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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/New_York:20250114T180000
DTEND;TZID=America/New_York:20250114T190000
DTSTAMP:20260403T235613
CREATED:20241228T053546Z
LAST-MODIFIED:20241228T053546Z
UID:7291-1736877600-1736881200@canadianrdn.ca
SUMMARY:CPD-Accredited Webinar | Exploring the clinical trial landscape in Duchenne muscular dystrophy: Challenges\, opportunities and consideration of a possible cholesterol metabolism-related target
DESCRIPTION:NMD4C and MDC are pleased to invite you to a webinar on Exploring the clinical trial landscape in Duchenne muscular dystrophy: Challenges\, opportunities and consideration of a possible cholesterol metabolism-related target. NMD4C and MDC are providing organizational and technical support. This is a an independent clinical/academic webinar with no industry sponsorship or influence.
URL:https://canadianrdn.ca/event/cpd-accredited-webinar-exploring-the-clinical-trial-landscape-in-duchenne-muscular-dystrophy-challenges-opportunities-and-consideration-of-a-possible-cholesterol-metabolism-related-target/
CATEGORIES:Clinical Trials,Healthcare,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/12/1735063069640.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250115T130000
DTEND;TZID=America/New_York:20250115T160000
DTSTAMP:20260403T235613
CREATED:20250107T232923Z
LAST-MODIFIED:20250107T232923Z
UID:7335-1736946000-1736956800@canadianrdn.ca
SUMMARY:CIHI-Foundations of Patient Partnering Virtual Sessions
DESCRIPTION:Calling all patient and family partners! Are you interested in attending a training session to learn about foundational patient engagement concepts\, participate in skill-building activities\, and network with other patient and family partners? Consider signing up for a free 3-hour virtual training session developed in collaboration by CIHI and the Patient Advisors Network (PAN).
URL:https://canadianrdn.ca/event/cihi-foundations-of-patient-partnering-virtual-sessions/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250116T120000
DTEND;TZID=UTC:20250116T180000
DTSTAMP:20260403T235613
CREATED:20241017T212933Z
LAST-MODIFIED:20241017T212933Z
UID:6096-1737028800-1737050400@canadianrdn.ca
SUMMARY:TREAT-NMD Myotonic Dystrophy Type 1 (DM1) Expert Masterclass
DESCRIPTION:Registrations are now open for our virtual DM1 Expert Masterclass on 16th January 2025\, chaired by Nicholas Johnson and Benedikt Schoser. This event is designed for healthcare providers involved in diagnosing and managing DM1. Gain the latest insights on diagnostic pathways\, standards of care\, and emerging therapies\, while engaging with experts\, patients\, and peers to enhance DM1 care.
URL:https://canadianrdn.ca/event/treat-nmd-myotonic-dystrophy-type-1-dm1-expert-masterclass/
CATEGORIES:Healthcare,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/NMD.jpeg
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250121T080000
DTEND;TZID=Europe/Paris:20250124T170000
DTSTAMP:20260403T235613
CREATED:20250109T233514Z
LAST-MODIFIED:20250109T233514Z
UID:7352-1737446400-1737738000@canadianrdn.ca
SUMMARY:2025 International Scientific Conference on Albinism
DESCRIPTION:The Global Albinism Alliance (GAA) is very pleased to announce the 2025 International Scientific Conference on Albinism – ISCA 2025\, that will be held virtually on January 21-24\, 2025. \nISCA is THE meeting point worldwide for all scientists interested in sharing and improving knowledge of the biomedical aspects of albinism and\, more generally\, improving the health of those with albinism. It builds on the momentum created in 2012 with the launch of the EDA (European Days of Albinism) conference series that evolved into ISCA in 2022.
URL:https://canadianrdn.ca/event/2025-international-scientific-conference-on-albinism/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250123T160000
DTEND;TZID=Europe/Paris:20250123T170000
DTSTAMP:20260403T235613
CREATED:20250121T232634Z
LAST-MODIFIED:20250121T232634Z
UID:7377-1737648000-1737651600@canadianrdn.ca
SUMMARY:Challenges in the Diagnosis and Treatment of Inflammatory Neuropathies
DESCRIPTION:Delivered by Dr. Filip Eftimov (University Medical Center of Amsterdam\, the Netherlands) & Jean-Philippe Plançon (EPODIN – European Patient Organisation for Dysimmune and Inflammatory Neuropathies\, France)\, January 23rd 2025 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology. READ CAREFULLY please: By registering and attending the webinar you consent to the recording of the webinar and its later diffusion through the EURO-NMD websites using an YouTube Channel
URL:https://canadianrdn.ca/event/challenges-in-the-diagnosis-and-treatment-of-inflammatory-neuropathies/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250123T160000
DTEND;TZID=America/New_York:20250123T190000
DTSTAMP:20260403T235613
CREATED:20250107T233058Z
LAST-MODIFIED:20250107T233058Z
UID:7338-1737648000-1737658800@canadianrdn.ca
SUMMARY:CIHI-Foundations of Patient Partnering Virtual Sessions
DESCRIPTION:Calling all patient and family partners! Are you interested in attending a training session to learn about foundational patient engagement concepts\, participate in skill-building activities\, and network with other patient and family partners? Consider signing up for a free 3-hour virtual training session developed in collaboration by CIHI and the Patient Advisors Network (PAN).
URL:https://canadianrdn.ca/event/cihi-foundations-of-patient-partnering-virtual-sessions-2/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250129T080000
DTEND;TZID=UTC:20250130T170000
DTSTAMP:20260403T235613
CREATED:20241112T225050Z
LAST-MODIFIED:20241112T225050Z
UID:6979-1738137600-1738256400@canadianrdn.ca
SUMMARY:The Festival of Genomics & Biodata London
DESCRIPTION:The UK’s largest life sciences event is back! \nNow celebrating its 10th year\, the Festival has long been the annual get-together for the UK genomics community. And with more speakers and sessions than ever before\, the 2025 edition is bigger and better than ever! \nAs the genomics sector has expanded\, so has its impact. The Festival now covers a diverse array of topics beyond genomics\, including biodata\, diagnostics\, cancer research\, healthcare\, drug discovery and development\, infectious diseases\, AI\, proteomics\, multi-omics\, single-cell & spatial analysis and so much more.
URL:https://canadianrdn.ca/event/the-festival-of-genomics-biodata-london/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250129T110000
DTEND;TZID=America/New_York:20250129T120000
DTSTAMP:20260403T235613
CREATED:20250107T230522Z
LAST-MODIFIED:20250107T230522Z
UID:7323-1738148400-1738152000@canadianrdn.ca
SUMMARY:Building Bridges: Essential Supports for Children with Disabilities and Their Families in Schools\, Healthcare\, and Community
DESCRIPTION:What do children with disabilities and their families need to thrive? A team of researchers\, mothers\, and children and youth with disabilities set out to answer this question by exploring their experiences during the COVID-19 pandemic and beyond. Their mission? To uncover what supports and services — spanning healthcare\, education\, and community life — families need now and in the future.
URL:https://canadianrdn.ca/event/building-bridges-essential-supports-for-children-with-disabilities-and-their-families-in-schools-healthcare-and-community/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/01/1735920103362.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250130T160000
DTEND;TZID=Europe/Paris:20250130T170000
DTSTAMP:20260403T235613
CREATED:20250121T232927Z
LAST-MODIFIED:20250121T232927Z
UID:7380-1738252800-1738256400@canadianrdn.ca
SUMMARY:Update on Guillain-Barré Syndrome Guidelines
DESCRIPTION:
URL:https://canadianrdn.ca/event/update-on-guillain-barre-syndrome-guidelines/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
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