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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Edmonton:20260917T090000
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UID:11618-1789635600-1789639200@canadianrdn.ca
SUMMARY:IMPaCT Webinar: European Pediatric Clinical Trial Networks and Infrastructure: Partnership and Funding Opportunities
DESCRIPTION:The webinar will explore the landscape of pediatric trial networks in Europe\, the Horizon Europe PRISM Clinical Trial Call\, and practical lessons for developing and leading Horizon Europe consortium applications. \nMICYRN Scientific Director\, Thierry Lacaze-Masmonteil\, MD\, PhD\, will moderate a panel to discuss pathways for Canadian participation in European trial teams\, funding strategies and approaches to building strong international research partnerships.
URL:https://canadianrdn.ca/event/impact-webinar-european-pediatric-clinical-trial-networks-and-infrastructure-partnership-and-funding-opportunities/
CATEGORIES:Clinical Trials,Industry,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788539310832.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20260924T080000
DTEND;TZID=America/Vancouver:20260926T170000
DTSTAMP:20260624T183648Z
CREATED:20260624T183634Z
LAST-MODIFIED:20260624T183648Z
UID:11096-1790236800-1790442000@canadianrdn.ca
SUMMARY:Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions
DESCRIPTION:🔬 Thursday\, September 24\nCPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals\, researchers\, and invited network members. \n🩺 Friday\, September 25\nScientific Sessions — a full day dedicated to the latest PH research\, clinical advancements\, and collaboration among healthcare professionals and researchers. The day concludes with the Patient & Family Symposium Welcome Reception\, where the entire PH community comes together. \n💜 Saturday\, September 26\nPatient & Family Symposium — designed specifically for PH patients\, caregivers\, family members\, and supporters. A day of education\, inspiration\, connection\, and community.
URL:https://canadianrdn.ca/event/pulmonary-hypertension-association-canadas-ph-community-conference-scientific-sessions/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1780531229165.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260925T050000
DTEND;TZID=America/Edmonton:20260925T060000
DTSTAMP:20260922T164008Z
CREATED:20260922T164008Z
LAST-MODIFIED:20260922T164008Z
UID:11625-1790312400-1790316000@canadianrdn.ca
SUMMARY:ERDERA:Diagnostic Research Workstream – Session 2: Data Sharing\, Data Management & Ethics
DESCRIPTION:This webinar gives an overview of the ERDERA Diagnostic Research Workstream’s data sharing framework\, covering the Data Sharing Framework Agreement\, ethical/governance requirements\, and the data submission process via GPAP/Phenostore and RD3. Intended for researchers\, clinicians\, data managers\, ERN and National Mirror Group members involved in or interested in ERDERA diagnostic research.
URL:https://canadianrdn.ca/event/erderadiagnostic-research-workstream-session-2-data-sharing-data-management-ethics/
CATEGORIES:Clinical Trials,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/ERDERA-trainings-template-6-1024x724-1.png
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260925T080000
DTEND;TZID=America/Edmonton:20260925T170000
DTSTAMP:20260831T190905Z
CREATED:20260831T190559Z
LAST-MODIFIED:20260831T190905Z
UID:11562-1790323200-1790355600@canadianrdn.ca
SUMMARY:2026 NMD4C Annual Meeting
DESCRIPTION:Join NMD4C for a full day of dynamic discussions\, research updates\, and networking opportunities—just ahead of the 6th Western Canadian Neuromuscular Conference (WCNMC 2026). The agenda will feature a brief network update\, trainee and early‑career recognitions\, flash talks\, a health economics research showcase\, and the following cross‑disciplinary and parallel clinical / pre‑clinical discussion sessions
URL:https://canadianrdn.ca/event/2026-nmd4c-annual-meeting/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/08/2026-NMD4C-AM-Banner.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260929T080000
DTEND;TZID=Europe/Paris:20261002T170000
DTSTAMP:20250812T194434Z
CREATED:20250812T194434Z
LAST-MODIFIED:20250812T194434Z
UID:8714-1790668800-1790960400@canadianrdn.ca
SUMMARY:17th International Symposium on Sjögren's Disease
DESCRIPTION:This prestigious event\, which brings together researchers\, physicians\, patients and experts from around the world to discuss the latest advancements in Sjögren’s disease.
URL:https://canadianrdn.ca/event/17th-international-symposium-on-sjogrens-disease/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260930T050000
DTEND;TZID=America/Edmonton:20260930T060000
DTSTAMP:20260922T164137Z
CREATED:20260922T164137Z
LAST-MODIFIED:20260922T164137Z
UID:11628-1790744400-1790748000@canadianrdn.ca
SUMMARY:ERDERA: Regulatory Insights of Advanced Therapies Research & Development
DESCRIPTION:This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements\, supporting responsible research and smooth clinical translation. Particular attention will be given to genome editing and paediatric research\, two areas that raise specific regulatory considerations within the ATMP field.
URL:https://canadianrdn.ca/event/erdera-regulatory-insights-of-advanced-therapies-research-development/
CATEGORIES:Clinical Trials,Healthcare,Industry,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/ERDERA-trainings-template-7.png
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