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X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250402T130000
DTEND;TZID=America/Halifax:20250402T140000
DTSTAMP:20260403T185910
CREATED:20250326T034907Z
LAST-MODIFIED:20250326T034907Z
UID:7835-1743598800-1743602400@canadianrdn.ca
SUMMARY:Information Session: 2025-2026 Funding Opportunity for Rare Disease Registry Improvement
DESCRIPTION:
URL:https://canadianrdn.ca/event/information-session-2025-2026-funding-opportunity-for-rare-disease-registry-improvement/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/8a892476-2fc8-476b-a4e2-b0950c425eb9.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T080000
DTEND;TZID=America/New_York:20250408T170000
DTSTAMP:20260403T185910
CREATED:20241118T223850Z
LAST-MODIFIED:20241118T223850Z
UID:7001-1744012800-1744131600@canadianrdn.ca
SUMMARY:Conscience Symposium on Open Drug Discovery
DESCRIPTION:
URL:https://canadianrdn.ca/event/conscience-symposium-on-open-drug-discovery/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T083000
DTEND;TZID=America/New_York:20250407T093000
DTSTAMP:20260403T185910
CREATED:20250326T033414Z
LAST-MODIFIED:20250326T033414Z
UID:7832-1744014600-1744018200@canadianrdn.ca
SUMMARY:Child Health and Wellness Seminar: Discovery Series: Understanding Mental Health and Neurodiversity Through Systems Neuroscience
DESCRIPTION:Understanding and supporting mental health and neurodiversity requires insight into the brain systems that regulate attention\, motivation\, mood and thought. Dr. Gruber’slab studies the brain’s role in these functions and how they are shaped by risk factors such as stress\, inflammation and abused drugs. \n 
URL:https://canadianrdn.ca/event/child-health-and-wellness-seminar-discovery-series-understanding-mental-health-and-neurodiversity-through-systems-neuroscience/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/13714_COLOURBOX31156818.rev_.1742924419.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250407T100000
DTEND;TZID=America/Halifax:20250407T110000
DTSTAMP:20260403T185910
CREATED:20250403T022042Z
LAST-MODIFIED:20250403T022042Z
UID:7888-1744020000-1744023600@canadianrdn.ca
SUMMARY:Caregiving Essentials Webinar: Mapping a Brighter Future for Canadian Caregivers
DESCRIPTION:
URL:https://canadianrdn.ca/event/caregiving-essentials-webinar-mapping-a-brighter-future-for-canadian-caregivers/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/04/4e7ca4f1-e359-4c41-8508-73bf39a078d4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250409T110000
DTEND;TZID=America/New_York:20250409T120000
DTSTAMP:20260403T185910
CREATED:20250403T022159Z
LAST-MODIFIED:20250403T022159Z
UID:7891-1744196400-1744200000@canadianrdn.ca
SUMMARY:Five Good Ideas to support and benefit from working caregivers in your workplace
DESCRIPTION:
URL:https://canadianrdn.ca/event/five-good-ideas-to-support-and-benefit-from-working-caregivers-in-your-workplace/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250410T080000
DTEND;TZID=America/New_York:20250411T170000
DTSTAMP:20260403T185910
CREATED:20250326T035750Z
LAST-MODIFIED:20250326T035750Z
UID:7838-1744272000-1744390800@canadianrdn.ca
SUMMARY:RareKids-CAN Annual Conference
DESCRIPTION:The mission of the RareKids-CAN: Pediatric Rare Disease Clinical Trials and Treatment Network Strategic Planning Conference is to collaboratively shape the future of pediatric rare disease research and clinical trial capacity in Canada. By bringing together over 100 patient and family partners\, researchers\, sub-platform leaders\, and key stakeholders\, they aim to co-develop a shared vision that accelerates pediatric drug development and progress in clinical trials\, improves treatment access\, and strengthens national and international partnerships.
URL:https://canadianrdn.ca/event/rarekids-can-annual-conference/
CATEGORIES:Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/RareKidsCAN.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250410T140000
DTEND;TZID=UTC:20250410T150000
DTSTAMP:20260403T185910
CREATED:20250403T023036Z
LAST-MODIFIED:20250403T023036Z
UID:7900-1744293600-1744297200@canadianrdn.ca
SUMMARY:RDI: Leveraging the EML for Access to Rare Disease Treatments
DESCRIPTION:The WHO Essential Medicines List (EML) is a critical instrument for advancing Universal Health Coverage (UHC) by ensuring equitable access to essential medicines. However\, its role in rare disease treatment remains under-recognized. This webinar will explore how the EML can serve as a powerful tool to improve access to treatments for persons living with a rare disease (PLWRD) at both global and national levels. \nWebinar Objectives: \n\nGain a deeper understanding of the WHO Essential Medicines List and its significance for rare diseases\nLearn about the findings from RDI’s Essential Medicine Working Group on challenges\, best practices\, and opportunities for regarding the application process of EML\nHear about call-to-action to enhance global and national access to essential medicines
URL:https://canadianrdn.ca/event/rdi-leveraging-the-eml-for-access-to-rare-disease-treatments/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250417T100000
DTEND;TZID=America/Halifax:20250417T110000
DTSTAMP:20260403T185910
CREATED:20250403T022642Z
LAST-MODIFIED:20250403T022642Z
UID:7897-1744884000-1744887600@canadianrdn.ca
SUMMARY:ACE Inhibitors as a Cardioprotective Treatment in Dystrophinopathies.
DESCRIPTION:Join C-PATH on April 17\, noon ET\, for an insightful presentation by Dr. Karim Wahbi\, Professor of Cardiology at the University of Paris and head of the Reference Center for Neuromuscular Cardiomyopathies. Dr. Wahbi specializes in the clinical management of cardiomyopathies\, with a focus on neuromuscular diseases like Duchenne muscular dystrophy.
URL:https://canadianrdn.ca/event/ace-inhibitors-as-a-cardioprotective-treatment-in-dystrophinopathies/
CATEGORIES:Healthcare,National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250427T080000
DTEND;TZID=America/Halifax:20250429T170000
DTSTAMP:20260403T185910
CREATED:20250325T075121Z
LAST-MODIFIED:20250325T075121Z
UID:7817-1745740800-1745946000@canadianrdn.ca
SUMMARY:Mitochondrial Transplantation and Next Generation Therapeutics Conference
DESCRIPTION:Join Northwell Health on April 27-29\, 2025\, at Hofstra University on Long Island (NY) for a unique forum for the presentation and discussion of new research developments in mitochondrial transfer and transplantation.
URL:https://canadianrdn.ca/event/mitochondrial-transplantation-and-next-generation-therapeutics-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/Drupal-web_Odranoel-Tirol-Sep-10-026-1024x768-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250428T080000
DTEND;TZID=UTC:20250430T170000
DTSTAMP:20260403T185910
CREATED:20240819T212139Z
LAST-MODIFIED:20240828T213717Z
UID:5187-1745827200-1746032400@canadianrdn.ca
SUMMARY:Summit 2025: Ending The Diagnostic Odyssey
DESCRIPTION:A first-of-its kind collaborative event for Undiagnosed\, Ultra-Rare & Rare disease industry\, clinical and community leaders. \nThe diagnostic odyssey for rare diseases is a significant challenge\, often leaving patients and families lost in a maze of tests\, misdiagnoses\, missed opportunities to participate in clinical trials\, and delayed treatment. Summit 2025 brings together a diverse group of stakeholders – patient advocates\, industry leaders\, policymakers\, clinicians\, researchers and payers – to chart a collaborative path towards a future where timely and accurate diagnoses are a reality for all with rare diseases.
URL:https://canadianrdn.ca/event/summit-2025-ending-the-diagnostic-odyssey/
LOCATION:washington\, WA\, United States
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250428T160000
DTEND;TZID=America/Chicago:20250428T201500
DTSTAMP:20260403T185910
CREATED:20250321T030351Z
LAST-MODIFIED:20250404T150819Z
UID:7796-1745856000-1745871300@canadianrdn.ca
SUMMARY:Canadian Rare Disease Innovation Showcase 2025
DESCRIPTION:Join us on Monday\, April 28\, 2025\, at The Westin Hotel in downtown Calgary (or virtually) for an inspiring afternoon dedicated to innovation\, collaboration\, and progress in rare disease research and care. \nThis event will spotlight innovative advancements and inspiring stories from Canada’s rare disease community. Through engaging lightning talks and networking opportunities\, you’ll connect with experts\, exchange ideas\, and be part of the movement driving meaningful change. \nEvery discovery has the power to change lives. Be part of the conversation and help shape the future of rare disease care in Canada.
URL:https://canadianrdn.ca/event/canadian-rare-disease-innovation-showcase-2025/
CATEGORIES:Caregiver,Events,Healthcare,Hybrid,Industry,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/Rare-Disease-Showcase-Poster-Eng.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250429T080000
DTEND;TZID=America/New_York:20250429T160000
DTSTAMP:20260403T185910
CREATED:20250325T074724Z
LAST-MODIFIED:20250325T074724Z
UID:7814-1745913600-1745942400@canadianrdn.ca
SUMMARY:Health Data for All of Us: A Public Dialogue on AI in Health
DESCRIPTION:Join HRDN conversation about key ethical\, equity and privacy challenges related to AI and health!
URL:https://canadianrdn.ca/event/health-data-for-all-of-us-a-public-dialogue-on-ai-in-health-2/
CATEGORIES:Events,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1741049866628.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250429T080000
DTEND;TZID=America/Denver:20250501T170000
DTSTAMP:20260403T185910
CREATED:20250123T225518Z
LAST-MODIFIED:20250123T225535Z
UID:7417-1745913600-1746118800@canadianrdn.ca
SUMMARY:Save the Date: Rare Disease Day 2025 Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-day-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/01/Gh11VK5WcAAg2ym.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250430T080000
DTEND;TZID=America/Vancouver:20250430T170000
DTSTAMP:20260403T185910
CREATED:20250501T161223Z
LAST-MODIFIED:20250501T161223Z
UID:8091-1746000000-1746032400@canadianrdn.ca
SUMMARY:Genome BC’s Genomics Forum 2025
DESCRIPTION:
URL:https://canadianrdn.ca/event/genome-bcs-genomics-forum-2025/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745442042991.jpg
END:VEVENT
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