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X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251030T080000
DTEND;TZID=America/Toronto:20251101T170000
DTSTAMP:20250501T162537Z
CREATED:20250501T162537Z
LAST-MODIFIED:20250501T162537Z
UID:8114-1761811200-1762016400@canadianrdn.ca
SUMMARY:YPAHD Day + National Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/ypahd-day-national-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251103T080000
DTEND;TZID=America/New_York:20251104T170000
DTSTAMP:20250403T023652Z
CREATED:20250403T023652Z
LAST-MODIFIED:20250403T023652Z
UID:7906-1762156800-1762275600@canadianrdn.ca
SUMMARY:Canadian Caregiving Summit 2025
DESCRIPTION:A brighter future of care is possible. Following the release of A National Caregiving Strategy for Canada\, the Canadian Caregiving Summit\, hosted by the Azrieli Foundation’s Canadian Centre for Caregiving Excellence\, will mobilize caregivers\, care providers\, systems leaders\, policy makers and researchers across the aging\, disability and healthcare communities to work together to make caregiving a national priority.
URL:https://canadianrdn.ca/event/canadian-caregiving-summit-2025/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251104T053000
DTEND;TZID=America/Edmonton:20251104T073000
DTSTAMP:20251027T200736Z
CREATED:20251027T200736Z
LAST-MODIFIED:20251027T200736Z
UID:9094-1762234200-1762241400@canadianrdn.ca
SUMMARY:Screen4Rare: Making AI Diagnosis Understandable
DESCRIPTION:A co-creation workshop  inviting non-AI experts to help design communication tools such as videos and brochures that make AI-supported diagnosis more understandable\, trustworthy and human.
URL:https://canadianrdn.ca/event/screen4rare-making-ai-diagnosis-understandable/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251110T120000
DTEND;TZID=America/Toronto:20251110T140000
DTSTAMP:20251024T183314Z
CREATED:20251024T183314Z
LAST-MODIFIED:20251024T183314Z
UID:9084-1762776000-1762783200@canadianrdn.ca
SUMMARY:ISCT North America Regional Virtual Town Hall
DESCRIPTION:Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. Hemalatha Rangarajan\, leader of the gene therapy program for non-malignant disorders\, who has also launched multiple clinical trials in transplant for SCD at Nationwide Children’s Hospital (NCH).
URL:https://canadianrdn.ca/event/isct-north-america-regional-virtual-town-hall/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251117T080000
DTEND;TZID=America/Toronto:20251118T170000
DTSTAMP:20250916T185738Z
CREATED:20250916T185738Z
LAST-MODIFIED:20250916T185738Z
UID:8909-1763366400-1763485200@canadianrdn.ca
SUMMARY:Pan-Canadian OMOP Common Data Model Engagement Event
DESCRIPTION:This pan-Canadian event brings together teams using the OMOP common data model to advance research collaboration across Canada and beyond.
URL:https://canadianrdn.ca/event/pan-canadian-omop-common-data-model-engagement-event/
CATEGORIES:Conferences,Healthcare,In Person,Industry,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Zurich:20251118T080000
DTEND;TZID=Europe/Zurich:20251118T170000
DTSTAMP:20250812T193902Z
CREATED:20250812T193902Z
LAST-MODIFIED:20250812T193902Z
UID:8708-1763452800-1763485200@canadianrdn.ca
SUMMARY:ITINERARE Symposium 2025
DESCRIPTION:The programme features experts from a variety of fields\, ranging from basic and translational research to clinical application and the ethical\, social and legal aspects of rare disease research.
URL:https://canadianrdn.ca/event/itinerare-symposium-2025/
CATEGORIES:Clinical Trials,Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/Pic-webpage.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251126T180000
DTEND;TZID=America/Toronto:20251128T190000
DTSTAMP:20251113T225719Z
CREATED:20251113T225719Z
LAST-MODIFIED:20251113T225719Z
UID:9156-1764180000-1764356400@canadianrdn.ca
SUMMARY:Hope on the Horizon: Trials\, Treatments and Therapies for DMD\, DM1 & MG
DESCRIPTION:Muscular Dystrophy Canada in partnership with the Neuromuscular Disease Network for Canada (NMD4C)’s Clinical Trial Network is excited to host three Hope on the Horizon events! \nThese webinars are geared towards family members and people living with NMDs.\nJoin us from November 26th – 29th to learn more about the treatment and clinical trial landscape for Duchenne Muscular Dystrophy\, Myotonic Dystrophy Type 1 and Myasthenia Gravis from key experts in the field!
URL:https://canadianrdn.ca/event/hope-on-the-horizon-trials-treatments-and-therapies-for-dmd-dm1-mg/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
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