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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=Europe/Paris:20250121T080000
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DTSTAMP:20260404T013346
CREATED:20250109T233514Z
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UID:7352-1737446400-1737738000@canadianrdn.ca
SUMMARY:2025 International Scientific Conference on Albinism
DESCRIPTION:The Global Albinism Alliance (GAA) is very pleased to announce the 2025 International Scientific Conference on Albinism – ISCA 2025\, that will be held virtually on January 21-24\, 2025. \nISCA is THE meeting point worldwide for all scientists interested in sharing and improving knowledge of the biomedical aspects of albinism and\, more generally\, improving the health of those with albinism. It builds on the momentum created in 2012 with the launch of the EDA (European Days of Albinism) conference series that evolved into ISCA in 2022.
URL:https://canadianrdn.ca/event/2025-international-scientific-conference-on-albinism/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
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DTSTART;TZID=Europe/Paris:20250123T160000
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UID:7377-1737648000-1737651600@canadianrdn.ca
SUMMARY:Challenges in the Diagnosis and Treatment of Inflammatory Neuropathies
DESCRIPTION:Delivered by Dr. Filip Eftimov (University Medical Center of Amsterdam\, the Netherlands) & Jean-Philippe Plançon (EPODIN – European Patient Organisation for Dysimmune and Inflammatory Neuropathies\, France)\, January 23rd 2025 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology. READ CAREFULLY please: By registering and attending the webinar you consent to the recording of the webinar and its later diffusion through the EURO-NMD websites using an YouTube Channel
URL:https://canadianrdn.ca/event/challenges-in-the-diagnosis-and-treatment-of-inflammatory-neuropathies/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
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DTSTART;TZID=America/New_York:20250123T160000
DTEND;TZID=America/New_York:20250123T190000
DTSTAMP:20260404T013346
CREATED:20250107T233058Z
LAST-MODIFIED:20250107T233058Z
UID:7338-1737648000-1737658800@canadianrdn.ca
SUMMARY:CIHI-Foundations of Patient Partnering Virtual Sessions
DESCRIPTION:Calling all patient and family partners! Are you interested in attending a training session to learn about foundational patient engagement concepts\, participate in skill-building activities\, and network with other patient and family partners? Consider signing up for a free 3-hour virtual training session developed in collaboration by CIHI and the Patient Advisors Network (PAN).
URL:https://canadianrdn.ca/event/cihi-foundations-of-patient-partnering-virtual-sessions-2/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Virtual,Webinars
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