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X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260909T080000
DTEND;TZID=America/Toronto:20260911T170000
DTSTAMP:20260826T202920Z
CREATED:20260826T202920Z
LAST-MODIFIED:20260826T202920Z
UID:11552-1788940800-1789146000@canadianrdn.ca
SUMMARY:Global Genes: RARE Drug Development Symposium
DESCRIPTION:Join Global Genes virtually from September 9 – 11\, 2026 and access high-impact sessions directly from your home or office. \nWhat’s included in the Live Stream:\n2 Fireside Chats\n6 General Sessions\nKeynote Talks\nPitch Perfect Session \nConnect with advocates\, researchers\, and leaders shaping the future of rare drug development.
URL:https://canadianrdn.ca/event/global-genes-rare-drug-development-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,Industry,International,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1787775215021.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260918T080000
DTEND;TZID=America/Toronto:20260919T160000
DTSTAMP:20260624T184340Z
CREATED:20260624T184340Z
LAST-MODIFIED:20260624T184340Z
UID:11099-1789718400-1789833600@canadianrdn.ca
SUMMARY:Cavernous Malformation Canada Clinical & Scientific Symposium
DESCRIPTION:Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board\, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only for the experienced but also those early in their understanding of this disease.
URL:https://canadianrdn.ca/event/cavernous-malformation-canada-clinical-scientific-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/06/4b14bd73-3e6c-41b0-9f2c-ac58e0add962.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260918T080000
DTEND;TZID=America/Toronto:20260919T170000
DTSTAMP:20260624T184512Z
CREATED:20260624T184512Z
LAST-MODIFIED:20260624T184512Z
UID:11102-1789718400-1789837200@canadianrdn.ca
SUMMARY:Cavernous Malformation Canada Patient & Family Conference
DESCRIPTION:Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers\, interactive opportunities between patients and clinicians\, and meaningful moments of connection and sharing with others impacted by cavernous malformation. 
URL:https://canadianrdn.ca/event/cavernous-malformation-canada-patient-family-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/06/ce2b7ab4-753a-41b5-80ce-de2f738e0aaf.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260919T090000
DTEND;TZID=America/Toronto:20260919T140000
DTSTAMP:20260817T155910Z
CREATED:20260817T155910Z
LAST-MODIFIED:20260817T155910Z
UID:11420-1789808400-1789826400@canadianrdn.ca
SUMMARY:SickKids: Neurovascular Family Education Day 2026
DESCRIPTION:Please join SickKids for an educational event for patients\, families\, and care-givers featuring expert speakers on Moyamoya Disease.
URL:https://canadianrdn.ca/event/sickkids-neurovascular-family-education-day-2026/
CATEGORIES:Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260919T100000
DTEND;TZID=America/Toronto:20260919T160000
DTSTAMP:20260625T190021Z
CREATED:20260625T190021Z
LAST-MODIFIED:20260625T190021Z
UID:11109-1789812000-1789833600@canadianrdn.ca
SUMMARY:Regroupement Quebecois des Maladies Orphelines (RQMO) Educational Day 2026
DESCRIPTION:This year\, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme “The impacts of rare diseases – towards better inclusion”. \nThis awareness day aims to be a space for exchange\, reflection\, and sharing about the realities experienced by people living with rare diseases. RQMO wants to highlight the daily challenges\, but also concrete ways to build a more inclusive society.
URL:https://canadianrdn.ca/event/regroupement-quebecois-des-maladies-orphelines-rqmo-educational-day-2026/
CATEGORIES:Caregiver,Events,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781626049176.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260919T123000
DTEND;TZID=America/Toronto:20260919T153000
DTSTAMP:20260817T160846Z
CREATED:20260817T160846Z
LAST-MODIFIED:20260817T160846Z
UID:11427-1789821000-1789831800@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario (SCAGO): Sickle Cell Awareness Month Community Engagement in Thunder Bay
DESCRIPTION:SCAGO is excited to bring our first-ever Sickle Cell Awareness Month Community Event to Thunder Bay in collaboration with NorWest Community Health Centres (CHC)! \nJoin SCAGO for an afternoon of connection\, education\, and community as they come together to raise awareness and celebrate the strength of individuals and families impacted by sickle cell disease.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-scago-sickle-cell-awareness-month-community-engagement-in-thunder-bay/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1786386266288.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20260924T080000
DTEND;TZID=America/Vancouver:20260926T170000
DTSTAMP:20260624T183648Z
CREATED:20260624T183634Z
LAST-MODIFIED:20260624T183648Z
UID:11096-1790236800-1790442000@canadianrdn.ca
SUMMARY:Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions
DESCRIPTION:🔬 Thursday\, September 24\nCPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals\, researchers\, and invited network members. \n🩺 Friday\, September 25\nScientific Sessions — a full day dedicated to the latest PH research\, clinical advancements\, and collaboration among healthcare professionals and researchers. The day concludes with the Patient & Family Symposium Welcome Reception\, where the entire PH community comes together. \n💜 Saturday\, September 26\nPatient & Family Symposium — designed specifically for PH patients\, caregivers\, family members\, and supporters. A day of education\, inspiration\, connection\, and community.
URL:https://canadianrdn.ca/event/pulmonary-hypertension-association-canadas-ph-community-conference-scientific-sessions/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1780531229165.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260924T110000
DTEND;TZID=America/Edmonton:20260924T120000
DTSTAMP:20260910T155541Z
CREATED:20260910T155541Z
LAST-MODIFIED:20260910T155541Z
UID:11621-1790247600-1790251200@canadianrdn.ca
SUMMARY:Health Data Research Network Canada: Quantifiable Indigenous Concepts: Increasing Precision of Population Analysis by Including “Indian Act” Legislation
DESCRIPTION:Drawing on Canada’s 2021 Census of Population\, Kienan will discuss Quantifiable Indigenous Concepts\, which were developed to strengthen how Indigenous populations are identified and analyzed in quantitative data. He’ll also draw on his lived experience as an Indigenous person represented in population datasets and examine the importance of appropriately representing the approximately 0.9 million people in the Status Indian population.
URL:https://canadianrdn.ca/event/health-data-research-network-canada-quantifiable-indigenous-concepts-increasing-precision-of-population-analysis-by-including-indian-act-legislation/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1787602896646.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260924T110000
DTEND;TZID=America/Edmonton:20260924T120000
DTSTAMP:20260922T164651Z
CREATED:20260922T164651Z
LAST-MODIFIED:20260922T164651Z
UID:11634-1790247600-1790251200@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. You’re welcome for all or some of our hour together. Reach out to Sara at rkengage@mcmaster.ca for any questions.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789154047611-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260925T080000
DTEND;TZID=America/Edmonton:20260925T170000
DTSTAMP:20260831T190905Z
CREATED:20260831T190559Z
LAST-MODIFIED:20260831T190905Z
UID:11562-1790323200-1790355600@canadianrdn.ca
SUMMARY:2026 NMD4C Annual Meeting
DESCRIPTION:Join NMD4C for a full day of dynamic discussions\, research updates\, and networking opportunities—just ahead of the 6th Western Canadian Neuromuscular Conference (WCNMC 2026). The agenda will feature a brief network update\, trainee and early‑career recognitions\, flash talks\, a health economics research showcase\, and the following cross‑disciplinary and parallel clinical / pre‑clinical discussion sessions
URL:https://canadianrdn.ca/event/2026-nmd4c-annual-meeting/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/08/2026-NMD4C-AM-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260925T080000
DTEND;TZID=America/Edmonton:20260927T170000
DTSTAMP:20260831T190839Z
CREATED:20260831T190826Z
LAST-MODIFIED:20260831T190839Z
UID:11565-1790323200-1790528400@canadianrdn.ca
SUMMARY:6th Western Canadian Neuromuscular Conference (WCNMC 2026)
DESCRIPTION:WCNMC 2026 will continue with its proud collaboration with Muscular Dystrophy Canada and the Neuromuscular Disease Network for Canada (NMD4C) to broaden reach and amplify impact. The WCNMC brings together clinicians\, researchers\, trainees\, nurses\, and allied health professionals for three days of learning\, featuring parallel basic/translational science and clinical sessions\, alongside case discussions and neuromuscular research presentations.
URL:https://canadianrdn.ca/event/6th-western-canadian-neuromuscular-conference-wcnmc-2026/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/wcnmc.ca_.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T060000
DTEND;TZID=America/Edmonton:20260929T070000
DTSTAMP:20260910T154559Z
CREATED:20260910T154559Z
LAST-MODIFIED:20260910T154559Z
UID:11611-1790661600-1790665200@canadianrdn.ca
SUMMARY:Rare Diseases International: Innovative Financing for Rare Diseases: From Concept to Implementation
DESCRIPTION:This final webinar focuses on what it takes to move from models on paper to solutions that work in practice. It will look at feasibility\, governance\, stakeholder alignment\, and the concrete pathways countries and funders can use to adopt and sustain these mechanisms. The discussion will pay particular attention to how innovative financing can support the integration of rare diseases into Universal Health Coverage frameworks and long-term national strategies\, and to the realities of low- and middle-income settings where financing gaps are most acute.
URL:https://canadianrdn.ca/event/rare-diseases-international-innovative-financing-for-rare-diseases-from-concept-to-implementation/
CATEGORIES:Healthcare,Industry,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788252678497.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260929T080000
DTEND;TZID=Europe/Paris:20261002T170000
DTSTAMP:20250812T194434Z
CREATED:20250812T194434Z
LAST-MODIFIED:20250812T194434Z
UID:8714-1790668800-1790960400@canadianrdn.ca
SUMMARY:17th International Symposium on Sjögren's Disease
DESCRIPTION:This prestigious event\, which brings together researchers\, physicians\, patients and experts from around the world to discuss the latest advancements in Sjögren’s disease.
URL:https://canadianrdn.ca/event/17th-international-symposium-on-sjogrens-disease/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T100000
DTEND;TZID=America/Edmonton:20260929T120000
DTSTAMP:20260922T164330Z
CREATED:20260922T164330Z
LAST-MODIFIED:20260922T164330Z
UID:11631-1790676000-1790683200@canadianrdn.ca
SUMMARY:CORD: Webinar 1 : How Readiness Is Built: Lessons from Canadian Rare Disease Pathways
DESCRIPTION:Beyond Drug Access: Building End-to-End Readiness for Phase 2 of Canada’s Rare Disease Drug Strategy As Canada moves toward Phase 2 of the Rare Disease Drug Strategy\, what can we learn from Phase 1\, and what needs to be strengthened? This webinar will explore end-to-end readiness through Canadian experiences with hemophilia\, thalassemia and sickle cell disease\, examining diagnosis\, specialist care\, access to therapies\, disease management and patient support. We will consider what these experiences can teach us about the capabilities Canada needs to build and sustain as new rare disease therapies emerge.
URL:https://canadianrdn.ca/event/cord-webinar-1-how-readiness-is-built-lessons-from-canadian-rare-disease-pathways/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789739264388.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T110000
DTEND;TZID=America/Edmonton:20260929T123000
DTSTAMP:20260910T155159Z
CREATED:20260910T155159Z
LAST-MODIFIED:20260910T155159Z
UID:11615-1790679600-1790685000@canadianrdn.ca
SUMMARY:Indigenous Caregivers Collective (ICC): Virtual Panel Indigenous Values in Care
DESCRIPTION:In acknowledgement of the National Day for Truth and Reconciliation\, this virtual panel will centre the voices\, experiences\, and knowledge of Indigenous caregivers from across Canada. Members of the National Indigenous Caregiver Advisory will share their lived experiences and perspectives on caregiving\, culture\, community\, and reconciliation.
URL:https://canadianrdn.ca/event/indigenous-caregivers-collective-icc-virtual-panel-indigenous-values-in-care/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788281843629.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T123000
DTEND;TZID=America/Edmonton:20260929T133000
DTSTAMP:20260910T154339Z
CREATED:20260910T154339Z
LAST-MODIFIED:20260910T154339Z
UID:11608-1790685000-1790688600@canadianrdn.ca
SUMMARY:National Day for Truth and Reconciliation: Anti-Indigenous Racism in the Emergency Department
DESCRIPTION:The Indigenous Health Office invites you to attend “Anti-Indigenous Racism in the Emergency Department”\, a conversation with Dr. Tailfeathers (MD) and Dr. Patrick McLane (PhD).
URL:https://canadianrdn.ca/event/national-day-for-truth-and-reconciliation-anti-indigenous-racism-in-the-emergency-department/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788891496595.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260930T050000
DTEND;TZID=America/Edmonton:20260930T060000
DTSTAMP:20260922T164137Z
CREATED:20260922T164137Z
LAST-MODIFIED:20260922T164137Z
UID:11628-1790744400-1790748000@canadianrdn.ca
SUMMARY:ERDERA: Regulatory Insights of Advanced Therapies Research & Development
DESCRIPTION:This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements\, supporting responsible research and smooth clinical translation. Particular attention will be given to genome editing and paediatric research\, two areas that raise specific regulatory considerations within the ATMP field.
URL:https://canadianrdn.ca/event/erdera-regulatory-insights-of-advanced-therapies-research-development/
CATEGORIES:Clinical Trials,Healthcare,Industry,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/ERDERA-trainings-template-7.png
END:VEVENT
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