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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART:20250309T080000
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DTSTART:20251102T070000
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BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250903T080000
DTEND;TZID=America/Denver:20250904T170000
DTSTAMP:20260403T103042
CREATED:20250618T151109Z
LAST-MODIFIED:20250618T151109Z
UID:8463-1756886400-1757005200@canadianrdn.ca
SUMMARY:2025 RARE Drug Development Symposium
DESCRIPTION:Rare disease patient advocates are taking the lead in research like never before\, driven by the urgent need for new treatments. The RARE Drug Development Symposium hosted by Global Genes in partnership with Boston Children’s Hospital is designed to equip advocates with the knowledge\, skills\, and connections to navigate early-stage research with confidence. During this 1.5 day event\, attendees will have a mix of main stage sessions\, targeted breakouts\, group presentations\, and hands-on workshopping. Whether you’re initiating research efforts or looking to refine your strategy\, this symposium offers practical insights to accelerate progress in research strategies and activities.
URL:https://canadianrdn.ca/event/2025-rare-drug-development-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/06/Screenshot-2024-04-08-at-17.15.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250909T080000
DTEND;TZID=America/Edmonton:20250910T170000
DTSTAMP:20260403T103042
CREATED:20250723T141417Z
LAST-MODIFIED:20250723T141417Z
UID:8591-1757404800-1757523600@canadianrdn.ca
SUMMARY:Rare Trials Summit
DESCRIPTION:Bringing together key stakeholders in the clinical research community to accelerate the development of new rare disease therapies from average 10-12 years to under 3 years.
URL:https://canadianrdn.ca/event/rare-trials-summit/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/registration-card-image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250909T080000
DTEND;TZID=America/Vancouver:20250911T170000
DTSTAMP:20260403T103042
CREATED:20250501T162813Z
LAST-MODIFIED:20250501T162813Z
UID:8117-1757404800-1757610000@canadianrdn.ca
SUMMARY:2025 C-Path Global Impact Conference
DESCRIPTION:As C-Path celebrates its 20th anniversary\, CGIC 2025 stands out as a milestone event—bringing together a global community dedicated to advancing medical innovation and improving patient outcomes. \nWhether you’re joining us from industry\, regulatory agencies\, academia\, patient organizations\, or as someone with lived experience\, you’ll find valuable insights\, thought-provoking discussions\, and meaningful opportunities to collaborate.
URL:https://canadianrdn.ca/event/2025-c-path-global-impact-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745860975996.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250909T080000
DTEND;TZID=America/Edmonton:20250912T170000
DTSTAMP:20260403T103042
CREATED:20250902T192157Z
LAST-MODIFIED:20250902T192157Z
UID:8839-1757404800-1757696400@canadianrdn.ca
SUMMARY:PxP2025
DESCRIPTION:The PxP (For Patients\, By Patients) conference will be September 9-11 (for those in Europe\, Africa or North and South America)\, or 10-12 (Asia and Oceania). This free\, virtual event aims to bring you a wealth of knowledge\, skills and resources on Patient Engagement in health research.
URL:https://canadianrdn.ca/event/pxp2025/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/09/17-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250910T080000
DTEND;TZID=America/Toronto:20250912T170000
DTSTAMP:20260403T103042
CREATED:20250902T192340Z
LAST-MODIFIED:20250902T192340Z
UID:8842-1757491200-1757696400@canadianrdn.ca
SUMMARY:PCSI 2025
DESCRIPTION:From September 10 to 12\, 2025\, the 37th PSCI conference will be held at the Quebec City Convention Centre under the theme: “Patient Grouping as a Driver of Value in Health: The Patient at the Heart of Our Decisions.” The topics will be: \n\nInnovations in case-mix\, data and technology.\nAdvancements in coding\, classification systems\, and data quality.\nCase-mix and costing beyond funding.\nFrom case-mix to policy: the patient at the center.\nConnecting funding with patient outcomes and quality of care\nUsing costing and funding to create value and demonstrate productivity.\nArtificial intelligence & case-mix: in service of patient-centered care.\n\nOn September 9th\, there will be a day of pre-conference workshops.
URL:https://canadianrdn.ca/event/pcsi-2025/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/events-pg-logo-pcsi2025-en.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250912T170000
DTSTAMP:20260403T103042
CREATED:20250625T025647Z
LAST-MODIFIED:20250625T025659Z
UID:8478-1757577600-1757696400@canadianrdn.ca
SUMMARY:PHA-Medical Think Tank
DESCRIPTION:Join Canada’s premier CPD event on pulmonary hypertension\, co-developed by PHA Canada and the Canadian Thoracic Society\, including: \n· Keynote presentations by Dr. Steven Kawut (University of Pennsylvania) and Athénaïs Boucly (University of Paris-Saclay) \n· Presentations on pulmonary hypertension topics from diagnosis through treatment \n· Updates on pulmonary hypertension research. \nSeptember 11 & 12 in Toronto or via Zoom. For more information and to register: https://www.phacanada.ca/thinktank
URL:https://canadianrdn.ca/event/pha-medical-think-tank/
CATEGORIES:Conferences,Healthcare,Hybrid,National,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/MTT-socialmedia-square-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250913T170000
DTSTAMP:20260403T103042
CREATED:20250625T024827Z
LAST-MODIFIED:20250625T024827Z
UID:8475-1757577600-1757782800@canadianrdn.ca
SUMMARY:2025 Pulmonary Hypertension Community Conference
DESCRIPTION:​Join PHA Canada’s 2025 PH Community Conference to explore how they can drive meaningful change and inspire hope across the PH community. This year’s event will feature powerful keynote speakers\, interactive workshops\, and engaging panel discussions—all designed to empower you with new strategies\, the latest research\, and stories of resilience and innovation.
URL:https://canadianrdn.ca/event/2025-pulmonary-hypertension-community-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/06/PHA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250913T170000
DTSTAMP:20260403T103042
CREATED:20250812T194724Z
LAST-MODIFIED:20250812T194724Z
UID:8717-1757577600-1757782800@canadianrdn.ca
SUMMARY:Ottawa NMD 2025 Conference
DESCRIPTION:7th Ottawa International Conference on Neuromuscular Disease and Biology will take place at the Fairmont Château Laurier in Ottawa\, Canada on September 11-13\, 2025. \nThe Ottawa NMD 2025 conference will offer an outstanding program emphasizing recent breakthroughs in basic and translational research and clinical discoveries in neuromuscular disease.
URL:https://canadianrdn.ca/event/ottawa-nmd-2025-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/OttawaNMD2025-Poster-3-pdf-768x1024-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250912T110000
DTEND;TZID=America/Toronto:20250912T233000
DTSTAMP:20260403T103042
CREATED:20250421T221821Z
LAST-MODIFIED:20250618T143732Z
UID:8017-1757674800-1757719800@canadianrdn.ca
SUMMARY:OTCD-Gala for a Cure
DESCRIPTION:
URL:https://canadianrdn.ca/event/otcd-gala-for-a-cure/
CATEGORIES:Caregiver,Healthcare,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/IMG_3577-1536x1097-1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250916T080000
DTEND;TZID=Europe/London:20250919T170000
DTSTAMP:20260403T103042
CREATED:20250520T192354Z
LAST-MODIFIED:20250520T192354Z
UID:8304-1758009600-1758301200@canadianrdn.ca
SUMMARY:Manchester Dysmorphology and Developmental Disorders Conference
DESCRIPTION:The Manchester Dysmorphology Conference (MDC) is a biennial event that has brought together global experts in genomic syndromology since 1984. Established by Professor Dian Donnai\, MDC promotes the exchange of knowledge and ideas to advance the understanding of developmental disorders and congenital malformations. Each conference offers leading-edge content and a supportive setting\, encouraging discussions\, building collaborations\, and inspiring innovative strategies to improve the lives of individuals living with rare conditions.
URL:https://canadianrdn.ca/event/manchester-dysmorphology-and-developmental-disorders-conference/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/05/images.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250917T080000
DTEND;TZID=America/Edmonton:20250919T170000
DTSTAMP:20260403T103042
CREATED:20250722T211003Z
LAST-MODIFIED:20250722T211003Z
UID:8587-1758096000-1758301200@canadianrdn.ca
SUMMARY:Canadian Cystic Fibrosis Conference
DESCRIPTION:Join CFC September 17 –19\, 2025 for Cystic Fibrosis Canada’s first Canadian Cystic Fibrosis Conference\, hosted in Calgary\, Alberta.  \nThe conference will spotlight the development of Canadian consensus and national standards for CF care\, explore early implementation strategies\, and highlight hot topics in healthcare and research and knowledge gaps that future research and clinical trials can address.
URL:https://canadianrdn.ca/event/canadian-cystic-fibrosis-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/images.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250921T080000
DTEND;TZID=America/Chicago:20250924T170000
DTSTAMP:20260403T103042
CREATED:20250827T161756Z
LAST-MODIFIED:20250827T161756Z
UID:8771-1758441600-1758733200@canadianrdn.ca
SUMMARY:Undiagnosed Hackathon 2025
DESCRIPTION:350 million people live with an undiagnosed disease worldwide. Genome sequencing can provide answers for 40% of the People Living With Undiagnosed Disease (PLWUD) but around 60% still don’t receive a diagnosis. The purpose of the Undiagnosed Hackathon is trying to find new ways and collaborations to solve the undiagnosed diseases\, that can’t be solved today. In this unique event multidisciplinary teams of clinicians\, bioinformaticians/molecular biologists\, scientists\, developers\, AI specialists and brilliant minds will work together to tackle the most difficult diseases.
URL:https://canadianrdn.ca/event/undiagnosed-hackathon-2025/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/Undiagnosed-Hackathon-logo-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250925T080000
DTEND;TZID=America/Edmonton:20250927T170000
DTSTAMP:20260403T103042
CREATED:20250812T195243Z
LAST-MODIFIED:20250812T195243Z
UID:8724-1758787200-1758992400@canadianrdn.ca
SUMMARY:6th Western Canadian Neuromuscular Conference
DESCRIPTION:The 6th Western Canadian Neuromuscular\nConference is confirmed for 2026! Don’t miss\nthe opportunity to network with leading experts\nand stay at the forefront of medical\nadvancements in the field of neuromuscular\ndiseases.
URL:https://canadianrdn.ca/event/6th-western-canadian-neuromuscular-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1709814041logo-jpg1709814041.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250926T080000
DTEND;TZID=America/Edmonton:20250928T170000
DTSTAMP:20260403T103042
CREATED:20250520T191324Z
LAST-MODIFIED:20250520T191324Z
UID:8291-1758873600-1759078800@canadianrdn.ca
SUMMARY:Biennial National Conference
DESCRIPTION:Registration information coming soon.
URL:https://canadianrdn.ca/event/biennial-national-conference/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1747242004308.jpg
END:VEVENT
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