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BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
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DTSTART:20250309T060000
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DTSTART:20260308T060000
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260706T070000
DTEND;TZID=America/Edmonton:20260706T090000
DTSTAMP:20260704T234158Z
CREATED:20260702T193008Z
LAST-MODIFIED:20260704T234158Z
UID:11234-1783321200-1783328400@canadianrdn.ca
SUMMARY:ERDERA Clinical Trial Call 2026: Information Webinar
DESCRIPTION:ERDERA will host an informational webinar on 6 July 2026. During this session\, participants will have the opportunity to hear directly from ERDERA experts\, who will present the objectives\, scope\, and requirements of the call\, and address questions from prospective applicants.
URL:https://canadianrdn.ca/event/erdera-clinical-trial-call-information-webinar/
CATEGORIES:Clinical Trials,Healthcare,International,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/1782917672328.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260707T100000
DTEND;TZID=America/Toronto:20260707T110000
DTSTAMP:20260704T234131Z
CREATED:20260702T193159Z
LAST-MODIFIED:20260704T234131Z
UID:11237-1783418400-1783422000@canadianrdn.ca
SUMMARY:CIHR: Information Webinar for Canadian applicants to the ERDERA Clinical Trial Call 2026
DESCRIPTION:CIHR is hosting an information session to provide interested Canadian applicants with information on the requirements of the “ERDERA Clinical Trial Call 2026 (ECTC 2026)” funding opportunity and to answer questions on how to apply.
URL:https://canadianrdn.ca/event/webinar-for-canadian-applicants-to-the-erdera-clinical-trial-call-2026/
CATEGORIES:Clinical Trials,Healthcare,International,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/leaf-cihr-colour-en.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260709T080000
DTEND;TZID=America/Chicago:20260712T170000
DTSTAMP:20260702T193713Z
CREATED:20260702T160937Z
LAST-MODIFIED:20260702T193713Z
UID:11184-1783584000-1783875600@canadianrdn.ca
SUMMARY:Dysautonomia International: Piece by Piece: Building the Future of Dysautonomia Care
DESCRIPTION:Join Dysautonomia International in Houston\, Texas\, July 9–12\, 2026 for the 14th Annual Dysautonomia International Conference\, the world’s largest conference on autonomic disorders.
URL:https://canadianrdn.ca/event/dysautonomia-international-piece-by-piece-building-the-future-of-dysautonomia-care/
CATEGORIES:Caregiver,Clinical Trials,Conferences,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/07/0f3cee_e678110a0114498d980b68032a779feemv2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260709T120000
DTEND;TZID=America/Toronto:20260709T130000
DTSTAMP:20260702T193538Z
CREATED:20260624T182155Z
LAST-MODIFIED:20260702T193538Z
UID:11076-1783598400-1783602000@canadianrdn.ca
SUMMARY:IMPaCT Webinar: Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials
DESCRIPTION:Register today for IMPaCT’s next webinar with Ami Baba\, PhD\, where she’ll discuss Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials. \n✅ Identify who needs trial reporting guidelines\n✅ Introduce pediatric-specific reporting guideline extensions for trials and systematic reviews\n✅ Describe how SPIRIT-C\, CONSORT-C\, TIDieR-C\, and PRISMA-C can impact both upstream and downstream research processes
URL:https://canadianrdn.ca/event/impact-webinar-responsible-research-practices-how-reporting-guidelines-can-improve-child-health-trials/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781796311513.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260722T120000
DTEND;TZID=America/Toronto:20260722T130000
DTSTAMP:20260702T193457Z
CREATED:20260624T182608Z
LAST-MODIFIED:20260702T193457Z
UID:11082-1784721600-1784725200@canadianrdn.ca
SUMMARY:RareKids-CAN: Delivering Gene Therapy Trials: Understanding Clinical Workflows\, Operations\, and the Patient Journey
DESCRIPTION:Join RareKid-CAN on July 22nd for their second webinar in our ATMP series for research coordinators\, nurses\, pharmacists\, investigators\, and other clinical research professionals. \nTheir speaker Ana Stosic will provide a practical overview of the clinical workflows involved in delivering gene therapy clinical trials for pediatric rare diseases.
URL:https://canadianrdn.ca/event/rarekids-can-delivering-gene-therapy-trials-understanding-clinical-workflows-operations-and-the-patient-journey/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1782308336701.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260722T120000
DTEND;TZID=America/Toronto:20260722T130000
DTSTAMP:20260704T234500Z
CREATED:20260704T233339Z
LAST-MODIFIED:20260704T234500Z
UID:11337-1784721600-1784725200@canadianrdn.ca
SUMMARY:Health Canada Webinar: Real-World Evidence in the National Strategy for Drugs for Rare Diseases
DESCRIPTION:This session is designed to provide you with a clear understanding of the goals\, an update on progress\, and the next steps as planning advances. It will include a short presentation from Health Canada followed by a Question & Answer session.
URL:https://canadianrdn.ca/event/health-canada-real-world-evidence-in-the-national-strategy-for-drugs-for-rare-diseases-webinar/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/health_canada_logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260917T090000
DTEND;TZID=America/Edmonton:20260917T100000
DTSTAMP:20260910T155343Z
CREATED:20260910T155343Z
LAST-MODIFIED:20260910T155343Z
UID:11618-1789635600-1789639200@canadianrdn.ca
SUMMARY:IMPaCT Webinar: European Pediatric Clinical Trial Networks and Infrastructure: Partnership and Funding Opportunities
DESCRIPTION:The webinar will explore the landscape of pediatric trial networks in Europe\, the Horizon Europe PRISM Clinical Trial Call\, and practical lessons for developing and leading Horizon Europe consortium applications. \nMICYRN Scientific Director\, Thierry Lacaze-Masmonteil\, MD\, PhD\, will moderate a panel to discuss pathways for Canadian participation in European trial teams\, funding strategies and approaches to building strong international research partnerships.
URL:https://canadianrdn.ca/event/impact-webinar-european-pediatric-clinical-trial-networks-and-infrastructure-partnership-and-funding-opportunities/
CATEGORIES:Clinical Trials,Industry,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788539310832.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20260924T080000
DTEND;TZID=America/Vancouver:20260926T170000
DTSTAMP:20260624T183648Z
CREATED:20260624T183634Z
LAST-MODIFIED:20260624T183648Z
UID:11096-1790236800-1790442000@canadianrdn.ca
SUMMARY:Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions
DESCRIPTION:🔬 Thursday\, September 24\nCPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals\, researchers\, and invited network members. \n🩺 Friday\, September 25\nScientific Sessions — a full day dedicated to the latest PH research\, clinical advancements\, and collaboration among healthcare professionals and researchers. The day concludes with the Patient & Family Symposium Welcome Reception\, where the entire PH community comes together. \n💜 Saturday\, September 26\nPatient & Family Symposium — designed specifically for PH patients\, caregivers\, family members\, and supporters. A day of education\, inspiration\, connection\, and community.
URL:https://canadianrdn.ca/event/pulmonary-hypertension-association-canadas-ph-community-conference-scientific-sessions/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1780531229165.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260925T050000
DTEND;TZID=America/Edmonton:20260925T060000
DTSTAMP:20260922T164008Z
CREATED:20260922T164008Z
LAST-MODIFIED:20260922T164008Z
UID:11625-1790312400-1790316000@canadianrdn.ca
SUMMARY:ERDERA:Diagnostic Research Workstream – Session 2: Data Sharing\, Data Management & Ethics
DESCRIPTION:This webinar gives an overview of the ERDERA Diagnostic Research Workstream’s data sharing framework\, covering the Data Sharing Framework Agreement\, ethical/governance requirements\, and the data submission process via GPAP/Phenostore and RD3. Intended for researchers\, clinicians\, data managers\, ERN and National Mirror Group members involved in or interested in ERDERA diagnostic research.
URL:https://canadianrdn.ca/event/erderadiagnostic-research-workstream-session-2-data-sharing-data-management-ethics/
CATEGORIES:Clinical Trials,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/ERDERA-trainings-template-6-1024x724-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260925T080000
DTEND;TZID=America/Edmonton:20260925T170000
DTSTAMP:20260831T190905Z
CREATED:20260831T190559Z
LAST-MODIFIED:20260831T190905Z
UID:11562-1790323200-1790355600@canadianrdn.ca
SUMMARY:2026 NMD4C Annual Meeting
DESCRIPTION:Join NMD4C for a full day of dynamic discussions\, research updates\, and networking opportunities—just ahead of the 6th Western Canadian Neuromuscular Conference (WCNMC 2026). The agenda will feature a brief network update\, trainee and early‑career recognitions\, flash talks\, a health economics research showcase\, and the following cross‑disciplinary and parallel clinical / pre‑clinical discussion sessions
URL:https://canadianrdn.ca/event/2026-nmd4c-annual-meeting/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/08/2026-NMD4C-AM-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260929T080000
DTEND;TZID=Europe/Paris:20261002T170000
DTSTAMP:20250812T194434Z
CREATED:20250812T194434Z
LAST-MODIFIED:20250812T194434Z
UID:8714-1790668800-1790960400@canadianrdn.ca
SUMMARY:17th International Symposium on Sjögren's Disease
DESCRIPTION:This prestigious event\, which brings together researchers\, physicians\, patients and experts from around the world to discuss the latest advancements in Sjögren’s disease.
URL:https://canadianrdn.ca/event/17th-international-symposium-on-sjogrens-disease/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260930T050000
DTEND;TZID=America/Edmonton:20260930T060000
DTSTAMP:20260922T164137Z
CREATED:20260922T164137Z
LAST-MODIFIED:20260922T164137Z
UID:11628-1790744400-1790748000@canadianrdn.ca
SUMMARY:ERDERA: Regulatory Insights of Advanced Therapies Research & Development
DESCRIPTION:This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements\, supporting responsible research and smooth clinical translation. Particular attention will be given to genome editing and paediatric research\, two areas that raise specific regulatory considerations within the ATMP field.
URL:https://canadianrdn.ca/event/erdera-regulatory-insights-of-advanced-therapies-research-development/
CATEGORIES:Clinical Trials,Healthcare,Industry,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/ERDERA-trainings-template-7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261006T110000
DTEND;TZID=America/Edmonton:20261006T120000
DTSTAMP:20261001T185808Z
CREATED:20261001T185808Z
LAST-MODIFIED:20261001T185808Z
UID:11726-1791284400-1791288000@canadianrdn.ca
SUMMARY:RareKids-CAN: Logistics of ATMP Workflows for Pharmacy Teams
DESCRIPTION:This webinar will provide a practical\, high-level overview of how pharmacies handle Advanced Therapeutics Medicinal Products (ATMPs). ATMPs\, such as gene therapy products\, significantly differ from the traditional therapies (i.e.\, small molecule drugs\, biologics\, etc.). Therefore\, pharmacies require tailored workflows from the initial storage\, documentation and handling\, \, as well as chain-of-custody consideration.
URL:https://canadianrdn.ca/event/rarekids-can-logistics-of-atmp-workflows-for-pharmacy-teams/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/9a37b757-49b5-4c82-bf34-f3a1e20eba1c.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261006T170000
DTEND;TZID=America/Toronto:20261006T180000
DTSTAMP:20260929T163857Z
CREATED:20260929T163857Z
LAST-MODIFIED:20260929T163857Z
UID:11689-1791306000-1791309600@canadianrdn.ca
SUMMARY:NMD4C and MDC: CPD-Accredited Webinar | DM1 Clinical and Translational Research Updates
DESCRIPTION:NMD4C and MDC Canada are pleased to invite you to a CPD-accredited webinar on DM1 Clinical and Translational Research Updates. This webinar is primarily targeted at Canadian clinicians\, academics and trainees with an interest in neuromuscular diseases. NMD4C and MDC are providing organizational and technical support. This webinar is supported by Novartis through a restricted educational sponsorship with no involvement or influence on program content.
URL:https://canadianrdn.ca/event/nmd4c-and-mdc-cpd-accredited-webinar-dm1-clinical-and-translational-research-updates/
CATEGORIES:Clinical Trials,Healthcare,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/10-2026-NMD-Mystery-Case-Rounds.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261014T110000
DTEND;TZID=America/Edmonton:20261014T120000
DTSTAMP:20261001T185943Z
CREATED:20261001T185943Z
LAST-MODIFIED:20261001T185943Z
UID:11729-1791975600-1791979200@canadianrdn.ca
SUMMARY:RareKids-CAN: Navigating Advanced Therapies in Paediatric Rare Disease: An Introduction for Patients and Caregivers
DESCRIPTION:This webinar is the first in the series organized under Key Initiative 1.3 of the RareKids-CAN strategic priority\, ‘Strengthening Pediatric Rare Disease Clinical Trial Capacity and Advanced Therapy Medicinal Product Readiness’. It provides a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for patients and caregivers. The session will explain what ATMPs are\, how they work\, how they differ from traditional medicines\, and the types of advanced therapies currently available or being studied. Participants will also learn how to assess what developments may be relevant to their condition\, find clinical trials and other credible information\, and start conversations with their healthcare team about emerging therapies
URL:https://canadianrdn.ca/event/rarekids-can-navigating-advanced-therapies-in-paediatric-rare-disease-an-introduction-for-patients-and-caregivers/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/9382e8ed-421c-4576-b08e-76cee8289461.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261019T080000
DTEND;TZID=America/Toronto:20261020T170000
DTSTAMP:20260929T163637Z
CREATED:20260929T163637Z
LAST-MODIFIED:20260929T163637Z
UID:11686-1792396800-1792515600@canadianrdn.ca
SUMMARY:Advancing Equity in Genetics and Genomics in Canada (AEG2C) and Beyond
DESCRIPTION:Join in Montréal (or online) on October 19–20\, 2026 for the second AEG2C Symposium. This event will bring together researchers\, trainees\, community partners\, and patients to advance equity in genetics and genomics research across Canada and beyond. \nThis symposium is organized and hosted by the McGill Canada Excellence Research Chair (CERC) in Genomic Medicine\, CIHR Institute of Genetics (CIHR-IG)\, Genome Canada\, and the Pan-Canadian Genome Library (PCGL).
URL:https://canadianrdn.ca/event/advancing-equity-in-genetics-and-genomics-in-canada-aeg2c-and-beyond/
CATEGORIES:Clinical Trials,Conferences,Healthcare,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789484288760.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20261025T080000
DTEND;TZID=America/Vancouver:20261027T170000
DTSTAMP:20260929T164955Z
CREATED:20260929T164955Z
LAST-MODIFIED:20260929T164955Z
UID:11695-1792915200-1793120400@canadianrdn.ca
SUMMARY:NORD Breakthrough Summit 2026
DESCRIPTION:Shape the future of rare disease treatments\, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.®
URL:https://canadianrdn.ca/event/nord-breakthrough-summit-2026/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/NEW-Summit-Logo-FNL-01.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20261026T080000
DTEND;TZID=Europe/Amsterdam:20261028T170000
DTSTAMP:20260929T164646Z
CREATED:20260929T164646Z
LAST-MODIFIED:20260929T164646Z
UID:11692-1793001600-1793206800@canadianrdn.ca
SUMMARY:World Orphan Drug Congress Europe 2026
DESCRIPTION:The World Orphan Drug Congress is Europe’s largest and most established orphan drug & rare disease meeting. \nFrom cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/world-orphan-drug-congress-europe-2026/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20261112T080000
DTEND;TZID=America/Halifax:20261113T170000
DTSTAMP:20261001T190948Z
CREATED:20261001T190948Z
LAST-MODIFIED:20261001T190948Z
UID:11741-1794470400-1794589200@canadianrdn.ca
SUMMARY:CORD Fall Conference 2026
DESCRIPTION:From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey\, Co-Lead Investigator & Policy for the 2026 RareCare Evaluation of England’s Rare Diseases Action Plans.
URL:https://canadianrdn.ca/event/cord-fall-conference-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/lg_SavetheDateFallConference2026-2.png
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20270125T080000
DTEND;TZID=America/Toronto:20270126T170000
DTSTAMP:20260817T162431Z
CREATED:20260817T162431Z
LAST-MODIFIED:20260817T162431Z
UID:11430-1800864000-1800982800@canadianrdn.ca
SUMMARY:Inaugural Canadian Gene & Cell Therapy Conference
DESCRIPTION:Convened by RareKids-CAN in partnership with the Conference Organizing Committee\, the conference will bring together researchers\, clinicians\, manufacturers\, industry leaders\, regulators\, trainees\, and patient and family partners from across the full translational pipeline.
URL:https://canadianrdn.ca/event/inaugural-canadian-gene-cell-therapy-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1784829020316.jpg
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END:VCALENDAR