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X-WR-CALNAME:Canadian Rare Disease Network
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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Edmonton:20261014T110000
DTEND;TZID=America/Edmonton:20261014T120000
DTSTAMP:20261001T185943Z
CREATED:20261001T185943Z
LAST-MODIFIED:20261001T185943Z
UID:11729-1791975600-1791979200@canadianrdn.ca
SUMMARY:RareKids-CAN: Navigating Advanced Therapies in Paediatric Rare Disease: An Introduction for Patients and Caregivers
DESCRIPTION:This webinar is the first in the series organized under Key Initiative 1.3 of the RareKids-CAN strategic priority\, ‘Strengthening Pediatric Rare Disease Clinical Trial Capacity and Advanced Therapy Medicinal Product Readiness’. It provides a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for patients and caregivers. The session will explain what ATMPs are\, how they work\, how they differ from traditional medicines\, and the types of advanced therapies currently available or being studied. Participants will also learn how to assess what developments may be relevant to their condition\, find clinical trials and other credible information\, and start conversations with their healthcare team about emerging therapies
URL:https://canadianrdn.ca/event/rarekids-can-navigating-advanced-therapies-in-paediatric-rare-disease-an-introduction-for-patients-and-caregivers/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/9382e8ed-421c-4576-b08e-76cee8289461.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261019T080000
DTEND;TZID=America/Toronto:20261020T170000
DTSTAMP:20260929T163637Z
CREATED:20260929T163637Z
LAST-MODIFIED:20260929T163637Z
UID:11686-1792396800-1792515600@canadianrdn.ca
SUMMARY:Advancing Equity in Genetics and Genomics in Canada (AEG2C) and Beyond
DESCRIPTION:Join in Montréal (or online) on October 19–20\, 2026 for the second AEG2C Symposium. This event will bring together researchers\, trainees\, community partners\, and patients to advance equity in genetics and genomics research across Canada and beyond. \nThis symposium is organized and hosted by the McGill Canada Excellence Research Chair (CERC) in Genomic Medicine\, CIHR Institute of Genetics (CIHR-IG)\, Genome Canada\, and the Pan-Canadian Genome Library (PCGL).
URL:https://canadianrdn.ca/event/advancing-equity-in-genetics-and-genomics-in-canada-aeg2c-and-beyond/
CATEGORIES:Clinical Trials,Conferences,Healthcare,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789484288760.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20261025T080000
DTEND;TZID=America/Vancouver:20261027T170000
DTSTAMP:20260929T164955Z
CREATED:20260929T164955Z
LAST-MODIFIED:20260929T164955Z
UID:11695-1792915200-1793120400@canadianrdn.ca
SUMMARY:NORD Breakthrough Summit 2026
DESCRIPTION:Shape the future of rare disease treatments\, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.®
URL:https://canadianrdn.ca/event/nord-breakthrough-summit-2026/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/NEW-Summit-Logo-FNL-01.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20261026T080000
DTEND;TZID=Europe/Amsterdam:20261028T170000
DTSTAMP:20260929T164646Z
CREATED:20260929T164646Z
LAST-MODIFIED:20260929T164646Z
UID:11692-1793001600-1793206800@canadianrdn.ca
SUMMARY:World Orphan Drug Congress Europe 2026
DESCRIPTION:The World Orphan Drug Congress is Europe’s largest and most established orphan drug & rare disease meeting. \nFrom cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/world-orphan-drug-congress-europe-2026/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20261109T080000
DTEND;TZID=America/Vancouver:20261111T170000
DTSTAMP:20261027T165228Z
CREATED:20261027T165228Z
LAST-MODIFIED:20261027T165228Z
UID:11879-1794211200-1794416400@canadianrdn.ca
SUMMARY:Stem Cell Network 2026 Till & McCulloch Meeting
DESCRIPTION:The Till & McCulloch Meetings (TMM)\, hosted by the Stem Cell Network\, is Canada’s premier stem cell and regenerative medicine research event\, bringing together stem cell and regenerative medicine scientists\, clinicians\, bioengineers\, and ethicists\, as well as representatives from industry\, government\, health\, and non-profit sectors from Canada and abroad.
URL:https://canadianrdn.ca/event/stem-cell-network-2026-till-mcculloch-meeting/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/TMM-logo-300x300-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20261112T080000
DTEND;TZID=America/Halifax:20261113T170000
DTSTAMP:20261001T190948Z
CREATED:20261001T190948Z
LAST-MODIFIED:20261001T190948Z
UID:11741-1794470400-1794589200@canadianrdn.ca
SUMMARY:CORD Fall Conference 2026
DESCRIPTION:From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey\, Co-Lead Investigator & Policy for the 2026 RareCare Evaluation of England’s Rare Diseases Action Plans.
URL:https://canadianrdn.ca/event/cord-fall-conference-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/lg_SavetheDateFallConference2026-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261113
DTEND;VALUE=DATE:20261114
DTSTAMP:20261027T162520Z
CREATED:20261027T162520Z
LAST-MODIFIED:20261027T162520Z
UID:11845-1794528000-1794614399@canadianrdn.ca
SUMMARY:Research as Care: Why Rare Diseases Matter for Europe's Future
DESCRIPTION:More than 30 million people across Europe live with a rare disease. This event explores how research and innovation can become the standard of care for all rare diseases — building momentum for a coordinated EU Action Plan\, examining the Biotech Act’s role in strengthening Europe’s innovation base and competitiveness\, and demonstrating what happens when patients are true partners.
URL:https://canadianrdn.ca/event/research-as-care-why-rare-diseases-matter-for-europes-future/
CATEGORIES:Clinical Trials,Events,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Event-Registration.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261113T080000
DTEND;TZID=America/Toronto:20261114T170000
DTSTAMP:20261027T163009Z
CREATED:20261027T163009Z
LAST-MODIFIED:20261027T163009Z
UID:11851-1794556800-1794675600@canadianrdn.ca
SUMMARY:TREAT-NMD and the Muscular Dystrophy Association- LGMD Masterclass
DESCRIPTION:This masterclass is designed for healthcare professionals to support integrated care and includes sessions on diagnosis\, genetic testing\, imaging\, muscle biopsy\, physiotherapy\, cardiac and respiratory management\, clinical trials\, standards of care and patient advocacy. As such\, it may be of interest to neurologists\, paediatricians\, geneticists\, physiotherapists\, rehabilitation specialists\, cardiologists\, specialist nurses\, care coordinators and other allied healthcare professionals involved in the management of LGMD.
URL:https://canadianrdn.ca/event/treat-nmd-and-the-muscular-dystrophy-association-lgmd-masterclass/
CATEGORIES:Clinical Trials,Events,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Website-Banners-13.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261130T080000
DTEND;TZID=America/Toronto:20261201T170000
DTSTAMP:20261027T165053Z
CREATED:20261027T165053Z
LAST-MODIFIED:20261027T165053Z
UID:11876-1796025600-1796144400@canadianrdn.ca
SUMMARY:MITO2026 International Conference
DESCRIPTION:The MITO2026 International Conference\, organized by MITO2i and MitoCanada\, brings together people working across the mitochondrial disease research community. Mitochondrial disorders can affect multiple organs and systems and include many rare genetic conditions. \n 
URL:https://canadianrdn.ca/event/mito2026-international-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Mito2026-Conference-Banner-main-page-1200x533-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261214T070000
DTEND;TZID=America/Edmonton:20261214T080000
DTSTAMP:20261027T163327Z
CREATED:20261027T163327Z
LAST-MODIFIED:20261027T163327Z
UID:11854-1797231600-1797235200@canadianrdn.ca
SUMMARY:ERDERA Joint Transnational Call 2027: Information Webinar
DESCRIPTION:This information webinar on the 2027 Joint Transnational Call for Proposals is scheduled for 14 December 2026.
URL:https://canadianrdn.ca/event/erdera-joint-transnational-call-2027-information-webinar/
CATEGORIES:Clinical Trials,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/ERDERA-funding-visual-1-1024x724-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20270125T080000
DTEND;TZID=America/Toronto:20270126T170000
DTSTAMP:20260817T162431Z
CREATED:20260817T162431Z
LAST-MODIFIED:20260817T162431Z
UID:11430-1800864000-1800982800@canadianrdn.ca
SUMMARY:Inaugural Canadian Gene & Cell Therapy Conference
DESCRIPTION:Convened by RareKids-CAN in partnership with the Conference Organizing Committee\, the conference will bring together researchers\, clinicians\, manufacturers\, industry leaders\, regulators\, trainees\, and patient and family partners from across the full translational pipeline.
URL:https://canadianrdn.ca/event/inaugural-canadian-gene-cell-therapy-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1784829020316.jpg
END:VEVENT
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