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X-WR-CALDESC:Events for Canadian Rare Disease Network
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UID:11408-1786449600-1786455000@canadianrdn.ca
SUMMARY:CORD: From Readiness to Action: The Capstone Consultation Before the Rare Readiness Scorecard Launch
DESCRIPTION:Final Webinar in CORD’s 4-Part Summer Rare Disease Readiness Series
URL:https://canadianrdn.ca/event/cord-from-readiness-to-action-the-capstone-consultation-before-the-rare-readiness-scorecard-launch/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/1785351822684.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260814T080000
DTEND;TZID=America/Toronto:20260815T170000
DTSTAMP:20260702T193512Z
CREATED:20260624T183417Z
LAST-MODIFIED:20260702T193512Z
UID:11093-1786694400-1786813200@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario: Annual Summit 2026 Registration
DESCRIPTION:Join SCAGO for an educational two-day summit bringing together researchers\, clinicians\, advocates\, and community members all working to transform sickle cell care.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-annual-summit-2026-registration/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781618228846.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260818T080000
DTEND;TZID=America/Edmonton:20260818T170000
DTSTAMP:20260730T182325Z
CREATED:20260730T182325Z
LAST-MODIFIED:20260730T182325Z
UID:11411-1787040000-1787072400@canadianrdn.ca
SUMMARY:ACHRI: 2026 Maternal & Child Health Trainee Research Day
DESCRIPTION:Led by the Alberta Children’s Hospital Research Institute Trainee Association (ACHRITA) in partnership with the Owerko Centre and ACHRI\, the event is open to undergraduate and summer students\, graduate students\, postdoctoral researchers\, and PGME/clinical fellows.
URL:https://canadianrdn.ca/event/achri-2026-maternal-child-health-trainee-research-day/
CATEGORIES:Conferences,Healthcare,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/07/ACHRI.png
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260819T130000
DTEND;TZID=America/Toronto:20260819T140000
DTSTAMP:20260730T182454Z
CREATED:20260730T182454Z
LAST-MODIFIED:20260730T182454Z
UID:11414-1787144400-1787148000@canadianrdn.ca
SUMMARY:ALS Canada: ALS Research and Clinical Trials 101 Q&A Drop-In
DESCRIPTION:This monthly Q&A drop-in session is available for people living with ALS\, their families\, caregivers\, and anyone close to someone living with the disease who is seeking information or might have questions about ALS research and/or clinical trials
URL:https://canadianrdn.ca/event/als-canada-als-research-and-clinical-trials-101-qa-drop-in/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/images-2.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260820T130000
DTEND;TZID=America/Toronto:20260820T140000
DTSTAMP:20260730T182604Z
CREATED:20260730T182604Z
LAST-MODIFIED:20260730T182604Z
UID:11417-1787230800-1787234400@canadianrdn.ca
SUMMARY:ALS Canada: Storytelling and Legacy Building for the ALS Community
DESCRIPTION:Join ALS Canada for an inspiring panel on how people affected by ALS are sharing their lived experiences and turning their stories into meaningful legacies. Learn simple ways to document your journey\, build connection through storytelling\, and preserve your story for the future.
URL:https://canadianrdn.ca/event/als-canada-storytelling-and-legacy-building-for-the-als-community/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/images-2.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20260829T100000
DTEND;TZID=America/Halifax:20260829T110000
DTSTAMP:20260702T193648Z
CREATED:20260624T183145Z
LAST-MODIFIED:20260702T193648Z
UID:11091-1787997600-1788001200@canadianrdn.ca
SUMMARY:RareKids-CAN: Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia
DESCRIPTION:Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. \nThese free sessions are designed for families\, caregivers\, and community members interested in learning more about pediatric rare diseases\, the diagnostic journey\, available supports\, patient advocacy resources\, and opportunities to participate in research and clinical trials. \n📍 Multiple Halifax Public Library locations throughout June and August
URL:https://canadianrdn.ca/event/rarekids-can-kids-rare-disorders-awareness-supporting-early-recognition-families-in-nova-scotia-2/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781261330862.jpg
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