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BEGIN:DAYLIGHT
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260129T180000
DTEND;TZID=America/Toronto:20260129T183000
DTSTAMP:20260409T093052
CREATED:20260101T230358Z
LAST-MODIFIED:20260105T020158Z
UID:9488-1769709600-1769711400@canadianrdn.ca
SUMMARY:CATALIS-Clinical Research 101: Webinar 2
DESCRIPTION:Webinar 2 on January 29\, 2026 from 6 pm to 6:30 pm
URL:https://canadianrdn.ca/event/catalis-clinical-research-10-webinar-2/
CATEGORIES:Clinical Trials,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1766424512558-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260128T140000
DTEND;TZID=America/Toronto:20260128T153000
DTSTAMP:20260409T093052
CREATED:20260113T164448Z
LAST-MODIFIED:20260113T164448Z
UID:9608-1769608800-1769614200@canadianrdn.ca
SUMMARY:Canada's Drug Agency-Preconsultation Webinar: Improvements to the Drug Reimbursement Review Process
DESCRIPTION:Join CDA’s preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process. \nYou will hear from their senior leaders how these plans will advance our efforts to modernize and streamline drug reimbursement reviews.
URL:https://canadianrdn.ca/event/canadas-drug-agency-preconsultation-webinar-improvements-to-the-drug-reimbursement-review-process/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/CDA-Drug.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260122T180000
DTEND;TZID=America/Toronto:20260122T183000
DTSTAMP:20260409T093052
CREATED:20260101T230159Z
LAST-MODIFIED:20260105T020205Z
UID:9485-1769104800-1769106600@canadianrdn.ca
SUMMARY:CATALIS-Clinical Research 101: Webinar 1
DESCRIPTION:Webinar 1 on January 22\, 2026 from 6 pm to 6:30 pm
URL:https://canadianrdn.ca/event/catalis-clinical-research-10-webinar-1/
CATEGORIES:Clinical Trials,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1766424512558.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260122T080000
DTEND;TZID=America/Edmonton:20260122T090000
DTSTAMP:20260409T093052
CREATED:20260101T225614Z
LAST-MODIFIED:20260101T225614Z
UID:9479-1769068800-1769072400@canadianrdn.ca
SUMMARY:CMT episode 3: Bioarkers and outcome measures for clinical trial readiness in CMT
DESCRIPTION:Delivered by Prof. Mary Reilly (University College London\, Department of Neuromuscular Diseases\, UK)\, Thu 22 Jan 2026 at 17:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.
URL:https://canadianrdn.ca/event/cmt-episode-3-bioarkers-and-outcome-measures-for-clinical-trial-readiness-in-cmt/
CATEGORIES:Clinical Trials,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Biomarkers-and-outcomes-measures-for-clinical-trial_2201.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260120T170000
DTEND;TZID=America/Edmonton:20260120T183000
DTSTAMP:20260409T093052
CREATED:20260105T195814Z
LAST-MODIFIED:20260105T195814Z
UID:9582-1768928400-1768933800@canadianrdn.ca
SUMMARY:RealiseD Webinar 2: Evidence Assessment Framework. A need to change mindset from developers\, regulators and HTA
DESCRIPTION:The second webinar turns the spotlight on one of the most critical issues in rare disease research: the generation and assessment of evidence. François Meyer\, a leading consultant in health technology assessment\, will examine why current frameworks often fail to deliver predictable and aligned outcomes\, resulting in delays and inequalities in patient access. The session will explore the global and European initiatives aimed at addressing these shortcomings and present the RealiseD consortium’s efforts to advance scientific and operational solutions. More importantly\, it will advocate for a fundamental shift in mindset—one that embraces flexibility and innovation in the way evidence is generated\, interpreted\, and assessed.
URL:https://canadianrdn.ca/event/realised-webinar-2-evidence-assessment-framework-a-need-to-change-mindset-from-developers-regulators-and-hta/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/images.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260113T170000
DTEND;TZID=America/Edmonton:20260113T183000
DTSTAMP:20260409T093052
CREATED:20260105T195201Z
LAST-MODIFIED:20260105T200439Z
UID:9578-1768323600-1768329000@canadianrdn.ca
SUMMARY:RealiseD Webinar 1: Realising Clinical trials in Ultra-Rare diseases
DESCRIPTION:Join RealiseD’s first webinar to learn how RealiseD is pioneering a collaborative and comprehensive approach to clinical trials in ultra-rare diseases. During the webinar\, they’ll walk you through the project’s objectives\, structure\, and methodologies—and show how you can be part of this transformative journey.
URL:https://canadianrdn.ca/event/realised-realising-clinical-trials-in-ultra-rare-diseases/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1765887061354.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251217T120000
DTEND;TZID=America/Toronto:20251217T140000
DTSTAMP:20260409T093052
CREATED:20251126T192615Z
LAST-MODIFIED:20251126T192615Z
UID:9198-1765972800-1765980000@canadianrdn.ca
SUMMARY:Webinar: Lymphodepletion for CAR-T/IEC Outcomes
DESCRIPTION:Achieving consistent and effective outcomes in CAR T and other immune effector cell (IEC) therapies relies heavily on getting lymphodepletion “right.” Emerging evidence shows that both under- and over-exposure can impact safety\, efficacy\, and long-term persistence\, making optimized dosing strategies increasingly critical as the field evolves. \nThis webinar will explore how model-informed and data-driven approaches can help identify the optimal lymphodepletion exposure window\, improve predictability\, and support more standardized practices across patient populations and treatment centers. Speakers will discuss current challenges\, scientific rationale\, clinical insights\, and practical considerations for implementation.
URL:https://canadianrdn.ca/event/webinar-lymphodepletion-for-car-t-iec-outcomes/
CATEGORIES:Clinical Trials,International,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251211T173000
DTEND;TZID=America/Edmonton:20251211T183000
DTSTAMP:20260409T093052
CREATED:20251126T193637Z
LAST-MODIFIED:20251126T193637Z
UID:9207-1765474200-1765477800@canadianrdn.ca
SUMMARY:Every Relapse Matters: The Evolving NMOSD & MOGAD Treatment Landscape in Canada
DESCRIPTION:The Sumaira Foundation Canada is pleased to invite you to an important educational webinar on Thursday\, December 11th at 7:30 PM EST. This session will explore the evolving treatment options for individuals living with AQP4+ NMOSD\, seronegative NMOSD\, and MOGAD in Canada.
URL:https://canadianrdn.ca/event/every-relapse-matters-the-evolving-nmosd-mogad-treatment-landscape-in-canada/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251209T080000
DTEND;TZID=America/Edmonton:20251210T170000
DTSTAMP:20260409T093052
CREATED:20250902T192732Z
LAST-MODIFIED:20250902T192732Z
UID:8848-1765267200-1765386000@canadianrdn.ca
SUMMARY:2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases
DESCRIPTION:This second edition will convene a wide range of international experts\, including researchers\, clinicians\, patient advocates\, industry representatives\, policymakers\, and funders to strengthen the collaborative ecosystem that underpins clinical research in rare diseases worldwide.
URL:https://canadianrdn.ca/event/2nd-international-conference-on-clinical-research-networks-crns-for-rare-diseases/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T080000
DTEND;TZID=America/New_York:20251119T170000
DTSTAMP:20260409T093052
CREATED:20241218T230757Z
LAST-MODIFIED:20251027T201716Z
UID:7283-1763452800-1763571600@canadianrdn.ca
SUMMARY:2025 IMPaCT Summit
DESCRIPTION:
URL:https://canadianrdn.ca/event/2025-impact-summit-save-the-date/
CATEGORIES:Clinical Trials,Conferences,Industry,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Zurich:20251118T080000
DTEND;TZID=Europe/Zurich:20251118T170000
DTSTAMP:20260409T093052
CREATED:20250812T193902Z
LAST-MODIFIED:20250812T193902Z
UID:8708-1763452800-1763485200@canadianrdn.ca
SUMMARY:ITINERARE Symposium 2025
DESCRIPTION:The programme features experts from a variety of fields\, ranging from basic and translational research to clinical application and the ethical\, social and legal aspects of rare disease research.
URL:https://canadianrdn.ca/event/itinerare-symposium-2025/
CATEGORIES:Clinical Trials,Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/Pic-webpage.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251029T090000
DTEND;TZID=America/Edmonton:20251029T100000
DTSTAMP:20260409T093052
CREATED:20251024T184502Z
LAST-MODIFIED:20251024T184502Z
UID:9090-1761728400-1761732000@canadianrdn.ca
SUMMARY:Easing Pain\, Advancing Care: A New Pathway for Children with Severe Neurological Impairments
DESCRIPTION:This webinar will provide an overview of the multi-phased project\, from clinical trial to implementation. It will highlight the clinical complexity of assessing pain and irritability; the project’s relevance and impact for clinicians\, children with health complexity\, and their families; as well as key lessons for patient-oriented research and implementation science.
URL:https://canadianrdn.ca/event/easing-pain-advancing-care-a-new-pathway-for-children-with-severe-neurological-impairments/
CATEGORIES:Caregiver,Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251029T080000
DTEND;TZID=America/Toronto:20251031T170000
DTSTAMP:20260409T093052
CREATED:20250902T192527Z
LAST-MODIFIED:20250902T192527Z
UID:8845-1761724800-1761930000@canadianrdn.ca
SUMMARY:Cardiac Precision Medicine in the 21st Century
DESCRIPTION:The 10th International Cardiovascular Genomic Medicine & SickKids Cardiac Precision Medicine Conference is making its debut in North America! This year’s theme\, “Cardiac Precision Medicine in the 21st Century\,” delves into cardiovascular genomics and precision medicine in the era of ‘Omics’\, AI and digital medicine. Join us as we bring together international experts and innovators to explore transformative research and collaborative opportunities that can shape the future of cardiovascular medicine. \nThis event will feature the 4th William Harvey Oration delivered by Dr. Sharlene Day and the Dr. Michael Braudo Lectureship delivered by Dr. Ma’n H. Zawati.
URL:https://canadianrdn.ca/event/cardiac-precision-medicine-in-the-21st-century/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20251027T080000
DTEND;TZID=Europe/Amsterdam:20251029T170000
DTSTAMP:20260409T093052
CREATED:20250618T150752Z
LAST-MODIFIED:20250618T150752Z
UID:8460-1761552000-1761757200@canadianrdn.ca
SUMMARY:The World Orphan Drug Congress
DESCRIPTION:The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe. \nFrom cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/the-world-orphan-drug-congress/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20251007T080000
DTEND;TZID=Europe/Vienna:20251011T170000
DTSTAMP:20260409T093052
CREATED:20250812T195000Z
LAST-MODIFIED:20250812T195000Z
UID:8721-1759824000-1760202000@canadianrdn.ca
SUMMARY:30th Annual International Congress of the World Muscle Society
DESCRIPTION:The World Muscle Society is a dynamic community that aims to promote\, disseminate\, and share all aspects of neuromuscular physiology and diseases\, from basic science to patient care. It encompasses a broad range of scientists and healthcare professionals who share the common interest for neuromuscular disorders.
URL:https://canadianrdn.ca/event/30th-annual-international-congress-of-the-world-muscle-society/
CATEGORIES:Caregiver,Clinical Trials,Conferences,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251005T080000
DTEND;TZID=America/Edmonton:20251008T170000
DTSTAMP:20260409T093052
CREATED:20250520T192119Z
LAST-MODIFIED:20250520T192119Z
UID:8301-1759651200-1759942800@canadianrdn.ca
SUMMARY:CAGC & CCMG Joint Conference
DESCRIPTION:The CAGC & CCMG Joint Conference will be a unique gathering of medical and laboratory geneticists and genetic counsellors with diverse expertise\, all sharing a common interest in education and advocating for best practices in clinical and laboratory genetics. Through presentations\, workshops\, breakout sessions\, abstract sessions\, and engagement with industry partners\, the event propels forward clinical practice\, scientific advancements\, and excellence across all aspects of genetics in Canada.
URL:https://canadianrdn.ca/event/cagc-ccmg-joint-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251001T130000
DTEND;TZID=America/Toronto:20251001T160000
DTSTAMP:20260409T093052
CREATED:20250916T185043Z
LAST-MODIFIED:20250916T185043Z
UID:8900-1759323600-1759334400@canadianrdn.ca
SUMMARY:Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing capabilities in Canada
DESCRIPTION:The Stem Cell Network (SCN) and the National Research Council Canada (NRC) are excited to contribute to the national conversation on cell and gene therapy for rare diseases. Building on the 2024 event titled “Canadian Rare Disease Ecosystem Symposium: Genetic Therapies for Rare Disease”\, SCN and NRC are pleased to invite you to the Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing Capabilities in Canada–a focused half-day event dedicated to advancing gene and cell therapy development in Canada through regulatory alignment and manufacturing readiness. \nThis virtual symposium will convene international regulatory authorities\, Canadian manufacturing experts\, and rare disease developers to explore two critical enablers of translational success: clinical trial readiness and cGMP manufacturing capacity.
URL:https://canadianrdn.ca/event/canadian-rare-disease-symposium-preparing-for-clinical-trials-international-regulatory-insights-and-cgmp-gene-therapy-manufacturing-capabilities-in-canada/
CATEGORIES:Caregiver,Clinical Trials,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250925T080000
DTEND;TZID=America/Edmonton:20250927T170000
DTSTAMP:20260409T093052
CREATED:20250812T195243Z
LAST-MODIFIED:20250812T195243Z
UID:8724-1758787200-1758992400@canadianrdn.ca
SUMMARY:6th Western Canadian Neuromuscular Conference
DESCRIPTION:The 6th Western Canadian Neuromuscular\nConference is confirmed for 2026! Don’t miss\nthe opportunity to network with leading experts\nand stay at the forefront of medical\nadvancements in the field of neuromuscular\ndiseases.
URL:https://canadianrdn.ca/event/6th-western-canadian-neuromuscular-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250921T080000
DTEND;TZID=America/Chicago:20250924T170000
DTSTAMP:20260409T093052
CREATED:20250827T161756Z
LAST-MODIFIED:20250827T161756Z
UID:8771-1758441600-1758733200@canadianrdn.ca
SUMMARY:Undiagnosed Hackathon 2025
DESCRIPTION:350 million people live with an undiagnosed disease worldwide. Genome sequencing can provide answers for 40% of the People Living With Undiagnosed Disease (PLWUD) but around 60% still don’t receive a diagnosis. The purpose of the Undiagnosed Hackathon is trying to find new ways and collaborations to solve the undiagnosed diseases\, that can’t be solved today. In this unique event multidisciplinary teams of clinicians\, bioinformaticians/molecular biologists\, scientists\, developers\, AI specialists and brilliant minds will work together to tackle the most difficult diseases.
URL:https://canadianrdn.ca/event/undiagnosed-hackathon-2025/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/Undiagnosed-Hackathon-logo-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250913T170000
DTSTAMP:20260409T093052
CREATED:20250812T194724Z
LAST-MODIFIED:20250812T194724Z
UID:8717-1757577600-1757782800@canadianrdn.ca
SUMMARY:Ottawa NMD 2025 Conference
DESCRIPTION:7th Ottawa International Conference on Neuromuscular Disease and Biology will take place at the Fairmont Château Laurier in Ottawa\, Canada on September 11-13\, 2025. \nThe Ottawa NMD 2025 conference will offer an outstanding program emphasizing recent breakthroughs in basic and translational research and clinical discoveries in neuromuscular disease.
URL:https://canadianrdn.ca/event/ottawa-nmd-2025-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250911T170000
DTSTAMP:20260409T093052
CREATED:20250812T195526Z
LAST-MODIFIED:20250812T195526Z
UID:8727-1757577600-1757610000@canadianrdn.ca
SUMMARY:2025 NMD4C Annual Meeting
DESCRIPTION:Registration is now open for the 2025 NMD4C Annual Meeting!\nJoin NMD4C in Ottawa on Thursday\, September 11\, for a full day of dynamic discussions\, research updates\, and networking opportunities—just ahead of the 7th Ottawa International Conference on Neuromuscular Disease & Biology.
URL:https://canadianrdn.ca/event/2025-nmd4c-annual-meeting/
CATEGORIES:Clinical Trials,Events,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250910T100000
DTEND;TZID=America/Edmonton:20250910T110000
DTSTAMP:20260409T093052
CREATED:20250722T203504Z
LAST-MODIFIED:20250722T203504Z
UID:8581-1757498400-1757502000@canadianrdn.ca
SUMMARY:IMPaCT Webinar: Lessons Learned from the Innovative Pediatric Clinical Trials (iPCT) Network
DESCRIPTION:Speakers: Tannis Erickson & Naveen Poonai Title: Lessons Learned from the Innovative Pediatric Clinical Trials (iPCT) Network
URL:https://canadianrdn.ca/event/impact-webinar-lessons-learned-from-the-innovative-pediatric-clinical-trials-ipct-network/
CATEGORIES:Clinical Trials,National,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250909T080000
DTEND;TZID=America/Edmonton:20250910T170000
DTSTAMP:20260409T093052
CREATED:20250723T141417Z
LAST-MODIFIED:20250723T141417Z
UID:8591-1757404800-1757523600@canadianrdn.ca
SUMMARY:Rare Trials Summit
DESCRIPTION:Bringing together key stakeholders in the clinical research community to accelerate the development of new rare disease therapies from average 10-12 years to under 3 years.
URL:https://canadianrdn.ca/event/rare-trials-summit/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Belize:20250904T080000
DTEND;TZID=America/Belize:20250905T170000
DTSTAMP:20260409T093052
CREATED:20250827T170339Z
LAST-MODIFIED:20250827T170339Z
UID:8787-1756972800-1757091600@canadianrdn.ca
SUMMARY:6th International Hypothalamic Hamartoma Symposium
DESCRIPTION:Presented by Hope for HH and Hospital Sant Joan de Déu Barcelona\, this symposium will gather leading experts\, patients\, and caregivers from around the world to share the latest research\, clinical advances\, and treatment strategies for Hypothalamic Hamartoma (HH)! Alexis Arzimanoglou and Helen Cross are part of the Symposium Committee.
URL:https://canadianrdn.ca/event/6th-international-hypothalamic-hamartoma-symposium/
CATEGORIES:Caregiver,Clinical Trials,Conferences,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250721T120000
DTEND;TZID=America/Toronto:20250721T130000
DTSTAMP:20260409T093052
CREATED:20250625T030325Z
LAST-MODIFIED:20250625T030325Z
UID:8484-1753099200-1753102800@canadianrdn.ca
SUMMARY:IMPaCT Webinar - An Overview of Current and Future Clinical Trials in Children: a European Perspective
DESCRIPTION:Dr. Eva Degraeuwe (MD-PhD) is a dedicated pediatric resident and researcher in pediatric nephrology and global clinical trial optimilisation. Working in many Global networks focused on rare and low prevalance diseases\, she has completed her PhD in 2024 participating and guiding over 35 clinical trials. Moreover\, she has a passion for patient engagement\, especially within a clinical trial setting. \nWebinar Overview: \n– European network setting and the role of networks \n– Pathways to clinical trial optimilisation \n– Patient engagement and what has been achieved
URL:https://canadianrdn.ca/event/impact-webinar-an-overview-of-current-and-future-clinical-trials-in-children-a-european-perspective/
CATEGORIES:Clinical Trials,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250707T080000
DTEND;TZID=America/New_York:20250709T170000
DTSTAMP:20260409T093052
CREATED:20250321T031011Z
LAST-MODIFIED:20250321T031011Z
UID:7802-1751875200-1752080400@canadianrdn.ca
SUMMARY:2nd Global Cell & Gene Therapy Summit
DESCRIPTION:
URL:https://canadianrdn.ca/event/2nd-global-cell-gene-therapy-summit/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Hybrid,International,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250624T080000
DTEND;TZID=America/New_York:20250625T170000
DTSTAMP:20260409T093052
CREATED:20241112T225405Z
LAST-MODIFIED:20241112T225405Z
UID:6982-1750752000-1750870800@canadianrdn.ca
SUMMARY:THE FESTIVAL OF GENOMICS & BIODATA Boston
DESCRIPTION:The Festival is designed principally for scientists and clinicians who are working in the fields of genomics\, other omics\, and/or using biodata \, to further research\, drug discovery\, healthcare and – ultimately – deliver better patient outcomes.\n\nTopics covered include genomics\, single cell/spatial biology\, multiomics\, biodata\, cancer research\, drug discovery\, AI\, microbiome\, proteomics\, liquid biopsy and so much more.
URL:https://canadianrdn.ca/event/the-festival-of-genomics-biodata-boston/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250623T160000
DTEND;TZID=America/Edmonton:20250623T170000
DTSTAMP:20260409T093052
CREATED:20250618T145940Z
LAST-MODIFIED:20250618T145940Z
UID:8451-1750694400-1750698000@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada-Industry Partner Update: REGENXBIO
DESCRIPTION:Join Defeat Duchenne Canada for an educational webinar featuring Dr. Jahannaz Dastgir\, Executive Director of Clinical Development at REGENXBIO\, as she shares the latest updates on RGX-202\, an investigational gene therapy for the treatment of Duchenne muscular dystrophy\, and their Phase 1/2/3 AFFINITY DUCHENNE® trial. \nThis session will provide valuable insights into the science behind RGX-202\, trial progress\, and what this potential investigational treatment could mean for the Duchenne community. Whether you are a parent\, caregiver\, clinician\, or advocate\, this webinar is an opportunity to stay informed and ask questions directly to the team leading this important research.
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-industry-partner-update-regenxbio/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250618T120000
DTEND;TZID=America/Edmonton:20250618T130000
DTSTAMP:20260409T093052
CREATED:20250526T204049Z
LAST-MODIFIED:20250526T204049Z
UID:8322-1750248000-1750251600@canadianrdn.ca
SUMMARY:Webinar - Key Considerations for Including Pediatric Populations with Neurodevelopmental Conditions in Clinical Trials
DESCRIPTION:Speakers: Evdokia Anagnostou and Mayada Elsabbagh Title: Key considerations for including pediatric populations with neurodevelopmental conditions in clinical trials
URL:https://canadianrdn.ca/event/webinar-key-considerations-for-including-pediatric-populations-with-neurodevelopmental-conditions-in-clinical-trials/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250602T080000
DTEND;TZID=America/Vancouver:20250603T170000
DTSTAMP:20260409T093052
CREATED:20250421T220628Z
LAST-MODIFIED:20250421T220827Z
UID:8010-1748851200-1748970000@canadianrdn.ca
SUMMARY:Advancing Innovation in Rare Disease Research
DESCRIPTION:Join researchers\, clinicians\, and industry leaders to discuss real-world research breakthroughs\, novel #ClinicalTrial designs\, and how NORD’s Rare Disease Centers of Excellence are leading collaborative efforts in #RareDisease innovation.
URL:https://canadianrdn.ca/event/advancing-innovation-in-rare-disease-research/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
END:VCALENDAR