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X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260706T070000
DTEND;TZID=America/Edmonton:20260706T090000
DTSTAMP:20260704T234158Z
CREATED:20260702T193008Z
LAST-MODIFIED:20260704T234158Z
UID:11234-1783321200-1783328400@canadianrdn.ca
SUMMARY:ERDERA Clinical Trial Call 2026: Information Webinar
DESCRIPTION:ERDERA will host an informational webinar on 6 July 2026. During this session\, participants will have the opportunity to hear directly from ERDERA experts\, who will present the objectives\, scope\, and requirements of the call\, and address questions from prospective applicants.
URL:https://canadianrdn.ca/event/erdera-clinical-trial-call-information-webinar/
CATEGORIES:Clinical Trials,Healthcare,International,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/1782917672328.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260707T100000
DTEND;TZID=America/Toronto:20260707T110000
DTSTAMP:20260704T234131Z
CREATED:20260702T193159Z
LAST-MODIFIED:20260704T234131Z
UID:11237-1783418400-1783422000@canadianrdn.ca
SUMMARY:CIHR: Information Webinar for Canadian applicants to the ERDERA Clinical Trial Call 2026
DESCRIPTION:CIHR is hosting an information session to provide interested Canadian applicants with information on the requirements of the “ERDERA Clinical Trial Call 2026 (ECTC 2026)” funding opportunity and to answer questions on how to apply.
URL:https://canadianrdn.ca/event/webinar-for-canadian-applicants-to-the-erdera-clinical-trial-call-2026/
CATEGORIES:Clinical Trials,Healthcare,International,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/leaf-cihr-colour-en.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260709T080000
DTEND;TZID=America/Chicago:20260712T170000
DTSTAMP:20260702T193713Z
CREATED:20260702T160937Z
LAST-MODIFIED:20260702T193713Z
UID:11184-1783584000-1783875600@canadianrdn.ca
SUMMARY:Dysautonomia International: Piece by Piece: Building the Future of Dysautonomia Care
DESCRIPTION:Join Dysautonomia International in Houston\, Texas\, July 9–12\, 2026 for the 14th Annual Dysautonomia International Conference\, the world’s largest conference on autonomic disorders.
URL:https://canadianrdn.ca/event/dysautonomia-international-piece-by-piece-building-the-future-of-dysautonomia-care/
CATEGORIES:Caregiver,Clinical Trials,Conferences,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/07/0f3cee_e678110a0114498d980b68032a779feemv2.png
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260709T120000
DTEND;TZID=America/Toronto:20260709T130000
DTSTAMP:20260702T193538Z
CREATED:20260624T182155Z
LAST-MODIFIED:20260702T193538Z
UID:11076-1783598400-1783602000@canadianrdn.ca
SUMMARY:IMPaCT Webinar: Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials
DESCRIPTION:Register today for IMPaCT’s next webinar with Ami Baba\, PhD\, where she’ll discuss Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials. \n✅ Identify who needs trial reporting guidelines\n✅ Introduce pediatric-specific reporting guideline extensions for trials and systematic reviews\n✅ Describe how SPIRIT-C\, CONSORT-C\, TIDieR-C\, and PRISMA-C can impact both upstream and downstream research processes
URL:https://canadianrdn.ca/event/impact-webinar-responsible-research-practices-how-reporting-guidelines-can-improve-child-health-trials/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781796311513.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260722T120000
DTEND;TZID=America/Toronto:20260722T130000
DTSTAMP:20260702T193457Z
CREATED:20260624T182608Z
LAST-MODIFIED:20260702T193457Z
UID:11082-1784721600-1784725200@canadianrdn.ca
SUMMARY:RareKids-CAN: Delivering Gene Therapy Trials: Understanding Clinical Workflows\, Operations\, and the Patient Journey
DESCRIPTION:Join RareKid-CAN on July 22nd for their second webinar in our ATMP series for research coordinators\, nurses\, pharmacists\, investigators\, and other clinical research professionals. \nTheir speaker Ana Stosic will provide a practical overview of the clinical workflows involved in delivering gene therapy clinical trials for pediatric rare diseases.
URL:https://canadianrdn.ca/event/rarekids-can-delivering-gene-therapy-trials-understanding-clinical-workflows-operations-and-the-patient-journey/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1782308336701.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260722T120000
DTEND;TZID=America/Toronto:20260722T130000
DTSTAMP:20260704T234500Z
CREATED:20260704T233339Z
LAST-MODIFIED:20260704T234500Z
UID:11337-1784721600-1784725200@canadianrdn.ca
SUMMARY:Health Canada Webinar: Real-World Evidence in the National Strategy for Drugs for Rare Diseases
DESCRIPTION:This session is designed to provide you with a clear understanding of the goals\, an update on progress\, and the next steps as planning advances. It will include a short presentation from Health Canada followed by a Question & Answer session.
URL:https://canadianrdn.ca/event/health-canada-real-world-evidence-in-the-national-strategy-for-drugs-for-rare-diseases-webinar/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/health_canada_logo.jpg
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