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PRODID:-//Canadian Rare Disease Network - ECPv6.15.18//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250316T080000
DTEND;TZID=America/Chicago:20250319T170000
DTSTAMP:20260403T203736
CREATED:20241118T224806Z
LAST-MODIFIED:20241118T224806Z
UID:7007-1742112000-1742403600@canadianrdn.ca
SUMMARY:MDA Clinical and Scientific Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/mda-clinical-and-scientific-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250317T180000
DTEND;TZID=Europe/Paris:20250317T193000
DTSTAMP:20260403T203736
CREATED:20250304T034103Z
LAST-MODIFIED:20250304T034103Z
UID:7620-1742234400-1742239800@canadianrdn.ca
SUMMARY:NMOSD in sub-Saharan Africa
DESCRIPTION:The experts will provide insights and answer questions about the prevalence and incidence of NMOSD\, diagnostics\, available treatments\, immunizations\, clinical trials\, and more. Patients\, caregivers\, clinicians\, researchers\, and advocates from around the world are invited to attend. \nLive participants will have the opportunity to ask questions directly to the experts. The webinar will be recorded and made available for replay on TSF’s YouTube channel.
URL:https://canadianrdn.ca/event/nmosd-in-sub-saharan-africa/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/NMOSD-in-Sub-Saharan-Africa-1280-x-720-px.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250320T160000
DTEND;TZID=Europe/Paris:20250320T170000
DTSTAMP:20260403T203736
CREATED:20250121T234252Z
LAST-MODIFIED:20250121T234252Z
UID:7390-1742486400-1742490000@canadianrdn.ca
SUMMARY:Peripheral Nerve Imaging with Focus on Inflammatory Neuropathies
DESCRIPTION:
URL:https://canadianrdn.ca/event/peripheral-nerve-imaging-with-focus-on-inflammatory-neuropathies/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250323T080000
DTEND;TZID=Europe/Paris:20250326T170000
DTSTAMP:20260403T203736
CREATED:20241203T023809Z
LAST-MODIFIED:20241203T023809Z
UID:7113-1742716800-1743008400@canadianrdn.ca
SUMMARY:13th ISNS European Regional Meeting Luxembourg
DESCRIPTION:Newborn Screening LIVE from the Heart of Europe
URL:https://canadianrdn.ca/event/13th-isns-european-regional-meeting-luxembourg/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/12/GSQ18btWkAANoQE.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250327T100000
DTEND;TZID=UTC:20250327T110000
DTSTAMP:20260403T203736
CREATED:20250318T022619Z
LAST-MODIFIED:20250318T022619Z
UID:7711-1743069600-1743073200@canadianrdn.ca
SUMMARY:Dragon Claw Friends Webinar - Breaking Down Barriers – Are Patients Aware of Their Autoimmune Disease Treatment Options?
DESCRIPTION:Despite significant advancements in the treatment of autoimmune diseases\, many patients remain unaware of their options. Social media platforms are filled with stories of people struggling with uncontrolled symptoms—so why aren’t these breakthroughs reaching those who need them most? To explore this issue\, Dragon Claw Charity Australia\, in collaboration with CaPPRe\, has conducted research into the awareness gap among patients with rheumatology\, dermatology\, and gastroenterology-related autoimmune diseases.
URL:https://canadianrdn.ca/event/dragon-claw-friends-webinar-breaking-down-barriers-are-patients-aware-of-their-autoimmune-disease-treatment-options/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1742149835460.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250327T160000
DTEND;TZID=Europe/Paris:20250327T170000
DTSTAMP:20260403T203736
CREATED:20250121T234423Z
LAST-MODIFIED:20250121T234423Z
UID:7392-1743091200-1743094800@canadianrdn.ca
SUMMARY:Navigating Life with Dysimmune and Inflammatory Neuropathies: Q&A Session on Quality of Life and Management
DESCRIPTION:
URL:https://canadianrdn.ca/event/navigating-life-with-dysimmune-and-inflammatory-neuropathies-qa-session-on-quality-of-life-and-management/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250331T083000
DTEND;TZID=America/New_York:20250331T093000
DTSTAMP:20260403T203736
CREATED:20250326T033117Z
LAST-MODIFIED:20250326T033117Z
UID:7829-1743409800-1743413400@canadianrdn.ca
SUMMARY:Understanding what matters to children and families: The socioeconomic impact of childhood arthritis
DESCRIPTION:This presentation will share findings from the Health Economics research lead by\nDr. Marshall as part of the international UCAN CAN-DU and CURE research program\non childhood arthritis.
URL:https://canadianrdn.ca/event/understanding-what-matters-to-children-and-families-the-socioeconomic-impact-of-childhood-arthritis/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/Socioeconomic.png
END:VEVENT
END:VCALENDAR