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BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241106T080000
DTEND;TZID=America/Halifax:20241107T170000
DTSTAMP:20260403T223956
CREATED:20240522T235647Z
LAST-MODIFIED:20240531T021705Z
UID:4147-1730880000-1730998800@canadianrdn.ca
SUMMARY:Clinical Trials Ontario Conference
DESCRIPTION:The CTO Clinical Trials Conference is a leading Canadian forum to drive innovation in clinical trials\, including leaders from the pharmaceutical and medical device industries\, academic and healthcare leaders\, representatives from patient groups\, health charities and research institutions. This annual event provides a unique opportunity for members of our multi-stakeholder sector to collaborate\, exchange knowledge and advance clinical trials.
URL:https://canadianrdn.ca/event/clinical-trials-ontario-conference/
LOCATION:Hilton\, Toronto\, Toronto\, Ontario\, Canada
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/05/ClinicalTrials-logo-2024-05.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241105T190000
DTEND;TZID=America/Chicago:20241105T200000
DTSTAMP:20260403T223956
CREATED:20240819T213202Z
LAST-MODIFIED:20240819T213202Z
UID:5200-1730833200-1730836800@canadianrdn.ca
SUMMARY:Diagnostic approach to childhood-onset chorea' by Juan Darío Ortigoza-Escobar
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/diagnostic-approach-to-childhood-onset-chorea-by-juan-dario-ortigoza-escobar/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/8f22890e-e95f-4472-bce2-c61975661dd0.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241105T170000
DTEND;TZID=UTC:20241105T180000
DTSTAMP:20260403T223956
CREATED:20241031T202009Z
LAST-MODIFIED:20241031T202009Z
UID:6858-1730826000-1730829600@canadianrdn.ca
SUMMARY:FSHD Clinical Updates
DESCRIPTION:Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to a webinar on FSHD clinical updates. This webinar is for Canadian clinicians\, academics\, researchers\, and trainees with an interest in neuromuscular disease. NMD4C and MDC are providing organizational and technical support. This is an independent clinical/academic webinar with no industry sponsorship or influence. AGENDA: Chair and Speaker: Dr. Lawrence Korngut Speakers: Dr. Patrick Horn: Results of a phase 3 study of losmapimod in the treatment of FSHD Dr. Eva Chin: Catalysing Innovation in FSHD Therapeutics Objectives: – Innovative new therapies on the horizon for FSHD – The role of patient foundations and patient-funded R&D for accelerating novel therapies – Understand the outcome to the REACH study of losmapimod in FSHD The NMD Rounds & Educational Webinars is a self-approved group learning activity (Section 1) as defined by the Maintenance of Certification Program of the Royal College of Physicians and Surgeons of Canada. If you have any questions\, please email <research@muscle.ca> If you would like to learn more about NMD4C and to become a member: https://neuromuscularnetwork.ca/become-a-member/
URL:https://canadianrdn.ca/event/fshd-clinical-updates/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241105
DTEND;VALUE=DATE:20241106
DTSTAMP:20260403T223956
CREATED:20240730T020251Z
LAST-MODIFIED:20240730T020251Z
UID:4886-1730764800-1730851199@canadianrdn.ca
SUMMARY:2024 Annual Pain Centre Conference - Building Bridges to Reduce Disparities in Pediatric Pain
DESCRIPTION:
URL:https://canadianrdn.ca/event/2024-annual-pain-centre-conference-building-bridges-to-reduce-disparities-in-pediatric-pain/
LOCATION:toronto\, ontario\, 686 Bay Street\, Toronto\, Ontario\, M5G 0A4\, Canada
CATEGORIES:Healthcare,In Person,National,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241102T090000
DTEND;TZID=America/Chicago:20241102T180000
DTSTAMP:20260403T223956
CREATED:20241017T224822Z
LAST-MODIFIED:20241017T224822Z
UID:6102-1730538000-1730570400@canadianrdn.ca
SUMMARY:EDS ECHO Summit: Diet and Nutrition
DESCRIPTION:The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Diet and Nutrition\, a virtual event held on November 2\, 2024. This event is suitable for community members\, their friends\, families\, and caregivers\, as well as healthcare professionals.  
URL:https://canadianrdn.ca/event/eds-echo-summit-diet-and-nutrition/
CATEGORIES:Conferences,Healthcare,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/Web_banner-2048x634-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241102T080000
DTEND;TZID=America/Chicago:20241102T170000
DTSTAMP:20260403T223956
CREATED:20241004T220842Z
LAST-MODIFIED:20241004T220842Z
UID:6025-1730534400-1730566800@canadianrdn.ca
SUMMARY:Virtual Event: Understanding EDS/HSD+ Symptomology\, Diagnoses and Treatment - A Guide for Primary Care Practitioners & Physician Specialists
DESCRIPTION:This Conference is for primary care practitioners and physician specialists who encounter patients with complex health issues and chronic pain in their clinical practice\, which may or may not be related to Ehlers-Danlos Syndromes or hypermobility Spectrum Disorders (EDS/HSD+).
URL:https://canadianrdn.ca/event/virtual-event-understanding-eds-hsd-symptomology-diagnoses-and-treatment-a-guide-for-primary-care-practitioners-physician-specialists/
CATEGORIES:Conferences,Healthcare,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/EDS-scaled.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241031
DTEND;VALUE=DATE:20241101
DTSTAMP:20260403T223956
CREATED:20240819T214035Z
LAST-MODIFIED:20240819T214035Z
UID:5210-1730332800-1730419199@canadianrdn.ca
SUMMARY:Developing Therapies in Rare Neuromuscular Disease
DESCRIPTION:The symposium is designed for industry professionals involved in developing treatments for rare neuromuscular diseases and offers a unique opportunity to learn from past mistakes\, engage with leading experts\, and gain valuable insights into the challenges and opportunities within the field. Attendees can expect interactive sessions and opportunities to pose questions to the speakers\, fostering meaningful dialogue and knowledge exchange.
URL:https://canadianrdn.ca/event/developing-therapies-in-rare-neuromuscular-disease/
CATEGORIES:Conferences,Healthcare,In Person,International,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241031
DTEND;VALUE=DATE:20241101
DTSTAMP:20260403T223956
CREATED:20240809T211329Z
LAST-MODIFIED:20240809T211329Z
UID:5094-1730332800-1730419199@canadianrdn.ca
SUMMARY:Celebrating 15 Years of TACT: A Milestone Event in Boston
DESCRIPTION:This year marks the 15th anniversary of the TREAT-NMD Advisory committee for therapeutics (TACT). TACT was set up in 2009 by Prof. Volker Straub and Kate Bushby to provide the neuromuscular community with a unique drug development resource.  The aim is to give transparent and consistent guidance to the neuromuscular research community in order to advance the treatment of neuromuscular diseases more effectively.  Each year the committee meets in the spring and the autumn\, and a bespoke panel is assembled to review up to four applications for advice from organisations developing treatments in NMD.The symposium is designed for industry professionals involved in developing treatments for rare neuromuscular diseases and offers a unique opportunity to learn from past mistakes\, engage with leading experts\, and gain valuable insights into the challenges and opportunities within the field. Attendees can expect interactive sessions and ample opportunities to pose questions to the speakers\, fostering meaningful dialogue and knowledge exchange.
URL:https://canadianrdn.ca/event/celebrating-15-years-of-tact-a-milestone-event-in-boston/
CATEGORIES:Conferences,Healthcare,In Person,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/08/NMD-1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241022T190000
DTEND;TZID=America/Chicago:20241022T200000
DTSTAMP:20260403T223956
CREATED:20240819T213841Z
LAST-MODIFIED:20240819T213841Z
UID:5208-1729623600-1729627200@canadianrdn.ca
SUMMARY:'Neurogeriatric and neurological aspects in palliative care of MSA\, PSP and advanced PD' by Martin Klietz
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/neurogeriatric-and-neurological-aspects-in-palliative-care-of-msa-psp-and-advanced-pd-by-martin-klietz/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/8f22890e-e95f-4472-bce2-c61975661dd0.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241022T100000
DTEND;TZID=Europe/Helsinki:20241025T180000
DTSTAMP:20260403T223956
CREATED:20240523T000415Z
LAST-MODIFIED:20240531T022124Z
UID:4150-1729591200-1729879200@canadianrdn.ca
SUMMARY:World Orphan Drug Congress 2024
DESCRIPTION:The World Orphan Drug Congress is the largest\, most established European meeting dedicated to orphan drugs. This year the conference will take place in Barcelona\, Spain. \nFrom cell & gene therapy\, genetic testing\, market access to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/world-orphan-drug-congress-2024/
LOCATION:Fira de Barcelona Montjuic\, Barcelona\, Spain
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/webp:https://canadianrdn.ca/wp-content/uploads/2024/05/World-Orphan-Drug-Congress-Europe-2024-Logo.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241015T120000
DTEND;TZID=America/Chicago:20241015T130000
DTSTAMP:20260403T223956
CREATED:20241004T013111Z
LAST-MODIFIED:20241004T013111Z
UID:6004-1728993600-1728997200@canadianrdn.ca
SUMMARY:Stem Cell Therapies for Neuromuscular Disorders
DESCRIPTION:
URL:https://canadianrdn.ca/event/stem-cell-therapies-for-neuromuscular-disorders/
CATEGORIES:Healthcare,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/Muscular.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241009
DTEND;VALUE=DATE:20241011
DTSTAMP:20260403T223956
CREATED:20240702T205524Z
LAST-MODIFIED:20240702T205524Z
UID:4719-1728432000-1728604799@canadianrdn.ca
SUMMARY:International Conference on Newborn Screening 2024
DESCRIPTION:The 2024 meeting of the International Consortium on Newborn Sequencing (ICoNS) will be held in New York City\, USA on October 9 – 10\, 2024. \nICoNS is the premier event for connecting with top experts and gaining insights into the frontier of newborn sequencing as screening for ushering in the era of preventive medicine.
URL:https://canadianrdn.ca/event/international-conference-on-newborn-screening-2024/
CATEGORIES:Conferences,Events,Healthcare,In Person,International,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/07/logo-wht.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240929T080000
DTEND;TZID=UTC:20241001T170000
DTSTAMP:20260403T223956
CREATED:20240918T211234Z
LAST-MODIFIED:20240918T211234Z
UID:5877-1727596800-1727802000@canadianrdn.ca
SUMMARY:4th International Symposium on Arthrogryposis
DESCRIPTION:The International Symposium on Arthrogryposis provides a platform for learning and exchanging on the clinical management and research in Arthrogryposis Multiplex Congenita (AMC) in the areas of genetics\, orthopedics\, and rehabilitation. Multisite collaborations are key to advance research initiatives and standardize practice across centers.
URL:https://canadianrdn.ca/event/4th-international-symposium-on-arthrogryposis/
CATEGORIES:Conferences,Healthcare,In Person,National,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/09/451645084_18448036270019107_2342645705354448652_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240927T170000
DTEND;TZID=America/Chicago:20240929T130000
DTSTAMP:20260403T223956
CREATED:20240522T224236Z
LAST-MODIFIED:20240531T022345Z
UID:4144-1727456400-1727614800@canadianrdn.ca
SUMMARY:Western Canadian Neuromuscular Conference (WCNMC)
DESCRIPTION:This is the 5th WCNMC and is being held in Calgary on September 27 – 29\, 2024. The conference has rotated locations in Western Canada with the inaugural conference hosted in Calgary in 2013. This weekend conference is designed for general neurologists\, neuromuscular specialists\, physical medicine and rehabilitation specialists\, trainee physicians with interest in Neuromuscular Medicine and allied health members from the neuromuscular community. \nThe conference anticipates 100 – 150 attendees. The majority of attendees will come from Calgary\, Edmonton and Vancouver\, with a smaller but important complement of colleagues travelling from mid-sized centres such as Victoria\, Regina\, Kelowna\, Lethbridge and Saskatoon. \nThis conference has been well received in the past within the neuromuscular community as an opportunity to update and share knowledge. The conference has not been held in-person since 2017 and there is much excitement and enthusiasm for this conference within the neuromuscular community to reconnect in person. \nThe conference will update participants on recent advances in the diagnosis and management of common nerve\, muscle and motor neuron diseases. The format will be a blend of short didactic presentations with interactive discussions\, international keynote speakers leading the plenary sessions and question answer sessions. Additionally\, the conference will provide ample networking opportunities as the exhibit hall will be in the same space as all meals and include a robust welcome reception. \nIf you have questions about speakers\, sponsorship or anything else regarding WCNMC\, please contact info@wcnmc.ca.
URL:https://canadianrdn.ca/event/western-canadian-neuromuscular-conference-wcnmc/
LOCATION:Hotel Arts Calgary\, Calgary\, Alberta\, Canada
CATEGORIES:Healthcare,In Person,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/05/1709814041logo-jpg1709814041.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240926T090000
DTEND;TZID=America/Chicago:20240926T223000
DTSTAMP:20260403T223956
CREATED:20240919T214708Z
LAST-MODIFIED:20240919T214708Z
UID:5886-1727341200-1727389800@canadianrdn.ca
SUMMARY:The important elements of the Medicine Wheel" with Dr. Terri-Lynn Fox
DESCRIPTION:This session will provide a brief overview of the medicine wheel\, why it is important\, and how it supports emotional\, spiritual\, mental\, and physical health and healing. Led by Dr. Terri-Lynn Fox [Aai’piihkwikomotaakii]\, Indigenous Scholar on Indian Residential Schools and Truth and Reconciliation\, this 75-minute session includes a presentation and will be followed by a discussion period where attendees can submit questions and comments on the topic. While we hope you can join the live webinar\, it will be recorded and available on the Arthritis Community Learning Circle’s “Arthritis Call to Action” website following the presentation.
URL:https://canadianrdn.ca/event/the-important-elements-of-the-medicine-wheel-with-dr-terri-lynn-fox/
CATEGORIES:Healthcare,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/09/Medicine-wheel.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240926T090000
DTEND;TZID=America/Chicago:20240926T103000
DTSTAMP:20260403T223956
CREATED:20240812T211852Z
LAST-MODIFIED:20240812T211852Z
UID:5106-1727341200-1727346600@canadianrdn.ca
SUMMARY:Autoimmune Encephalitis and Immune-mediated Epilepsies
DESCRIPTION:
URL:https://canadianrdn.ca/event/autoimmune-encephalitis-and-immune-mediated-epilepsies/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/08/Epicare-1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20240926T080000
DTEND;TZID=America/Halifax:20240928T170000
DTSTAMP:20260403T223956
CREATED:20240523T005941Z
LAST-MODIFIED:20240531T022557Z
UID:4169-1727337600-1727542800@canadianrdn.ca
SUMMARY:North American Cystic Fibrosis Conference
DESCRIPTION:NACFC provides a collaborative and educational forum for all CF professionals. The educational elements of the meeting program are targeted to physicians\, nurses\, research scientists\, respiratory therapists\, physical therapists\, nutritionists\, social workers\, and pharmacists. \nThis annual meeting brings together scientists\, clinicians\, and caregivers from around the world to discuss and share ideas on the latest advances in CF research\, care\, and drug development and to exchange ideas about ways to improve the health and quality of life for people with CF.
URL:https://canadianrdn.ca/event/north-american-cystic-fibrosis-conference/
LOCATION:Boston Convention and Exhibition Center\, Boston\, MA\, United States
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240925T120000
DTEND;TZID=America/New_York:20240925T130000
DTSTAMP:20260403T223956
CREATED:20240819T211851Z
LAST-MODIFIED:20240819T211851Z
UID:5184-1727265600-1727269200@canadianrdn.ca
SUMMARY:Webinar - Designing effectiveness-implementation hybrid trials in child health research
DESCRIPTION:The webinar will introduce effectiveness-hybrid designs\, showcase examples\, and outline important considerations for conducting these types of studies. It will also briefly summarize tensions that may occur in conducting implementation research and mention tools to support implementation planning and execution.
URL:https://canadianrdn.ca/event/webinar-designing-effectiveness-implementation-hybrid-trials-in-child-health-research/
CATEGORIES:Clinical Trials,Healthcare,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Karachi:20240925T080000
DTEND;TZID=Asia/Karachi:20240928T203000
DTSTAMP:20260403T223956
CREATED:20240522T223719Z
LAST-MODIFIED:20240531T022742Z
UID:4141-1727251200-1727555400@canadianrdn.ca
SUMMARY:Week in RARE: RARE Advocacy Summit and Health Equity Forum
DESCRIPTION:Global Genes is on the move — Week in RARE is moving to Kansas City\, Missouri in 2024. Week in RARE combines the RARE Health Equity Forum and RARE Advocacy Summit\, in addition to the RARE Champions of Hope awards ceremony and annual membership meetings for Global Advocacy Alliance and RARE Corporate Alliance. This is a unique opportunity to gather and engage rare disease advocates and leaders in the same space for conversation. \nEach year\, Global Genes convenes one of the world’s largest gatherings of rare disease patients\, caregivers\, advocates\, healthcare professionals\, researchers\, partners\, and allies at the RARE Advocacy Summit to work together to build a path to hope. This is an unparalleled opportunity for advocates\, whether new or veteran\, to forge meaningful connections with others in the rare disease community for future collaboration. Sessions provide attendees\, with insights about the latest in rare disease innovations\, best practices for advocating on an individual and organizational level\, and actionable strategies they can take home and implement immediately to improve care and accelerate change. \nThe RARE Health Equity Forum is the first one-of-a-kind event focused on the intersection of rare disease and health equity with an agenda built around creating systemic and organizational change. The conference was developed to better understand the persistent gaps that exist in the rare disease community for underrepresented and/or marginalized patient populations\, including those who are still seeking a diagnosis or are unaffiliated with a disease-specific foundation. \nThis year\, the Summit will be held in Kansas City\, Missouri.
URL:https://canadianrdn.ca/event/week-in-rare-rare-advocacy-summit-and-health-equity-forum/
LOCATION:Kansas City\, Kansas City\, MO\, United States
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240925T080000
DTEND;TZID=UTC:20240928T170000
DTSTAMP:20260403T223956
CREATED:20240819T214651Z
LAST-MODIFIED:20240819T214651Z
UID:5216-1727251200-1727542800@canadianrdn.ca
SUMMARY:Canadian Association of Genetic Counsellors 2024 Annual Education Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/canadian-association-of-genetic-counsellors-2024-annual-education-conference/
CATEGORIES:Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240924T190000
DTEND;TZID=America/Chicago:20240924T200000
DTSTAMP:20260403T223956
CREATED:20240819T213400Z
LAST-MODIFIED:20240819T213400Z
UID:5203-1727204400-1727208000@canadianrdn.ca
SUMMARY:'Clinical neurophysiology in dystonia' by Anke Snijders
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/clinical-neurophysiology-in-dystonia-by-anke-snijders/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/8f22890e-e95f-4472-bce2-c61975661dd0.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240920
DTEND;VALUE=DATE:20240923
DTSTAMP:20260403T223956
CREATED:20240716T210445Z
LAST-MODIFIED:20240717T005444Z
UID:4820-1726790400-1727049599@canadianrdn.ca
SUMMARY:CHAEN / International Guideline Conference
DESCRIPTION:The Canadian Hereditary Angioedema Network (CHAEN) is an organization of physicians who treat and/or are interested in Hereditary Angioedema. CHAEN is incorporated under the Canada Not-For-Profit Corporations Act. \nCHAEN unites physicians committed to ensuring all HAE patients in Canada have access to excellent care that reflects current management and treatment guidelines\, and works to promote research and education.
URL:https://canadianrdn.ca/event/chaen-international-guideline-conference/
LOCATION:Hilton Hotel Toronto\, Toronto\, Ontario\, Canada
CATEGORIES:Conferences,Events,Healthcare,In Person,National,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240917
DTEND;VALUE=DATE:20240918
DTSTAMP:20260403T223956
CREATED:20240827T013421Z
LAST-MODIFIED:20240827T013421Z
UID:5413-1726531200-1726617599@canadianrdn.ca
SUMMARY:EMPOWER & INSPIRE 3RD ANNUAL LEIGH SYNDROME SYMPOSIUM
DESCRIPTION:Empower & Inspire: Understanding and Accelerating Research for Leigh Syndrome\nTuesday\, September 17\, 2024 \nBrought to you by: \n​Cure Mito Foundation & integrative Cardiovascular Metabolism and Pathophysiology Laboratory (iCaMP) at Boston University \nFor details please visit curemito.org/conference \n 
URL:https://canadianrdn.ca/event/empower-inspire-3rd-annual-leigh-syndrome-symposium/
CATEGORIES:Conferences,Healthcare,Industry,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/08/Cure-Mito.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240916T080000
DTEND;TZID=Australia/Melbourne:20240920T170000
DTSTAMP:20260403T223956
CREATED:20240522T222536Z
LAST-MODIFIED:20240531T022852Z
UID:4138-1726473600-1726851600@canadianrdn.ca
SUMMARY:Global Alliance for Genomics and Health - 12th Plenary
DESCRIPTION:GA4GH 12th Plenary brings together organisations and initiatives from the genomics and health community for keynotes\, talks\, and workshops. The conference will focus on genomic and clinical data sharing issues that pervade diverse industries\, disciplines\, and communities.
URL:https://canadianrdn.ca/event/global-alliance-for-genomics-and-health-12th-plenary/
LOCATION:Park Hyatt Melbourne\, Melbourne\, Australia
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20240911T120000
DTEND;TZID=America/Halifax:20240911T130000
DTSTAMP:20260403T223956
CREATED:20240523T003752Z
LAST-MODIFIED:20240523T003752Z
UID:4163-1726056000-1726059600@canadianrdn.ca
SUMMARY:Designing effectiveness-implementation hybrid trials in child health research
DESCRIPTION:The webinar will introduce effectiveness-hybrid designs\, showcase examples\, and outline important considerations for conducting these types of studies. It will also briefly summarize tensions that may occur in conducting implementation research and mention tools to support implementation planning and execution.
URL:https://canadianrdn.ca/event/designing-effectiveness-implementation-hybrid-trials-in-child-health-research/
CATEGORIES:Clinical Trials,Healthcare,National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240910T080000
DTEND;TZID=UTC:20240912T170000
DTSTAMP:20260403T223956
CREATED:20240730T203040Z
LAST-MODIFIED:20240730T203040Z
UID:4894-1725955200-1726160400@canadianrdn.ca
SUMMARY:PxP 2024 Conference (For Patients\, By Patients)
DESCRIPTION:Standing for ‘For Patients\, By Patients’\, PxP 2024 is entirely led by an international team of patient and public partners and is a Patients Included™ event. Our purpose is to share resources\, mentorship and community with patient partners and others involved in health research. Ultimately\, our goal is partnering to make research stronger. \nThis free\, virtual event aims to bring you a wealth of knowledge\, skills and resources on patient engagement in health research. Patient engagement in health research\, also known as patient and public involvement (in the UK) or consumer involvement (in Australia). ‘Patient engagement’ in health research is where patients are research team members. This is different from volunteering to be a research participant where you might help advance research or healthcare\, but a research participant generally does not give input into the research study itself. Whatever language you prefer\, we warmly welcome everyone to attend.
URL:https://canadianrdn.ca/event/pxp-2024-conference-for-patients-by-patients/
CATEGORIES:Caregiver,Conferences,Healthcare,Patient Focused,Research Focused,Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20240909T080000
DTEND;TZID=America/Denver:20240911T170000
DTSTAMP:20260403T223956
CREATED:20240809T210908Z
LAST-MODIFIED:20240809T210938Z
UID:5091-1725868800-1726074000@canadianrdn.ca
SUMMARY:C-Path 2024 Global Impact Conference
DESCRIPTION:Attendees of the 3-day conference\, including patients\, providers\, researchers\, clinicians\, biopharmaceutical companies\, regulatory reviewers and scientists\, will leave with knowledge of: \n\nAccelerating drug development across neurology\, rare diseases\, pediatrics\, and beyond.\nIntegrating insights across therapeutic areas to advance the process for novel treatments and cures.\nThe power of every precious data point in rare and orphan diseases.\nNavigating novel therapies with novel evidence sources.\nInnovative methods and approaches.\nThe value and impact that C-Path partnerships have on accelerating drug development.
URL:https://canadianrdn.ca/event/c-path-2024-global-impact-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/08/C-PATH1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Tokyo:20240905T080000
DTEND;TZID=Asia/Tokyo:20240907T170000
DTSTAMP:20260403T223956
CREATED:20240522T221845Z
LAST-MODIFIED:20240531T023045Z
UID:4135-1725523200-1725728400@canadianrdn.ca
SUMMARY:13th Conference of Undiagnosed Diseases Network International
DESCRIPTION:This event will be held in Seoul\, South Korea\, and promises to be an enriching experience filled with insightful discussions and valuable networking opportunities.
URL:https://canadianrdn.ca/event/13th-conference-of-undiagnosed-diseases-network-international/
LOCATION:Seoul National University Children’s Hospital\, Seoul\, Korea\, Republic of
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=application/pdf:https://canadianrdn.ca/wp-content/uploads/2024/05/e_poster_2024_udni_conference_final_1.pdf
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240830T103000
DTEND;TZID=UTC:20240830T113000
DTSTAMP:20260403T223956
CREATED:20240618T011800Z
LAST-MODIFIED:20240618T011800Z
UID:4456-1725013800-1725017400@canadianrdn.ca
SUMMARY:Canadian Scleroderma Research Group - Navigating Systemic Sclerosis Waters
DESCRIPTION:The CME (Continuing Medical Education) Session hosted at the National Scleroderma Conference is for family practitioners\, ER physicians\, critical care physicians\, internists\, rheumatologists\, nephrologists\, cardiologists\, respirologists\, nurses\, physiotherapists\, occupational therapists\, respiratory therapists\, pharmacists\, and students.
URL:https://canadianrdn.ca/event/canadian-scleroderma-research-group-navigating-systemic-sclerosis-waters/
CATEGORIES:Conferences,Events,Healthcare,Hybrid,National
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240829T080000
DTEND;TZID=UTC:20240831T170000
DTSTAMP:20260403T223956
CREATED:20240523T212750Z
LAST-MODIFIED:20240531T023825Z
UID:4213-1724918400-1725123600@canadianrdn.ca
SUMMARY:21st BI-ANNUAL NATIONAL SCLERODERMA CONFERENCE
DESCRIPTION:Held in beautiful St. John’s\, NL\, the 21st Bi-Annual National Scleroderma Conference offers an information-rich opportunity for people living with scleroderma\, their caregivers\, family members\, friends\, and medical professionals.  \n​Research updates\, panel discussions\, keynotes\, workshops\, and other educational sessions are led by leading scleroderma researchers\, healthcare professionals and other industry leading professionals. Whether you are newly diagnosed or have had scleroderma for many years\, the National Conference is a great way to learn about the disease and become connected with others that are dealing with scleroderma.
URL:https://canadianrdn.ca/event/21st-bi-annual-national-scleroderma-conference/
LOCATION:St John’s Conference Centre\, St John's\, Newfoundland\, Canada
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
END:VEVENT
END:VCALENDAR