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X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260304T110000
DTEND;TZID=America/Edmonton:20260304T123000
DTSTAMP:20260409T163816
CREATED:20260126T210847Z
LAST-MODIFIED:20260126T210847Z
UID:9656-1772622000-1772627400@canadianrdn.ca
SUMMARY:Stem Cell Network: Clinical Translation in Cell and Gene Therapy
DESCRIPTION:Stem Cell Network and BioCanRx are pleased to present this webinar on clinical translation\, offering trainees\, early-career investigators\, and researchers a high-level introduction to how cell and gene therapies (including regenerative medicine and cancer biotherapeutics) move from the lab to clinical trials.
URL:https://canadianrdn.ca/event/stem-cell-network-clinical-translation-in-cell-and-gene-therapy/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768827404847.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260311T130000
DTEND;TZID=America/Toronto:20260311T140000
DTSTAMP:20260409T163816
CREATED:20260212T210726Z
LAST-MODIFIED:20260212T210726Z
UID:9800-1773234000-1773237600@canadianrdn.ca
SUMMARY:RareKids-CAN: Rare Methods Workshop Series: Eliciting prior distributions for rare disease clinical trials
DESCRIPTION:Are you a rare disease methodologist\, investigator or trainee? Join RareKids-CAN and speaker Arlene Jiang for a Rare Methods Workshop on expert elicitation in rare disease research on March 11. \nLearn what expert elicitation is\, how it can support rare disease clinical design and how expert input can be used to construct a prior distribution.
URL:https://canadianrdn.ca/event/rarekids-can-rare-methods-workshop-series-eliciting-prior-distributions-for-rare-disease-clinical-trials/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770730225814.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260317T080000
DTEND;TZID=America/Edmonton:20260319T170000
DTSTAMP:20260409T163816
CREATED:20260204T172823Z
LAST-MODIFIED:20260204T172823Z
UID:9748-1773734400-1773939600@canadianrdn.ca
SUMMARY:Rare Disease Summit: Access USA
DESCRIPTION:The Rare Disease Summit unites stakeholders to accelerate therapeutic innovation for areas of unmet medical need. Gain actionable insights on launch planning\, market access\, reimbursement strategies and strategic partnerships to optimize rare disease commercialization and elevate patient impact.
URL:https://canadianrdn.ca/event/rare-disease-summit-access-usa/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770040824093.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260318T080000
DTEND;TZID=Europe/Rome:20260319T170000
DTSTAMP:20260409T163816
CREATED:20260126T212507Z
LAST-MODIFIED:20260126T212507Z
UID:9671-1773820800-1773939600@canadianrdn.ca
SUMMARY:MAINFRAME Symposium on AI-Driven Small-Molecule Drug Discovery
DESCRIPTION:Co-organized by Conscience in partnership with The Structural Genomics Consortium (SGC) and local organizers at the Vall d’Hebron Institute of Oncology (VHIO)\, the Barcelona Supercomputing Center (BSC)\, and the Institute of Research in Biomedicine (IRB)\, this two-day in-person symposium will bring together the global community working at the intersection of artificial intelligence\, computational chemistry\, and small-molecule drug discovery.
URL:https://canadianrdn.ca/event/mainframe-symposium-on-ai-driven-small-molecule-drug-discovery/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Capture.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260325T080000
DTEND;TZID=America/Toronto:20260327T170000
DTSTAMP:20260409T163816
CREATED:20260101T231316Z
LAST-MODIFIED:20260101T231316Z
UID:9497-1774425600-1774630800@canadianrdn.ca
SUMMARY:4th Annual Scientific Symposium on SPG4
DESCRIPTION:The premier gathering for childhood-onset SPG4 research returns in 2026 — uniting leading scientists\, clinicians\, industry innovators\, patient advocates\, and families for three days of focused collaboration. Designed to accelerate the path from discovery to treatment\, the symposium will feature experts from across the U.S. and abroad\, offering a rare opportunity to share knowledge\, align priorities\, and drive progress.
URL:https://canadianrdn.ca/event/4th-annual-scientific-symposium-on-spg4/
CATEGORIES:Clinical Trials,Conferences,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260407T150000
DTEND;TZID=America/Edmonton:20260407T170000
DTSTAMP:20260409T163816
CREATED:20260212T205259Z
LAST-MODIFIED:20260212T205259Z
UID:9784-1775574000-1775581200@canadianrdn.ca
SUMMARY:CPD-Accredited Webinar | Duchenne Muscular Dystrophy in the New Steroid Age: Practical Considerations
DESCRIPTION:NMD4C\, MDC\, and Defeat Duchenne Canada are pleased to invite you to a CPD-accredited webinar on Duchenne Muscular Dystrophy in the Evolving Steroid Era: Practical Neuromuscular and Endocrine Considerations. This CPD-accredited webinar is primarily targeted at Canadian clinicians\, academics and trainees with an interest in neuromuscular diseases.
URL:https://canadianrdn.ca/event/cpd-accredited-webinar-duchenne-muscular-dystrophy-in-the-new-steroid-age-practical-considerations/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770814888758.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260409T080000
DTEND;TZID=America/Toronto:20260409T170000
DTSTAMP:20260409T163816
CREATED:20260401T192410Z
LAST-MODIFIED:20260401T192410Z
UID:10067-1775721600-1775754000@canadianrdn.ca
SUMMARY:MitoRevolution Research Symposium and Innovation Day
DESCRIPTION:Researchers\, clinicians\, and trainees working in mitochondrial science are invited to attend the 6th Annual MitoRevolution Research Symposium and Innovation Day\, hosted by their partners Mito2i\, on Thursday\, April 9\, 2026\, at the MaRS Auditorium in Toronto.
URL:https://canadianrdn.ca/event/mitorevolution-research-symposium-and-innovation-day/
CATEGORIES:Caregiver,Clinical Trials,Events,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773856526059-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260409T080000
DTEND;TZID=America/Edmonton:20260410T170000
DTSTAMP:20260409T163816
CREATED:20260401T192545Z
LAST-MODIFIED:20260401T192545Z
UID:10070-1775721600-1775840400@canadianrdn.ca
SUMMARY:Ehlers-Danlos Syndrome (EDS) Research Symposium
DESCRIPTION:The Ehlers-Danlos Syndrome (EDS) Research Symposium is a two-day event\, April 9-10\, designed to bring together clinicians\, researchers\, students\, patients\, and community partners to examine current research\, clinical challenges\, and emerging approaches to the diagnosis and management of the Ehlers-Danlos syndromes.⁠\n⁠
URL:https://canadianrdn.ca/event/ehlers-danlos-syndrome-eds-research-symposium/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774621936518.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260410T130000
DTEND;TZID=America/Toronto:20260410T140000
DTSTAMP:20260409T163816
CREATED:20260401T191832Z
LAST-MODIFIED:20260401T191832Z
UID:10058-1775826000-1775829600@canadianrdn.ca
SUMMARY:ALS Clinical Trials Unboxed
DESCRIPTION:On Friday\, April 10\, at 1:00 p.m. ET\, tune into ALS Clinical Trials Unboxed to learn about ongoing ALS clinical trials in Canada and globally for people living with ALS. In this webinar\, Dr. Tyrell J. Simkins\, DO\, PhD\, Senior Director of Clinical Development at Coya Therapeutics\, will discuss the scientific rationale behind COYA 302 and the design of the ALSTARS trial.
URL:https://canadianrdn.ca/event/als-clinical-trials-unboxed-3/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774278028229-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260429T080000
DTEND;TZID=America/Toronto:20260430T170000
DTSTAMP:20260409T163816
CREATED:20260401T194917Z
LAST-MODIFIED:20260401T195134Z
UID:10092-1777449600-1777568400@canadianrdn.ca
SUMMARY:CORD: Rare Disease Day 2026 Conference
DESCRIPTION:Join CORD for their Annual Rare Disease Day Conference in Toronto!
URL:https://canadianrdn.ca/event/cord-rare-disease-day-2026-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774467258083.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20260512T080000
DTEND;TZID=Europe/Brussels:20260513T170000
DTSTAMP:20260409T163816
CREATED:20260126T212140Z
LAST-MODIFIED:20260126T212140Z
UID:9668-1778572800-1778691600@canadianrdn.ca
SUMMARY:International Drug Repurposing Conference 2026
DESCRIPTION:Join the leading international drug repurposing conference to explore the future of patient-centric medicines repurposing.\nFrom rare diseases and AI-driven drug discovery\, to policy\, funding and community-led success stories\, iDR26 brings together the global drug repurposing community to navigate the next chapter in maximising patient benefit.
URL:https://canadianrdn.ca/event/international-drug-repurposing-conference-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/idr2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Prague:20260602T080000
DTEND;TZID=Europe/Prague:20260604T170000
DTSTAMP:20260409T163816
CREATED:20250812T194154Z
LAST-MODIFIED:20250812T194154Z
UID:8711-1780387200-1780592400@canadianrdn.ca
SUMMARY:ECRD: Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases
DESCRIPTION:The ECRD is the largest\, patient-led\, rare disease policy-shaping event held in Europe. \nBy bringing together people with rare diseases and patient advocates\, policy makers\, healthcare industry representatives\, clinicians\, regulators and Member State representatives\, EURORDIS harnesses the power of this extensive network to shape goal-driven rare disease policies of the future.
URL:https://canadianrdn.ca/event/ecrd-rare-diseases-in-a-changing-competitive-europe-shaping-policies-to-address-the-unmet-needs-of-people-living-with-rare-diseases/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260929T080000
DTEND;TZID=Europe/Paris:20261002T170000
DTSTAMP:20260409T163816
CREATED:20250812T194434Z
LAST-MODIFIED:20250812T194434Z
UID:8714-1790668800-1790960400@canadianrdn.ca
SUMMARY:17th International Symposium on Sjögren's Disease
DESCRIPTION:This prestigious event\, which brings together researchers\, physicians\, patients and experts from around the world to discuss the latest advancements in Sjögren’s disease.
URL:https://canadianrdn.ca/event/17th-international-symposium-on-sjogrens-disease/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
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