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X-WR-CALNAME:Canadian Rare Disease Network
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X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250204T190000
DTEND;TZID=America/New_York:20250204T200000
DTSTAMP:20260403T221022
CREATED:20250130T024529Z
LAST-MODIFIED:20250130T024529Z
UID:7441-1738695600-1738699200@canadianrdn.ca
SUMMARY:Neuromuscular Mystery Case Rounds
DESCRIPTION:Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to Neuromuscular Mystery Case Rounds. This case-based rounds webinar is for Canadian clinicians\, academics\, and trainees with an interest in neuromuscular disease. NMD4C and MDC are providing organizational and technical support. This is an independent clinical/academic webinar with no industry sponsorship or influence.
URL:https://canadianrdn.ca/event/neuromuscular-mystery-case-rounds/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250205T173000
DTEND;TZID=America/New_York:20250205T190000
DTSTAMP:20260403T221022
CREATED:20250111T000414Z
LAST-MODIFIED:20250111T000414Z
UID:7355-1738776600-1738782000@canadianrdn.ca
SUMMARY:PxP 2025 Webinar Series. The patient perspective: Barriers and facilitators to patient partnership in research
DESCRIPTION:The webinar series is all about patient engagement in health research\, also known as patient and public involvement (UK) or consumer involvement (Australia). It is worth mentioning that ‘patient engagement’ in health research is distinctly different from signing up to be a research participant. Taking part in a study as a participant (for example trying a new treatment or management program) can be a great way to help advance healthcare\, but the role would not generally include giving input into the research study itself.
URL:https://canadianrdn.ca/event/pxp-2025-webinar-series-the-patient-perspective-barriers-and-facilitators-to-patient-partnership-in-research/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250206T080000
DTEND;TZID=UTC:20250208T170000
DTSTAMP:20260403T221022
CREATED:20240819T212945Z
LAST-MODIFIED:20240819T212945Z
UID:5197-1738828800-1739034000@canadianrdn.ca
SUMMARY:The 8th International TREAT-NMD Conference
DESCRIPTION:The next TREAT-NMD international conference will take place in Dubai\, United Arab Emirates from the 6th to 8th of February 2025.  It will be a fantastic event welcoming delegates from all over the world including academics\, patients and carers\, patient advocacy organisations\, clinical specialists and industry. Delegates will have the opportunity to: \n\nNetwork with partners on key issues and challenges in neuromuscular disease\nEngage with panels of international experts who will inform\, stimulate and challenge debate\nAcquire the latest updates on standards of care\, outcome measures\, patient reviews\, and new developments\n\nIt is a fantastic opportunity for all stakeholders\, including patients\, academics\, clinicians\, registry curators and industry representatives\, to get together to network\, learn and exchange ideas about translational research. \nRegistration is not yet open however to be the first to find out updates on the programme\, themes\, speakers for the conference and to be notified when registration opens\, register your interest here.
URL:https://canadianrdn.ca/event/the-8th-international-treat-nmd-conference/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250206T160000
DTEND;TZID=Europe/Paris:20250206T170000
DTSTAMP:20260403T221022
CREATED:20250121T233518Z
LAST-MODIFIED:20250121T233518Z
UID:7383-1738857600-1738861200@canadianrdn.ca
SUMMARY:Diagnosis and Treatment of Nodopathies
DESCRIPTION:
URL:https://canadianrdn.ca/event/diagnosis-and-treatment-of-nodopathies/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250213T160000
DTEND;TZID=Europe/Paris:20250213T170000
DTSTAMP:20260403T221022
CREATED:20250121T233751Z
LAST-MODIFIED:20250121T233751Z
UID:7386-1739462400-1739466000@canadianrdn.ca
SUMMARY:Multifocal motor neuropathy (MMN): diagnosis\, treatment and update on biomarkers
DESCRIPTION:
URL:https://canadianrdn.ca/event/multifocal-motor-neuropathy-mmn-diagnosis-treatment-and-update-on-biomarkers/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20250214T080000
DTEND;TZID=Europe/Helsinki:20250215T170000
DTSTAMP:20260403T221022
CREATED:20240731T210032Z
LAST-MODIFIED:20240731T210032Z
UID:4897-1739520000-1739638800@canadianrdn.ca
SUMMARY:PKU CON 2025
DESCRIPTION:PKU CON aims to bring together all stakeholders from around the globe currently involved in the management of patients affected by this inborn error of metabolism with an unique and same\, single goal: optimize the care and assistance for patients affected by Phenylketonuria. \nMany topics will be discussed during this first edition\, starting from a renewed vision of the pathology\, with possible identification of new biomarkers and metabolic control indices\, to updates in the field of dietary and pharmacological interventions\, and addressing relevant assistance-related issues such as burden of illness and unmet needs.
URL:https://canadianrdn.ca/event/pku-con-2025/
LOCATION:milan\, italy\, Milan\, Italy
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/07/pkucon25-banner.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250220T160000
DTEND;TZID=UTC:20250220T170000
DTSTAMP:20260403T221022
CREATED:20250121T233934Z
LAST-MODIFIED:20250121T233934Z
UID:7388-1740067200-1740070800@canadianrdn.ca
SUMMARY:Electrodiagnostic Patterns in Immune-Mediated Neuropathies
DESCRIPTION:
URL:https://canadianrdn.ca/event/electrodiagnostic-patterns-in-immune-mediated-neuropathies/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250224T080000
DTEND;TZID=America/Chicago:20250226T170000
DTSTAMP:20260403T221022
CREATED:20250219T015946Z
LAST-MODIFIED:20250219T015946Z
UID:7504-1740384000-1740589200@canadianrdn.ca
SUMMARY:2025 Clinical Trials Training Summit
DESCRIPTION:
URL:https://canadianrdn.ca/event/2025-clinical-trials-training-summit/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Provincial,Research Focused
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