rare diseases
DESCRIPTION:Join RealiseD’s first webinar to learn how RealiseD is pioneering a collaborative and comprehensive approach to clinical trials in ultra-rare diseases. During the webinar\, they’ll walk you through the project’s objectives\, structure\, and methodologies—and show how you can be part of this transformative journey.
URL:https://canadianrdn.ca/event/realised-realising-clinical-trials-in-ultra-rare-diseases/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1765887061354.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260114T190000
DTEND;TZID=America/Edmonton:20260114T200000
DTSTAMP:20260403T134324
CREATED:20260113T165855Z
LAST-MODIFIED:20260113T165855Z
UID:9617-1768417200-1768420800@canadianrdn.ca
SUMMARY:CanPKU+:  Advocacy in Action Update Sessions
DESCRIPTION:Join the Advocacy in Action Update Sessions with John Adams in order to hear updates on various campaigns and what needs to be done to move things forward for the PKU community.
URL:https://canadianrdn.ca/event/canpku-advocacy-in-action-update-sessions/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767738677475.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260115T053000
DTEND;TZID=America/Edmonton:20260115T063000
DTSTAMP:20260403T134324
CREATED:20260111T210920Z
LAST-MODIFIED:20260111T210920Z
UID:9596-1768455000-1768458600@canadianrdn.ca
SUMMARY:Rare Disease Internation-Moving the WHA Resolution on Rare Diseases Forward: From Promise to Action
DESCRIPTION:Join RDI for this public webinar where they will discuss the current status of the WHA Resolution implementation\, as they approach the World Health Organization Executive Board meeting taking place in February 2026. This webinar will engage in a multistakeholder dialogue focusing on the necessary path forward to accelerate the implementation of the Resolution and importantly the development of the GAPRD. \n 
URL:https://canadianrdn.ca/event/rare-disease-internation-moving-the-wha-resolution-on-rare-diseases-forward-from-promise-to-action/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767795977515.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260119T190000
DTEND;TZID=America/Toronto:20260119T200000
DTSTAMP:20260403T134324
CREATED:20260101T231935Z
LAST-MODIFIED:20260101T231935Z
UID:9500-1768849200-1768852800@canadianrdn.ca
SUMMARY:Knowledge Sharing Sessions – Feasibility of a Home-Based Exergaming Intervention for Youth With Spinal Muscular Atrophy.
DESCRIPTION:Dr. Geoff Frost will be leading NMD4C’s first Physiatrist Community of Practice (CoP) Knowledge Sharing Session. He will present a recent article authored by Iraqi et al. on a work conducted in Canada by  fellow NMD4C members: “Feasibility of a Home-Based Exergaming Intervention for Youth With Spinal Muscular Atrophy.”\nThe session will take place on January 19th\, 2026 at 7:00 PM EST. To register\, please contact CoP manager Maria Masnata. Once registered\, Maria will send a calendar invite so you can easily save the date. We are looking forward to seeing you there!
URL:https://canadianrdn.ca/event/knowledge-sharing-sessions-feasibility-of-a-home-based-exergaming-intervention-for-youth-with-spinal-muscular-atrophy/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/NMD4c.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260120T170000
DTEND;TZID=America/Edmonton:20260120T183000
DTSTAMP:20260403T134324
CREATED:20260105T195814Z
LAST-MODIFIED:20260105T195814Z
UID:9582-1768928400-1768933800@canadianrdn.ca
SUMMARY:RealiseD Webinar 2: Evidence Assessment Framework. A need to change mindset from developers\, regulators and HTA
DESCRIPTION:The second webinar turns the spotlight on one of the most critical issues in rare disease research: the generation and assessment of evidence. François Meyer\, a leading consultant in health technology assessment\, will examine why current frameworks often fail to deliver predictable and aligned outcomes\, resulting in delays and inequalities in patient access. The session will explore the global and European initiatives aimed at addressing these shortcomings and present the RealiseD consortium’s efforts to advance scientific and operational solutions. More importantly\, it will advocate for a fundamental shift in mindset—one that embraces flexibility and innovation in the way evidence is generated\, interpreted\, and assessed.
URL:https://canadianrdn.ca/event/realised-webinar-2-evidence-assessment-framework-a-need-to-change-mindset-from-developers-regulators-and-hta/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/images.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Belgrade:20260122T173000
DTEND;TZID=Europe/Belgrade:20260122T183000
DTSTAMP:20260403T134324
CREATED:20260113T170231Z
LAST-MODIFIED:20260113T170231Z
UID:9620-1769103000-1769106600@canadianrdn.ca
SUMMARY:ERN-EuroBloodNet-Session 1: Strong at Any Age – Redefining Frailty Together
DESCRIPTION:EuroBloodNet Topic on Focus: Ageing with a Bleeding Disorder”! \nThis educational program is coordinated by ERN-EuroBloodNet together with the umbrella patient organisation EHC – European Haemophilia Consortium\, represented by ePAG advocate Marius Tanase.
URL:https://canadianrdn.ca/event/ern-eurobloodnet-session-1-strong-at-any-age-redefining-frailty-together/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767624708973.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260122T190000
DTEND;TZID=America/Toronto:20260122T200000
DTSTAMP:20260403T134324
CREATED:20260113T164000Z
LAST-MODIFIED:20260113T164000Z
UID:9605-1769108400-1769112000@canadianrdn.ca
SUMMARY:Healthy Living and Aortopathy
DESCRIPTION:Save the date for your upcoming webinar with Dr. Nathaniel Moulson\, focused on exercise. This webinar will take place on January 22\, 2026 at 7:00pm\, registration details to be released in the coming weeks.
URL:https://canadianrdn.ca/event/healthy-living-and-aortopathy/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767998210155.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260128T120000
DTEND;TZID=America/Toronto:20260128T130000
DTSTAMP:20260403T134324
CREATED:20260113T164735Z
LAST-MODIFIED:20260113T164735Z
UID:9611-1769601600-1769605200@canadianrdn.ca
SUMMARY:PiPER Community of Practice for 2026
DESCRIPTION:Save the date on *January 28th 2026* from 12-1 pm for a dynamic session titled “Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials ”.
URL:https://canadianrdn.ca/event/piper-community-of-practice-for-2026/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767798374027.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260128T140000
DTEND;TZID=America/Toronto:20260128T153000
DTSTAMP:20260403T134324
CREATED:20260113T164448Z
LAST-MODIFIED:20260113T164448Z
UID:9608-1769608800-1769614200@canadianrdn.ca
SUMMARY:Canada's Drug Agency-Preconsultation Webinar: Improvements to the Drug Reimbursement Review Process
DESCRIPTION:Join CDA’s preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process. \nYou will hear from their senior leaders how these plans will advance our efforts to modernize and streamline drug reimbursement reviews.
URL:https://canadianrdn.ca/event/canadas-drug-agency-preconsultation-webinar-improvements-to-the-drug-reimbursement-review-process/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/CDA-Drug.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260129T180000
DTEND;TZID=America/Toronto:20260129T193000
DTSTAMP:20260403T134324
CREATED:20260105T194852Z
LAST-MODIFIED:20260105T194852Z
UID:9575-1769709600-1769715000@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada-Research Grant Announcement 2026
DESCRIPTION:Mark your calendar for Thursday\, January 29\, 2026\, from 6:00–7:30 p.m. ET\, and join Defeat Duchenne Canada online for an evening celebrating the incredible progress of their  community and the promise of the future.
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-research-grant-announcement-2026/
CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Research-grant-cycle-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260131T110000
DTEND;TZID=America/Edmonton:20260131T123000
DTSTAMP:20260403T134324
CREATED:20260105T200351Z
LAST-MODIFIED:20260105T200351Z
UID:9591-1769857200-1769862600@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario (SCAGO) Learning for Life - Clinical Trials 101 What Every Patient Should Know Before Enrolling
DESCRIPTION:Considering a clinical trial? Join SCAGO for an informative virtual session designed to help patients and caregivers understand the process\, benefits\, and important considerations before enrolling.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-scago-learning-for-life-clinical-trials-101-what-every-patient-should-know-before-enrolling/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767591298846.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260203T100000
DTEND;TZID=America/Edmonton:20260203T110000
DTSTAMP:20260403T134324
CREATED:20260126T212803Z
LAST-MODIFIED:20260128T191051Z
UID:9674-1770112800-1770116400@canadianrdn.ca
SUMMARY:RQMO: 1st Zebinary of the Month of Zebra 2026
DESCRIPTION:1st Zebra of the Month of Zebrier 2026 of the RQMO \nSpeakers:\n– Dr. Roberta\, La Piana\, Assistant Professor\, Department of Neurology and Neurosurgery\, McGill University\n– Dr. Thomas Durcan\, Associate Professor\, Department of Neurology and Neurosurgery\, McGill University
URL:https://canadianrdn.ca/event/rqmo-1st-zebra-of-the-month-of-zebrier-2026/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260203T170000
DTEND;TZID=America/Edmonton:20260203T183000
DTSTAMP:20260403T134324
CREATED:20260105T200023Z
LAST-MODIFIED:20260105T200023Z
UID:9585-1770138000-1770143400@canadianrdn.ca
SUMMARY:RealiseD Webinar 3: Single arm\, RCT or something in between – how to enrich clinical trial design and analysis in rare diseases
DESCRIPTION:Single-arm trials remain a cornerstone of rare disease research\, but their limitations and complexities cannot be ignored. In the third webinar\, experts Yulia Dyachkova (Merck Healthcare)\, Jenny Devenport (Roche)\, Cornelia Dunger-Baldauf (Novartis) abd Guillaume Canaud will lead a deep dive into the evolving role of SATs in drug development. The discussion will cover regulatory and HTA perspectives\, review case studies of success and failure\, and explore advanced statistical methods designed to optimise trial design. This session is not just about understanding the current landscape—it is about shaping the future of evidence generation for rare and ultra-rare diseases.
URL:https://canadianrdn.ca/event/realised-webinar-3-single-arm-rct-or-something-in-between-how-to-enrich-clinical-trial-design-and-analysis-in-rare-diseases/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/RealiseD-Visuals-Webinars-2026-800x450-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260204T120000
DTEND;TZID=America/Edmonton:20260204T130000
DTSTAMP:20260403T134324
CREATED:20260126T210631Z
LAST-MODIFIED:20260126T210631Z
UID:9653-1770206400-1770210000@canadianrdn.ca
SUMMARY:D2R-Webinar | Anti-Black Racism in Health Research
DESCRIPTION:In honour of Black History Month\, D2R invites you to an interactive webinar on “Anti-Black Racism in Health Research.” This session will explore the history of slavery in Canada\, trace the evolution of anti-Black racism within Canadian health research\, and highlight practices and strategies to address and counter these challenges.
URL:https://canadianrdn.ca/event/d2r-webinar-anti-black-racism-in-health-research/
CATEGORIES:Healthcare,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/EDI-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260205T100000
DTEND;TZID=America/Edmonton:20260205T120000
DTSTAMP:20260403T134324
CREATED:20260126T213014Z
LAST-MODIFIED:20260126T213014Z
UID:9677-1770285600-1770292800@canadianrdn.ca
SUMMARY:RQMO: 2nd Zebinary of the Month of Zebra 2026
DESCRIPTION:Speaker: Dr. André Megarbane\, Professor\, Department of Human Genetics\, lebanese American University\, Beirut\, Lebanon
URL:https://canadianrdn.ca/event/rqmo-2nd-zebinary-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260206T100000
DTEND;TZID=America/Edmonton:20260206T120000
DTSTAMP:20260403T134324
CREATED:20260126T211405Z
LAST-MODIFIED:20260126T211405Z
UID:9659-1770372000-1770379200@canadianrdn.ca
SUMMARY:OSSU World Café Conversations Series:"Find and Seek: Conversations on Matching Researchers and Lived Experience Partners"
DESCRIPTION:OSSU World Café Conversations series with Maureen Smith🇨🇦\, Aleisha F. and supported by Ontario SPOR SUPPORT Unit (OSSU): \n“Find and Seek: Conversations on Matching Researchers and Lived Experience Partners”
URL:https://canadianrdn.ca/event/ossu-world-cafe-conversations-seriesfind-and-seek-conversations-on-matching-researchers-and-lived-experience-partners/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768404542117.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260209T100000
DTEND;TZID=America/Edmonton:20260209T120000
DTSTAMP:20260403T134324
CREATED:20260126T213141Z
LAST-MODIFIED:20260128T191059Z
UID:9680-1770631200-1770638400@canadianrdn.ca
SUMMARY:RQMO: 3rd Zebinary of the Month of Zebra 2026
DESCRIPTION:3rd Zebinary of the Month of Zebrier 2026 \nSpeaker: – David Cohen\, Professor\, Faculty of Health\, Sorbonne University\, Paris\, France
URL:https://canadianrdn.ca/event/rqmo-3rd-zebinary-of-the-month-of-zebrier-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Lisbon:20260210T080000
DTEND;TZID=Europe/Lisbon:20260212T170000
DTSTAMP:20260403T134324
CREATED:20250812T193701Z
LAST-MODIFIED:20250812T193701Z
UID:8705-1770710400-1770915600@canadianrdn.ca
SUMMARY:8th TREAT-NMD® International Conference – Lisbon\, 2026
DESCRIPTION:Join TREAT-NMD at this vital\, in-person gathering where patients\, clinicians\, researchers\, industry\, and regulators come together to tackle the biggest challenges in neuromuscular treatment development\, diagnosis and care. Topics will include; disrupted clinical trial delivery\, regulatory uncertainty\, global access inequalities and shrinking public funding\, they’ll tackle these themes with a holistic\, solutions-driven approach and a patient centric and global focus.
URL:https://canadianrdn.ca/event/8th-treat-nmd-international-conference-lisbon-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/town-5621642_1280-702x526-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260210T170000
DTEND;TZID=America/Edmonton:20260210T183000
DTSTAMP:20260403T134324
CREATED:20260105T200202Z
LAST-MODIFIED:20260105T200202Z
UID:9588-1770742800-1770748200@canadianrdn.ca
SUMMARY:RealiseD Webinar 4: Enhancing patient-centricity in Rare Disease Clinical Trials
DESCRIPTION:The final webinar focuses on what truly matters: the patient. Rare disease trials often struggle to capture outcomes that reflect patient priorities but RealiseD is working to change that. Rudradev Sengupta\, Senior Trial Design Lead at One2Treat\, will present an approach that embeds patient voices into every stage of trial design and analysis. By using hierarchical endpoints and net treatment benefit\, this framework balances benefits and risks in alignment with patient preferences\, enabling transparent discussions among stakeholders and ensuring that success is defined by what matters most to patients. This is a vital conversation for anyone committed to making clinical research more humane and impactful.
URL:https://canadianrdn.ca/event/realised-webinar-4-enhancing-patient-centricity-in-rare-disease-clinical-trials/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Coming-Soon.-5-800x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260211T100000
DTEND;TZID=America/Edmonton:20260211T120000
DTSTAMP:20260403T134324
CREATED:20260126T213301Z
LAST-MODIFIED:20260128T191032Z
UID:9683-1770804000-1770811200@canadianrdn.ca
SUMMARY:RQMO: 4th Zebinary of the Month of Zebra 2026
DESCRIPTION:Speaker: – Jacques P. Tremblay\, Ph.D\, Full Professor\, Department of Molecular Medicine\, Faculty of Medicine\, Université Laval
URL:https://canadianrdn.ca/event/rqmo-4th-zebra-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260216T100000
DTEND;TZID=America/Edmonton:20260216T120000
DTSTAMP:20260403T134324
CREATED:20260126T213452Z
LAST-MODIFIED:20260126T213452Z
UID:9686-1771236000-1771243200@canadianrdn.ca
SUMMARY:RQMO: 5th Zebinary of the Month of Zebra 2026
DESCRIPTION:Speakers: – Christine Yergeau\, Msc\, RARE Network Manager. QC\n– Lilit Antonyan\, Research Pillars Coordinator at RARe.qc
URL:https://canadianrdn.ca/event/rqmo-5th-zebinary-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260217T170000
DTEND;TZID=America/Edmonton:20260217T183000
DTSTAMP:20260403T134324
CREATED:20260204T173625Z
LAST-MODIFIED:20260204T173625Z
UID:9754-1771347600-1771353000@canadianrdn.ca
SUMMARY:Cassie&Friends: Rare Talks-When Answers Take Time: Real Lives\, Rare Disease\, and Support That Matters
DESCRIPTION:Held during Rare Disease Month\, this annual virtual event brings together families\, youth\, and the broader childhood rheumatic disease community to make rare experiences visible—and to remind families that they are not alone. Through shared stories\, trusted information\, and meaningful connection\, RareTalks offers support for every stage of the journey\, from first symptoms to long-term care.
URL:https://canadianrdn.ca/event/cassiefriends-rare-talks-when-answers-take-time-real-lives-rare-disease-and-support-that-matters/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770054142899.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260219T100000
DTEND;TZID=America/Edmonton:20260219T120000
DTSTAMP:20260403T134324
CREATED:20260126T213630Z
LAST-MODIFIED:20260128T191004Z
UID:9689-1771495200-1771502400@canadianrdn.ca
SUMMARY:RQMO: 6th Zebinary of the Month of Zebra 2026
DESCRIPTION:Speaker: – Josée Chénard\, TS\, PH.d\, Professor\, Department of Social Work\, Université du Québec en Outaouais
URL:https://canadianrdn.ca/event/rqmo-6th-zebinary-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z6.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260219T130000
DTEND;TZID=America/Edmonton:20260219T143000
DTSTAMP:20260403T134324
CREATED:20260212T210210Z
LAST-MODIFIED:20260212T210210Z
UID:9794-1771506000-1771511400@canadianrdn.ca
SUMMARY:Canada's Drug Agency: How Global Policy Changes Are Reshaping HTA for Rare Diseases
DESCRIPTION:HTAi’s Rare Disease Interest Group will celebrate 2026 Rare Disease Day with a conversation on how global policy changes are reshaping HTA processes for rare disease technologies. The webinar aims to update the global HTA community on recent advances in rare disease policy\, particularly following the adoption of the World Health Assembly (WHA) Resolution on Rare Diseases\, and to explore its implications for HTA systems globally. The multi-stakeholder expert panel will discuss how global policy commitments can translate into meaningful regional\, national\, and local action within HTA. This event is the inaugural webinar in a year-long webinar series\, catalyzing discussions on how legislative changes in health systems are reshaping HTA for rare diseases through regional real-world case studies and examples.
URL:https://canadianrdn.ca/event/canadas-drug-agency-how-global-policy-changes-are-reshaping-hta-for-rare-diseases/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/02/CDA-HTI.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20260224T090000
DTEND;TZID=Europe/Brussels:20260224T160000
DTSTAMP:20260403T134324
CREATED:20260204T172630Z
LAST-MODIFIED:20260204T172630Z
UID:9745-1771923600-1771948800@canadianrdn.ca
SUMMARY:Rare Disease Day 2026: Advancing the Rare Brain Disease Ecosystem
DESCRIPTION:Placing brain health at the core of rare brain disease prevention and management\, this event gathers multidisciplinary experts from research\, clinical care\, patient advocacy\, and industry to share perspectives and priorities on the rare brain disease research\, care\, and policy space. The meeting will focus on reviewing key developments in regulatory frameworks and discussing strategies to advance the RBD Ecosystem and develop a comprehensive Knowledge Hub.
URL:https://canadianrdn.ca/event/rare-disease-day-2026-advancing-the-rare-brain-disease-ecosystem/
CATEGORIES:Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770040565588.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260224T100000
DTEND;TZID=America/Edmonton:20260224T120000
DTSTAMP:20260403T134324
CREATED:20260126T213821Z
LAST-MODIFIED:20260128T190951Z
UID:9692-1771927200-1771934400@canadianrdn.ca
SUMMARY:RQMO: 7th Zebinary of the Month of Zebra 2026
DESCRIPTION:Speakers: – Kim Auclair\, consultant\, speaker and blogger\n– Elsie Côté\, Founder and President of Sirote-moi
URL:https://canadianrdn.ca/event/rqmo-7th-zebinary-of-the-month-of-zebrier-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260225T100000
DTEND;TZID=America/Edmonton:20260225T110000
DTSTAMP:20260403T134324
CREATED:20260204T173332Z
LAST-MODIFIED:20260204T173332Z
UID:9751-1772013600-1772017200@canadianrdn.ca
SUMMARY:PhenoTips: Matchmaking for Rare Disease Diagnosis
DESCRIPTION:Matchmaking for Rare Disease Diagnosis is a panel discussion and interactive Q&A with patient matchmaking pioneers\, Dr. Nara Sobreira\, Matthew Osmond\, CGC\, and Dr. Orion Buske.
URL:https://canadianrdn.ca/event/phenotips-matchmaking-for-rare-disease-diagnosis/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1769808186313.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260226T100000
DTEND;TZID=America/Edmonton:20260226T120000
DTSTAMP:20260403T134324
CREATED:20260126T213956Z
LAST-MODIFIED:20260126T213956Z
UID:9695-1772100000-1772107200@canadianrdn.ca
SUMMARY:RQMO: Last Zebinary of the Month of Zebra 2026
DESCRIPTION:Speaker: – François Bernier\, entrepreneur\, strategist\, co-founder of Horizon b2b
URL:https://canadianrdn.ca/event/rqmo-last-zebinary-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260227T100000
DTEND;TZID=America/Edmonton:20260227T110000
DTSTAMP:20260403T134324
CREATED:20260212T205931Z
LAST-MODIFIED:20260212T205931Z
UID:9791-1772186400-1772190000@canadianrdn.ca
SUMMARY:CORD Rare Disease Day 2026 Webinar
DESCRIPTION:ACCELERATED ACCESS TODAY\, DEMONSTRATING VALUE FOR 2026 AND BEYOND \nThis Rare Disease Day\, join CORD for a 1-hour webinar marking the first 1.5 years of Canada’s Rare Disease Drug Strategy (RDDS). The session celebrates progress in accelerated access while focusing on what comes next: demonstrating value.
URL:https://canadianrdn.ca/event/cord-rare-disease-day-2026-webinar/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770744153270.jpg
END:VEVENT
END:VCALENDAR