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X-WR-CALNAME:Canadian Rare Disease Network
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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Los_Angeles:20260504T080000
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DTSTAMP:20260609T155033
CREATED:20260501T145820Z
LAST-MODIFIED:20260501T145820Z
UID:10623-1777881600-1778259600@canadianrdn.ca
SUMMARY:Ehlers-Danlos Society:  Biobank Research Event
DESCRIPTION:This initiative supports research into the different types of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) by collecting biological samples and health information from people with and without these conditions. ⁠
URL:https://canadianrdn.ca/event/ehlers-danlos-society-biobank-research-event/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1776617703438.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20260512T080000
DTEND;TZID=Europe/Brussels:20260513T170000
DTSTAMP:20260609T155033
CREATED:20260126T212140Z
LAST-MODIFIED:20260126T212140Z
UID:9668-1778572800-1778691600@canadianrdn.ca
SUMMARY:International Drug Repurposing Conference 2026
DESCRIPTION:Join the leading international drug repurposing conference to explore the future of patient-centric medicines repurposing.\nFrom rare diseases and AI-driven drug discovery\, to policy\, funding and community-led success stories\, iDR26 brings together the global drug repurposing community to navigate the next chapter in maximising patient benefit.
URL:https://canadianrdn.ca/event/international-drug-repurposing-conference-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260515T100000
DTEND;TZID=America/Edmonton:20260515T110000
DTSTAMP:20260609T155033
CREATED:20260508T140938Z
LAST-MODIFIED:20260508T140938Z
UID:10644-1778839200-1778842800@canadianrdn.ca
SUMMARY:ALS Canada: ALS Clinical Trials Unboxed
DESCRIPTION:On Friday\, May 15\, 2026 at 12 p.m. ET\, join ALS Canada for our next ALS Clinical Trials Unboxed webinar to learn more about ongoing ALS clinical trials.
URL:https://canadianrdn.ca/event/als-canada-als-clinical-trials-unboxed/
CATEGORIES:Clinical Trials,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1778176822111.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260519T100000
DTEND;TZID=America/Edmonton:20260519T110000
DTSTAMP:20260609T155033
CREATED:20260501T145155Z
LAST-MODIFIED:20260501T145155Z
UID:10614-1779184800-1779188400@canadianrdn.ca
SUMMARY:RQMO: Le grand pouvoir des petites populations
DESCRIPTION:6e épisode de la série de webinaires RARE.QC-RQMO présenté par Simon Girard\, Ph.D\, Professeur en génétique humaine\, Université du Québec à Chicoutimi et un de ses étudiants au doctorat en biologie\, M. Gilles-Philippe Morin. \nLe titre de la présentation de M. Morin est : Déceler la structure fine de population du Saguenay–Lac-Saint-Jean par la génétique et la généalogie. \nModération : Jonathan Pratt\, Directeur général du RQMO
URL:https://canadianrdn.ca/event/rqmo-le-grand-pouvoir-des-petites-populations/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1777574069811.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260520T100000
DTEND;TZID=America/Edmonton:20260520T113000
DTSTAMP:20260609T155033
CREATED:20260501T145341Z
LAST-MODIFIED:20260501T145341Z
UID:10617-1779271200-1779276600@canadianrdn.ca
SUMMARY:Rare Diseases International: A Catalyst for Global Health Transformation
DESCRIPTION:Bringing together policymakers\, patient advocates\, industry leaders\, researchers\, and global health institutions\, the event will explore how rare diseases can drive people-centered\, equitable health systems.
URL:https://canadianrdn.ca/event/rare-diseases-international-a-catalyst-for-global-health-transformation/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1777359615421.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260530T090000
DTEND;TZID=America/Edmonton:20260530T223000
DTSTAMP:20260609T155033
CREATED:20260501T145607Z
LAST-MODIFIED:20260501T145607Z
UID:10620-1780131600-1780180200@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario: Learning for Life Webinar
DESCRIPTION:Join SCAGO for an informative virtual session on Novel Therapies in Sickle Cell Disease Pain Management: What Patients and Families Should Know.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-learning-for-life-webinar/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1776347502365.jpg
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