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X-WR-CALNAME:Canadian Rare Disease Network
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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Edmonton:20261014T110000
DTEND;TZID=America/Edmonton:20261014T120000
DTSTAMP:20261001T185943Z
CREATED:20261001T185943Z
LAST-MODIFIED:20261001T185943Z
UID:11729-1791975600-1791979200@canadianrdn.ca
SUMMARY:RareKids-CAN: Navigating Advanced Therapies in Paediatric Rare Disease: An Introduction for Patients and Caregivers
DESCRIPTION:This webinar is the first in the series organized under Key Initiative 1.3 of the RareKids-CAN strategic priority\, ‘Strengthening Pediatric Rare Disease Clinical Trial Capacity and Advanced Therapy Medicinal Product Readiness’. It provides a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for patients and caregivers. The session will explain what ATMPs are\, how they work\, how they differ from traditional medicines\, and the types of advanced therapies currently available or being studied. Participants will also learn how to assess what developments may be relevant to their condition\, find clinical trials and other credible information\, and start conversations with their healthcare team about emerging therapies
URL:https://canadianrdn.ca/event/rarekids-can-navigating-advanced-therapies-in-paediatric-rare-disease-an-introduction-for-patients-and-caregivers/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/9382e8ed-421c-4576-b08e-76cee8289461.jpg
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DTSTART;TZID=America/Toronto:20261019T080000
DTEND;TZID=America/Toronto:20261020T170000
DTSTAMP:20260929T163637Z
CREATED:20260929T163637Z
LAST-MODIFIED:20260929T163637Z
UID:11686-1792396800-1792515600@canadianrdn.ca
SUMMARY:Advancing Equity in Genetics and Genomics in Canada (AEG2C) and Beyond
DESCRIPTION:Join in Montréal (or online) on October 19–20\, 2026 for the second AEG2C Symposium. This event will bring together researchers\, trainees\, community partners\, and patients to advance equity in genetics and genomics research across Canada and beyond. \nThis symposium is organized and hosted by the McGill Canada Excellence Research Chair (CERC) in Genomic Medicine\, CIHR Institute of Genetics (CIHR-IG)\, Genome Canada\, and the Pan-Canadian Genome Library (PCGL).
URL:https://canadianrdn.ca/event/advancing-equity-in-genetics-and-genomics-in-canada-aeg2c-and-beyond/
CATEGORIES:Clinical Trials,Conferences,Healthcare,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789484288760.jpg
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DTSTART;TZID=America/Vancouver:20261025T080000
DTEND;TZID=America/Vancouver:20261027T170000
DTSTAMP:20260929T164955Z
CREATED:20260929T164955Z
LAST-MODIFIED:20260929T164955Z
UID:11695-1792915200-1793120400@canadianrdn.ca
SUMMARY:NORD Breakthrough Summit 2026
DESCRIPTION:Shape the future of rare disease treatments\, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.®
URL:https://canadianrdn.ca/event/nord-breakthrough-summit-2026/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/NEW-Summit-Logo-FNL-01.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20261026T080000
DTEND;TZID=Europe/Amsterdam:20261028T170000
DTSTAMP:20260929T164646Z
CREATED:20260929T164646Z
LAST-MODIFIED:20260929T164646Z
UID:11692-1793001600-1793206800@canadianrdn.ca
SUMMARY:World Orphan Drug Congress Europe 2026
DESCRIPTION:The World Orphan Drug Congress is Europe’s largest and most established orphan drug & rare disease meeting. \nFrom cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/world-orphan-drug-congress-europe-2026/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1.jpg
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