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X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261014T110000
DTEND;TZID=America/Edmonton:20261014T120000
DTSTAMP:20261001T185943Z
CREATED:20261001T185943Z
LAST-MODIFIED:20261001T185943Z
UID:11729-1791975600-1791979200@canadianrdn.ca
SUMMARY:RareKids-CAN: Navigating Advanced Therapies in Paediatric Rare Disease: An Introduction for Patients and Caregivers
DESCRIPTION:This webinar is the first in the series organized under Key Initiative 1.3 of the RareKids-CAN strategic priority\, ‘Strengthening Pediatric Rare Disease Clinical Trial Capacity and Advanced Therapy Medicinal Product Readiness’. It provides a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for patients and caregivers. The session will explain what ATMPs are\, how they work\, how they differ from traditional medicines\, and the types of advanced therapies currently available or being studied. Participants will also learn how to assess what developments may be relevant to their condition\, find clinical trials and other credible information\, and start conversations with their healthcare team about emerging therapies
URL:https://canadianrdn.ca/event/rarekids-can-navigating-advanced-therapies-in-paediatric-rare-disease-an-introduction-for-patients-and-caregivers/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/9382e8ed-421c-4576-b08e-76cee8289461.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261014T120000
DTEND;TZID=America/Toronto:20261014T133000
DTSTAMP:20260929T163503Z
CREATED:20260929T163503Z
LAST-MODIFIED:20260929T163503Z
UID:11683-1791979200-1791984600@canadianrdn.ca
SUMMARY:Stem Cell Network: Careers Beyond Academia: Journal Editing and Scientific Writing
DESCRIPTION:The Stem Cell Network and Medicine by Design\, the academic division of CCRM\, have partnered to host Careers Beyond Academia\, a virtual career seminar series that will profile a wide variety of different careers available to trainees who hold a degree in the life sciences. The goal of this series is to help trainees understand the different careers available outside of academia\, the skills required for certain positions\, and some of the daily functions of those positions.
URL:https://canadianrdn.ca/event/stem-cell-network-careers-beyond-academia-journal-editing-and-scientific-writing/
CATEGORIES:Healthcare,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788870329361.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261016T120000
DTEND;TZID=America/Toronto:20261016T133000
DTSTAMP:20261001T190544Z
CREATED:20261001T190544Z
LAST-MODIFIED:20261001T190544Z
UID:11735-1792152000-1792157400@canadianrdn.ca
SUMMARY:CORD: Webinar 2: When Innovation Rewrites the Pathway
DESCRIPTION:From Canadian Experience to Phase 2 Readiness How can Phase 2 RDDS help Canada anticipate the pathway consequences of new rare and precision therapies – so that screening\, diagnosis\, eligibility\, expertise\, delivery\, patient choice\, monitoring and learning do not have to be rebuilt after each access decision?
URL:https://canadianrdn.ca/event/cord-webinar-2-when-innovation-rewrites-the-pathway/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1790866766307.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261019T080000
DTEND;TZID=America/Edmonton:20261019T090000
DTSTAMP:20261001T190421Z
CREATED:20261001T190421Z
LAST-MODIFIED:20261001T190421Z
UID:11732-1792396800-1792400400@canadianrdn.ca
SUMMARY:Rare Disease Day 2027 Launch Webinar
DESCRIPTION:EURORDIS is excited to introduce their 2027 heroes and unveil their new campaign materials. These webinars will also provide practical guidance and inspiration to help you plan impactful campaign activities in your country or community. They are hosting two identical sessions on Monday 19 October 16:00 CEST and the next is Tuesday 20 October 09:00 CEST.
URL:https://canadianrdn.ca/event/rare-disease-day-2027-launch-webinar/
CATEGORIES:Healthcare,International,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/2026-Mailings-Resources-2-1024x284-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261019T080000
DTEND;TZID=America/Toronto:20261020T170000
DTSTAMP:20260929T163637Z
CREATED:20260929T163637Z
LAST-MODIFIED:20260929T163637Z
UID:11686-1792396800-1792515600@canadianrdn.ca
SUMMARY:Advancing Equity in Genetics and Genomics in Canada (AEG2C) and Beyond
DESCRIPTION:Join in Montréal (or online) on October 19–20\, 2026 for the second AEG2C Symposium. This event will bring together researchers\, trainees\, community partners\, and patients to advance equity in genetics and genomics research across Canada and beyond. \nThis symposium is organized and hosted by the McGill Canada Excellence Research Chair (CERC) in Genomic Medicine\, CIHR Institute of Genetics (CIHR-IG)\, Genome Canada\, and the Pan-Canadian Genome Library (PCGL).
URL:https://canadianrdn.ca/event/advancing-equity-in-genetics-and-genomics-in-canada-aeg2c-and-beyond/
CATEGORIES:Clinical Trials,Conferences,Healthcare,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789484288760.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261022T190000
DTEND;TZID=America/Toronto:20261022T200000
DTSTAMP:20260929T165608Z
CREATED:20260929T165420Z
LAST-MODIFIED:20260929T165608Z
UID:11698-1792695600-1792699200@canadianrdn.ca
SUMMARY:RQMO: Handicap et finances: tout le monde peut avoir un plan
DESCRIPTION:Join RQMO for a webinar with Lucy Rivera who will discuss the different strategies and resources that can help people living with disabilities and their loved ones better plan for their financial future.
URL:https://canadianrdn.ca/event/rqmo-disability-and-finances-everyone-can-have-a-plan/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1790090258307.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20261025T080000
DTEND;TZID=America/Vancouver:20261027T170000
DTSTAMP:20260929T164955Z
CREATED:20260929T164955Z
LAST-MODIFIED:20260929T164955Z
UID:11695-1792915200-1793120400@canadianrdn.ca
SUMMARY:NORD Breakthrough Summit 2026
DESCRIPTION:Shape the future of rare disease treatments\, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.®
URL:https://canadianrdn.ca/event/nord-breakthrough-summit-2026/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/NEW-Summit-Logo-FNL-01.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20261026T080000
DTEND;TZID=Europe/Amsterdam:20261028T170000
DTSTAMP:20260929T164646Z
CREATED:20260929T164646Z
LAST-MODIFIED:20260929T164646Z
UID:11692-1793001600-1793206800@canadianrdn.ca
SUMMARY:World Orphan Drug Congress Europe 2026
DESCRIPTION:The World Orphan Drug Congress is Europe’s largest and most established orphan drug & rare disease meeting. \nFrom cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/world-orphan-drug-congress-europe-2026/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261027T080000
DTEND;TZID=America/Toronto:20261029T170000
DTSTAMP:20261001T190812Z
CREATED:20261001T190812Z
LAST-MODIFIED:20261001T190812Z
UID:11738-1793088000-1793293200@canadianrdn.ca
SUMMARY:Stronger Together: IMPaCT & RareKids-CAN Joint National Conference 2026
DESCRIPTION:IMPaCT and RareKids-CAN are bringing Canada’s maternal\, pediatric\, and rare disease research communities together for a three-day national conference in Montréal.
URL:https://canadianrdn.ca/event/stronger-together-impact-rarekids-can-joint-national-conference-2026/
CATEGORIES:Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Codex-Image-Sep-17-2026-12_14_11-PM.png
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