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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260407T150000
DTEND;TZID=America/Edmonton:20260407T170000
DTSTAMP:20260409T080254
CREATED:20260212T205259Z
LAST-MODIFIED:20260212T205259Z
UID:9784-1775574000-1775581200@canadianrdn.ca
SUMMARY:CPD-Accredited Webinar | Duchenne Muscular Dystrophy in the New Steroid Age: Practical Considerations
DESCRIPTION:NMD4C\, MDC\, and Defeat Duchenne Canada are pleased to invite you to a CPD-accredited webinar on Duchenne Muscular Dystrophy in the Evolving Steroid Era: Practical Neuromuscular and Endocrine Considerations. This CPD-accredited webinar is primarily targeted at Canadian clinicians\, academics and trainees with an interest in neuromuscular diseases.
URL:https://canadianrdn.ca/event/cpd-accredited-webinar-duchenne-muscular-dystrophy-in-the-new-steroid-age-practical-considerations/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770814888758.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260325T080000
DTEND;TZID=America/Toronto:20260327T170000
DTSTAMP:20260409T080254
CREATED:20260101T231316Z
LAST-MODIFIED:20260101T231316Z
UID:9497-1774425600-1774630800@canadianrdn.ca
SUMMARY:4th Annual Scientific Symposium on SPG4
DESCRIPTION:The premier gathering for childhood-onset SPG4 research returns in 2026 — uniting leading scientists\, clinicians\, industry innovators\, patient advocates\, and families for three days of focused collaboration. Designed to accelerate the path from discovery to treatment\, the symposium will feature experts from across the U.S. and abroad\, offering a rare opportunity to share knowledge\, align priorities\, and drive progress.
URL:https://canadianrdn.ca/event/4th-annual-scientific-symposium-on-spg4/
CATEGORIES:Clinical Trials,Conferences,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260318T080000
DTEND;TZID=Europe/Rome:20260319T170000
DTSTAMP:20260409T080254
CREATED:20260126T212507Z
LAST-MODIFIED:20260126T212507Z
UID:9671-1773820800-1773939600@canadianrdn.ca
SUMMARY:MAINFRAME Symposium on AI-Driven Small-Molecule Drug Discovery
DESCRIPTION:Co-organized by Conscience in partnership with The Structural Genomics Consortium (SGC) and local organizers at the Vall d’Hebron Institute of Oncology (VHIO)\, the Barcelona Supercomputing Center (BSC)\, and the Institute of Research in Biomedicine (IRB)\, this two-day in-person symposium will bring together the global community working at the intersection of artificial intelligence\, computational chemistry\, and small-molecule drug discovery.
URL:https://canadianrdn.ca/event/mainframe-symposium-on-ai-driven-small-molecule-drug-discovery/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Capture.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260317T080000
DTEND;TZID=America/Edmonton:20260319T170000
DTSTAMP:20260409T080254
CREATED:20260204T172823Z
LAST-MODIFIED:20260204T172823Z
UID:9748-1773734400-1773939600@canadianrdn.ca
SUMMARY:Rare Disease Summit: Access USA
DESCRIPTION:The Rare Disease Summit unites stakeholders to accelerate therapeutic innovation for areas of unmet medical need. Gain actionable insights on launch planning\, market access\, reimbursement strategies and strategic partnerships to optimize rare disease commercialization and elevate patient impact.
URL:https://canadianrdn.ca/event/rare-disease-summit-access-usa/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770040824093.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260311T130000
DTEND;TZID=America/Toronto:20260311T140000
DTSTAMP:20260409T080254
CREATED:20260212T210726Z
LAST-MODIFIED:20260212T210726Z
UID:9800-1773234000-1773237600@canadianrdn.ca
SUMMARY:RareKids-CAN: Rare Methods Workshop Series: Eliciting prior distributions for rare disease clinical trials
DESCRIPTION:Are you a rare disease methodologist\, investigator or trainee? Join RareKids-CAN and speaker Arlene Jiang for a Rare Methods Workshop on expert elicitation in rare disease research on March 11. \nLearn what expert elicitation is\, how it can support rare disease clinical design and how expert input can be used to construct a prior distribution.
URL:https://canadianrdn.ca/event/rarekids-can-rare-methods-workshop-series-eliciting-prior-distributions-for-rare-disease-clinical-trials/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770730225814.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260304T110000
DTEND;TZID=America/Edmonton:20260304T123000
DTSTAMP:20260409T080254
CREATED:20260126T210847Z
LAST-MODIFIED:20260126T210847Z
UID:9656-1772622000-1772627400@canadianrdn.ca
SUMMARY:Stem Cell Network: Clinical Translation in Cell and Gene Therapy
DESCRIPTION:Stem Cell Network and BioCanRx are pleased to present this webinar on clinical translation\, offering trainees\, early-career investigators\, and researchers a high-level introduction to how cell and gene therapies (including regenerative medicine and cancer biotherapeutics) move from the lab to clinical trials.
URL:https://canadianrdn.ca/event/stem-cell-network-clinical-translation-in-cell-and-gene-therapy/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768827404847.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260219T130000
DTEND;TZID=America/Edmonton:20260219T143000
DTSTAMP:20260409T080254
CREATED:20260212T210210Z
LAST-MODIFIED:20260212T210210Z
UID:9794-1771506000-1771511400@canadianrdn.ca
SUMMARY:Canada's Drug Agency: How Global Policy Changes Are Reshaping HTA for Rare Diseases
DESCRIPTION:HTAi’s Rare Disease Interest Group will celebrate 2026 Rare Disease Day with a conversation on how global policy changes are reshaping HTA processes for rare disease technologies. The webinar aims to update the global HTA community on recent advances in rare disease policy\, particularly following the adoption of the World Health Assembly (WHA) Resolution on Rare Diseases\, and to explore its implications for HTA systems globally. The multi-stakeholder expert panel will discuss how global policy commitments can translate into meaningful regional\, national\, and local action within HTA. This event is the inaugural webinar in a year-long webinar series\, catalyzing discussions on how legislative changes in health systems are reshaping HTA for rare diseases through regional real-world case studies and examples.
URL:https://canadianrdn.ca/event/canadas-drug-agency-how-global-policy-changes-are-reshaping-hta-for-rare-diseases/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/02/CDA-HTI.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260210T170000
DTEND;TZID=America/Edmonton:20260210T183000
DTSTAMP:20260409T080254
CREATED:20260105T200202Z
LAST-MODIFIED:20260105T200202Z
UID:9588-1770742800-1770748200@canadianrdn.ca
SUMMARY:RealiseD Webinar 4: Enhancing patient-centricity in Rare Disease Clinical Trials
DESCRIPTION:The final webinar focuses on what truly matters: the patient. Rare disease trials often struggle to capture outcomes that reflect patient priorities but RealiseD is working to change that. Rudradev Sengupta\, Senior Trial Design Lead at One2Treat\, will present an approach that embeds patient voices into every stage of trial design and analysis. By using hierarchical endpoints and net treatment benefit\, this framework balances benefits and risks in alignment with patient preferences\, enabling transparent discussions among stakeholders and ensuring that success is defined by what matters most to patients. This is a vital conversation for anyone committed to making clinical research more humane and impactful.
URL:https://canadianrdn.ca/event/realised-webinar-4-enhancing-patient-centricity-in-rare-disease-clinical-trials/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Coming-Soon.-5-800x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Lisbon:20260210T080000
DTEND;TZID=Europe/Lisbon:20260212T170000
DTSTAMP:20260409T080254
CREATED:20250812T193701Z
LAST-MODIFIED:20250812T193701Z
UID:8705-1770710400-1770915600@canadianrdn.ca
SUMMARY:8th TREAT-NMD® International Conference – Lisbon\, 2026
DESCRIPTION:Join TREAT-NMD at this vital\, in-person gathering where patients\, clinicians\, researchers\, industry\, and regulators come together to tackle the biggest challenges in neuromuscular treatment development\, diagnosis and care. Topics will include; disrupted clinical trial delivery\, regulatory uncertainty\, global access inequalities and shrinking public funding\, they’ll tackle these themes with a holistic\, solutions-driven approach and a patient centric and global focus.
URL:https://canadianrdn.ca/event/8th-treat-nmd-international-conference-lisbon-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/town-5621642_1280-702x526-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260204T150000
DTEND;TZID=America/Edmonton:20260204T160000
DTSTAMP:20260409T080254
CREATED:20260126T210046Z
LAST-MODIFIED:20260126T210046Z
UID:9647-1770217200-1770220800@canadianrdn.ca
SUMMARY:RareKids-CAN- From Evidence to Access: Advancing Pediatric Rare Disease Drug Availability in Canada
DESCRIPTION:Join RareKids-CAN for an in-depth discussion on the evolving role of health technology assessment and reimbursement policy in improving access to pediatric rare disease care.
URL:https://canadianrdn.ca/event/rarekids-can-from-evidence-to-access-advancing-pediatric-rare-disease-drug-availability-in-canada/
CATEGORIES:Clinical Trials,Industry,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768928212783.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260203T170000
DTEND;TZID=America/Edmonton:20260203T183000
DTSTAMP:20260409T080254
CREATED:20260105T200023Z
LAST-MODIFIED:20260105T200023Z
UID:9585-1770138000-1770143400@canadianrdn.ca
SUMMARY:RealiseD Webinar 3: Single arm\, RCT or something in between – how to enrich clinical trial design and analysis in rare diseases
DESCRIPTION:Single-arm trials remain a cornerstone of rare disease research\, but their limitations and complexities cannot be ignored. In the third webinar\, experts Yulia Dyachkova (Merck Healthcare)\, Jenny Devenport (Roche)\, Cornelia Dunger-Baldauf (Novartis) abd Guillaume Canaud will lead a deep dive into the evolving role of SATs in drug development. The discussion will cover regulatory and HTA perspectives\, review case studies of success and failure\, and explore advanced statistical methods designed to optimise trial design. This session is not just about understanding the current landscape—it is about shaping the future of evidence generation for rare and ultra-rare diseases.
URL:https://canadianrdn.ca/event/realised-webinar-3-single-arm-rct-or-something-in-between-how-to-enrich-clinical-trial-design-and-analysis-in-rare-diseases/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/RealiseD-Visuals-Webinars-2026-800x450-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260131T110000
DTEND;TZID=America/Edmonton:20260131T123000
DTSTAMP:20260409T080254
CREATED:20260105T200351Z
LAST-MODIFIED:20260105T200351Z
UID:9591-1769857200-1769862600@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario (SCAGO) Learning for Life - Clinical Trials 101 What Every Patient Should Know Before Enrolling
DESCRIPTION:Considering a clinical trial? Join SCAGO for an informative virtual session designed to help patients and caregivers understand the process\, benefits\, and important considerations before enrolling.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-scago-learning-for-life-clinical-trials-101-what-every-patient-should-know-before-enrolling/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767591298846.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260129T180000
DTEND;TZID=America/Toronto:20260129T183000
DTSTAMP:20260409T080254
CREATED:20260101T230358Z
LAST-MODIFIED:20260105T020158Z
UID:9488-1769709600-1769711400@canadianrdn.ca
SUMMARY:CATALIS-Clinical Research 101: Webinar 2
DESCRIPTION:Webinar 2 on January 29\, 2026 from 6 pm to 6:30 pm
URL:https://canadianrdn.ca/event/catalis-clinical-research-10-webinar-2/
CATEGORIES:Clinical Trials,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1766424512558-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260128T140000
DTEND;TZID=America/Toronto:20260128T153000
DTSTAMP:20260409T080254
CREATED:20260113T164448Z
LAST-MODIFIED:20260113T164448Z
UID:9608-1769608800-1769614200@canadianrdn.ca
SUMMARY:Canada's Drug Agency-Preconsultation Webinar: Improvements to the Drug Reimbursement Review Process
DESCRIPTION:Join CDA’s preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process. \nYou will hear from their senior leaders how these plans will advance our efforts to modernize and streamline drug reimbursement reviews.
URL:https://canadianrdn.ca/event/canadas-drug-agency-preconsultation-webinar-improvements-to-the-drug-reimbursement-review-process/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/CDA-Drug.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260122T180000
DTEND;TZID=America/Toronto:20260122T183000
DTSTAMP:20260409T080254
CREATED:20260101T230159Z
LAST-MODIFIED:20260105T020205Z
UID:9485-1769104800-1769106600@canadianrdn.ca
SUMMARY:CATALIS-Clinical Research 101: Webinar 1
DESCRIPTION:Webinar 1 on January 22\, 2026 from 6 pm to 6:30 pm
URL:https://canadianrdn.ca/event/catalis-clinical-research-10-webinar-1/
CATEGORIES:Clinical Trials,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1766424512558.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260122T080000
DTEND;TZID=America/Edmonton:20260122T090000
DTSTAMP:20260409T080254
CREATED:20260101T225614Z
LAST-MODIFIED:20260101T225614Z
UID:9479-1769068800-1769072400@canadianrdn.ca
SUMMARY:CMT episode 3: Bioarkers and outcome measures for clinical trial readiness in CMT
DESCRIPTION:Delivered by Prof. Mary Reilly (University College London\, Department of Neuromuscular Diseases\, UK)\, Thu 22 Jan 2026 at 17:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.
URL:https://canadianrdn.ca/event/cmt-episode-3-bioarkers-and-outcome-measures-for-clinical-trial-readiness-in-cmt/
CATEGORIES:Clinical Trials,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Biomarkers-and-outcomes-measures-for-clinical-trial_2201.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260120T170000
DTEND;TZID=America/Edmonton:20260120T183000
DTSTAMP:20260409T080254
CREATED:20260105T195814Z
LAST-MODIFIED:20260105T195814Z
UID:9582-1768928400-1768933800@canadianrdn.ca
SUMMARY:RealiseD Webinar 2: Evidence Assessment Framework. A need to change mindset from developers\, regulators and HTA
DESCRIPTION:The second webinar turns the spotlight on one of the most critical issues in rare disease research: the generation and assessment of evidence. François Meyer\, a leading consultant in health technology assessment\, will examine why current frameworks often fail to deliver predictable and aligned outcomes\, resulting in delays and inequalities in patient access. The session will explore the global and European initiatives aimed at addressing these shortcomings and present the RealiseD consortium’s efforts to advance scientific and operational solutions. More importantly\, it will advocate for a fundamental shift in mindset—one that embraces flexibility and innovation in the way evidence is generated\, interpreted\, and assessed.
URL:https://canadianrdn.ca/event/realised-webinar-2-evidence-assessment-framework-a-need-to-change-mindset-from-developers-regulators-and-hta/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/images.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260113T170000
DTEND;TZID=America/Edmonton:20260113T183000
DTSTAMP:20260409T080254
CREATED:20260105T195201Z
LAST-MODIFIED:20260105T200439Z
UID:9578-1768323600-1768329000@canadianrdn.ca
SUMMARY:RealiseD Webinar 1: Realising Clinical trials in Ultra-Rare diseases
DESCRIPTION:Join RealiseD’s first webinar to learn how RealiseD is pioneering a collaborative and comprehensive approach to clinical trials in ultra-rare diseases. During the webinar\, they’ll walk you through the project’s objectives\, structure\, and methodologies—and show how you can be part of this transformative journey.
URL:https://canadianrdn.ca/event/realised-realising-clinical-trials-in-ultra-rare-diseases/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1765887061354.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251217T120000
DTEND;TZID=America/Toronto:20251217T140000
DTSTAMP:20260409T080254
CREATED:20251126T192615Z
LAST-MODIFIED:20251126T192615Z
UID:9198-1765972800-1765980000@canadianrdn.ca
SUMMARY:Webinar: Lymphodepletion for CAR-T/IEC Outcomes
DESCRIPTION:Achieving consistent and effective outcomes in CAR T and other immune effector cell (IEC) therapies relies heavily on getting lymphodepletion “right.” Emerging evidence shows that both under- and over-exposure can impact safety\, efficacy\, and long-term persistence\, making optimized dosing strategies increasingly critical as the field evolves. \nThis webinar will explore how model-informed and data-driven approaches can help identify the optimal lymphodepletion exposure window\, improve predictability\, and support more standardized practices across patient populations and treatment centers. Speakers will discuss current challenges\, scientific rationale\, clinical insights\, and practical considerations for implementation.
URL:https://canadianrdn.ca/event/webinar-lymphodepletion-for-car-t-iec-outcomes/
CATEGORIES:Clinical Trials,International,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251211T173000
DTEND;TZID=America/Edmonton:20251211T183000
DTSTAMP:20260409T080254
CREATED:20251126T193637Z
LAST-MODIFIED:20251126T193637Z
UID:9207-1765474200-1765477800@canadianrdn.ca
SUMMARY:Every Relapse Matters: The Evolving NMOSD & MOGAD Treatment Landscape in Canada
DESCRIPTION:The Sumaira Foundation Canada is pleased to invite you to an important educational webinar on Thursday\, December 11th at 7:30 PM EST. This session will explore the evolving treatment options for individuals living with AQP4+ NMOSD\, seronegative NMOSD\, and MOGAD in Canada.
URL:https://canadianrdn.ca/event/every-relapse-matters-the-evolving-nmosd-mogad-treatment-landscape-in-canada/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251209T080000
DTEND;TZID=America/Edmonton:20251210T170000
DTSTAMP:20260409T080254
CREATED:20250902T192732Z
LAST-MODIFIED:20250902T192732Z
UID:8848-1765267200-1765386000@canadianrdn.ca
SUMMARY:2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases
DESCRIPTION:This second edition will convene a wide range of international experts\, including researchers\, clinicians\, patient advocates\, industry representatives\, policymakers\, and funders to strengthen the collaborative ecosystem that underpins clinical research in rare diseases worldwide.
URL:https://canadianrdn.ca/event/2nd-international-conference-on-clinical-research-networks-crns-for-rare-diseases/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T080000
DTEND;TZID=America/New_York:20251119T170000
DTSTAMP:20260409T080254
CREATED:20241218T230757Z
LAST-MODIFIED:20251027T201716Z
UID:7283-1763452800-1763571600@canadianrdn.ca
SUMMARY:2025 IMPaCT Summit
DESCRIPTION:
URL:https://canadianrdn.ca/event/2025-impact-summit-save-the-date/
CATEGORIES:Clinical Trials,Conferences,Industry,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Zurich:20251118T080000
DTEND;TZID=Europe/Zurich:20251118T170000
DTSTAMP:20260409T080254
CREATED:20250812T193902Z
LAST-MODIFIED:20250812T193902Z
UID:8708-1763452800-1763485200@canadianrdn.ca
SUMMARY:ITINERARE Symposium 2025
DESCRIPTION:The programme features experts from a variety of fields\, ranging from basic and translational research to clinical application and the ethical\, social and legal aspects of rare disease research.
URL:https://canadianrdn.ca/event/itinerare-symposium-2025/
CATEGORIES:Clinical Trials,Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/Pic-webpage.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251029T090000
DTEND;TZID=America/Edmonton:20251029T100000
DTSTAMP:20260409T080254
CREATED:20251024T184502Z
LAST-MODIFIED:20251024T184502Z
UID:9090-1761728400-1761732000@canadianrdn.ca
SUMMARY:Easing Pain\, Advancing Care: A New Pathway for Children with Severe Neurological Impairments
DESCRIPTION:This webinar will provide an overview of the multi-phased project\, from clinical trial to implementation. It will highlight the clinical complexity of assessing pain and irritability; the project’s relevance and impact for clinicians\, children with health complexity\, and their families; as well as key lessons for patient-oriented research and implementation science.
URL:https://canadianrdn.ca/event/easing-pain-advancing-care-a-new-pathway-for-children-with-severe-neurological-impairments/
CATEGORIES:Caregiver,Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251029T080000
DTEND;TZID=America/Toronto:20251031T170000
DTSTAMP:20260409T080254
CREATED:20250902T192527Z
LAST-MODIFIED:20250902T192527Z
UID:8845-1761724800-1761930000@canadianrdn.ca
SUMMARY:Cardiac Precision Medicine in the 21st Century
DESCRIPTION:The 10th International Cardiovascular Genomic Medicine & SickKids Cardiac Precision Medicine Conference is making its debut in North America! This year’s theme\, “Cardiac Precision Medicine in the 21st Century\,” delves into cardiovascular genomics and precision medicine in the era of ‘Omics’\, AI and digital medicine. Join us as we bring together international experts and innovators to explore transformative research and collaborative opportunities that can shape the future of cardiovascular medicine. \nThis event will feature the 4th William Harvey Oration delivered by Dr. Sharlene Day and the Dr. Michael Braudo Lectureship delivered by Dr. Ma’n H. Zawati.
URL:https://canadianrdn.ca/event/cardiac-precision-medicine-in-the-21st-century/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20251027T080000
DTEND;TZID=Europe/Amsterdam:20251029T170000
DTSTAMP:20260409T080254
CREATED:20250618T150752Z
LAST-MODIFIED:20250618T150752Z
UID:8460-1761552000-1761757200@canadianrdn.ca
SUMMARY:The World Orphan Drug Congress
DESCRIPTION:The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe. \nFrom cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/the-world-orphan-drug-congress/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20251007T080000
DTEND;TZID=Europe/Vienna:20251011T170000
DTSTAMP:20260409T080254
CREATED:20250812T195000Z
LAST-MODIFIED:20250812T195000Z
UID:8721-1759824000-1760202000@canadianrdn.ca
SUMMARY:30th Annual International Congress of the World Muscle Society
DESCRIPTION:The World Muscle Society is a dynamic community that aims to promote\, disseminate\, and share all aspects of neuromuscular physiology and diseases\, from basic science to patient care. It encompasses a broad range of scientists and healthcare professionals who share the common interest for neuromuscular disorders.
URL:https://canadianrdn.ca/event/30th-annual-international-congress-of-the-world-muscle-society/
CATEGORIES:Caregiver,Clinical Trials,Conferences,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251005T080000
DTEND;TZID=America/Edmonton:20251008T170000
DTSTAMP:20260409T080254
CREATED:20250520T192119Z
LAST-MODIFIED:20250520T192119Z
UID:8301-1759651200-1759942800@canadianrdn.ca
SUMMARY:CAGC & CCMG Joint Conference
DESCRIPTION:The CAGC & CCMG Joint Conference will be a unique gathering of medical and laboratory geneticists and genetic counsellors with diverse expertise\, all sharing a common interest in education and advocating for best practices in clinical and laboratory genetics. Through presentations\, workshops\, breakout sessions\, abstract sessions\, and engagement with industry partners\, the event propels forward clinical practice\, scientific advancements\, and excellence across all aspects of genetics in Canada.
URL:https://canadianrdn.ca/event/cagc-ccmg-joint-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251001T130000
DTEND;TZID=America/Toronto:20251001T160000
DTSTAMP:20260409T080254
CREATED:20250916T185043Z
LAST-MODIFIED:20250916T185043Z
UID:8900-1759323600-1759334400@canadianrdn.ca
SUMMARY:Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing capabilities in Canada
DESCRIPTION:The Stem Cell Network (SCN) and the National Research Council Canada (NRC) are excited to contribute to the national conversation on cell and gene therapy for rare diseases. Building on the 2024 event titled “Canadian Rare Disease Ecosystem Symposium: Genetic Therapies for Rare Disease”\, SCN and NRC are pleased to invite you to the Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing Capabilities in Canada–a focused half-day event dedicated to advancing gene and cell therapy development in Canada through regulatory alignment and manufacturing readiness. \nThis virtual symposium will convene international regulatory authorities\, Canadian manufacturing experts\, and rare disease developers to explore two critical enablers of translational success: clinical trial readiness and cGMP manufacturing capacity.
URL:https://canadianrdn.ca/event/canadian-rare-disease-symposium-preparing-for-clinical-trials-international-regulatory-insights-and-cgmp-gene-therapy-manufacturing-capabilities-in-canada/
CATEGORIES:Caregiver,Clinical Trials,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250925T080000
DTEND;TZID=America/Edmonton:20250927T170000
DTSTAMP:20260409T080254
CREATED:20250812T195243Z
LAST-MODIFIED:20250812T195243Z
UID:8724-1758787200-1758992400@canadianrdn.ca
SUMMARY:6th Western Canadian Neuromuscular Conference
DESCRIPTION:The 6th Western Canadian Neuromuscular\nConference is confirmed for 2026! Don’t miss\nthe opportunity to network with leading experts\nand stay at the forefront of medical\nadvancements in the field of neuromuscular\ndiseases.
URL:https://canadianrdn.ca/event/6th-western-canadian-neuromuscular-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
END:VCALENDAR