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X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:DAYLIGHT
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BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
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DTSTART:20250330T010000
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260318T180000
DTEND;TZID=America/Edmonton:20260318T190000
DTSTAMP:20260403T134228
CREATED:20260311T225219Z
LAST-MODIFIED:20260311T225219Z
UID:9928-1773856800-1773860400@canadianrdn.ca
SUMMARY:CIHR Café Scientifique: Chronic Pain and Primary Care
DESCRIPTION:Join on Zoom for a free CIHR Café Scientifique! | March 18 @ 6:00 pm MST \nTogether you’ll explore what chronic pain looks like for young people and their families\, how pain can occur across generations\, and why quality care in our communities matters.
URL:https://canadianrdn.ca/event/cihr-cafe-scientifique-chronic-pain-and-primary-care/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1773157132669.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260319T190000
DTEND;TZID=America/Toronto:20260319T200000
DTSTAMP:20260403T134228
CREATED:20260316T133623Z
LAST-MODIFIED:20260316T133623Z
UID:9941-1773946800-1773950400@canadianrdn.ca
SUMMARY:People's Perspectives: Living with Loeys-Dietz Syndrome
DESCRIPTION:For the first time\, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk about LDS from those with lived experience. Join four community members – two from the United States and two from Canada – for this dynamic moderated discussion.
URL:https://canadianrdn.ca/event/peoples-perspectives-living-with-loeys-dietz-syndrome/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1773507672043.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260325T100000
DTEND;TZID=America/Edmonton:20260325T110000
DTSTAMP:20260403T134228
CREATED:20260311T230004Z
LAST-MODIFIED:20260311T230004Z
UID:9937-1774432800-1774436400@canadianrdn.ca
SUMMARY:PiPER Community of Practice: Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience
DESCRIPTION:Save the date on *March 25th 2026*  for a dynamic session entitled “Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience”.
URL:https://canadianrdn.ca/event/piper-community-of-practice-patient-partners-in-learning-health-systems-the-centre-for-digital-health-evaluation-experience/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1772648035669.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260325T100000
DTEND;TZID=America/Edmonton:20260325T120000
DTSTAMP:20260403T134228
CREATED:20260316T133840Z
LAST-MODIFIED:20260316T133840Z
UID:9944-1774432800-1774440000@canadianrdn.ca
SUMMARY:Gene Therapy for IEI: It's Taken Us So Long 'Cause We've Got So Far To Come
DESCRIPTION:Moderated by Dr. Jordan Orange\, this important conversation will explore the progress\, promise\, and future of gene therapy for Inborn Errors of Immunity.
URL:https://canadianrdn.ca/event/gene-therapy-for-iei-its-taken-us-so-long-cause-weve-got-so-far-to-come/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1772805626074.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260409T080000
DTEND;TZID=America/Toronto:20260409T170000
DTSTAMP:20260403T134228
CREATED:20260401T192410Z
LAST-MODIFIED:20260401T192410Z
UID:10067-1775721600-1775754000@canadianrdn.ca
SUMMARY:MitoRevolution Research Symposium and Innovation Day
DESCRIPTION:Researchers\, clinicians\, and trainees working in mitochondrial science are invited to attend the 6th Annual MitoRevolution Research Symposium and Innovation Day\, hosted by their partners Mito2i\, on Thursday\, April 9\, 2026\, at the MaRS Auditorium in Toronto.
URL:https://canadianrdn.ca/event/mitorevolution-research-symposium-and-innovation-day/
CATEGORIES:Caregiver,Clinical Trials,Events,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773856526059-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260409T080000
DTEND;TZID=America/Edmonton:20260410T170000
DTSTAMP:20260403T134228
CREATED:20260401T192545Z
LAST-MODIFIED:20260401T192545Z
UID:10070-1775721600-1775840400@canadianrdn.ca
SUMMARY:Ehlers-Danlos Syndrome (EDS) Research Symposium
DESCRIPTION:The Ehlers-Danlos Syndrome (EDS) Research Symposium is a two-day event\, April 9-10\, designed to bring together clinicians\, researchers\, students\, patients\, and community partners to examine current research\, clinical challenges\, and emerging approaches to the diagnosis and management of the Ehlers-Danlos syndromes.⁠\n⁠
URL:https://canadianrdn.ca/event/ehlers-danlos-syndrome-eds-research-symposium/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774621936518.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260411T080000
DTEND;TZID=America/Edmonton:20260411T170000
DTSTAMP:20260403T134228
CREATED:20260401T192740Z
LAST-MODIFIED:20260401T192740Z
UID:10073-1775894400-1775926800@canadianrdn.ca
SUMMARY:Wilson Disease Association Spring Support Symposium
DESCRIPTION:Join the WDA Spring Support Symposium in Ann Arbor\, Michigan\, on April 11\, 2026\, to hear directly from patients and a caregiver as they share their real-life stories.
URL:https://canadianrdn.ca/event/wilson-disease-association-spring-support-symposium/
CATEGORIES:Caregiver,Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774553166245.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260416T170000
DTEND;TZID=America/Toronto:20260416T180000
DTSTAMP:20260403T134228
CREATED:20260401T193421Z
LAST-MODIFIED:20260401T195449Z
UID:10082-1776358800-1776362400@canadianrdn.ca
SUMMARY:CHILD-BRIGHT Network EDI-DI Youth Empowerment Program Knowledge Mobilization Showcase
DESCRIPTION:Over the past few weeks\, youth from across Canada have come together to explore equity\, diversity\, inclusion\, decolonization\, and Indigenization in brain-based developmental disability research. Now\, they are ready to share what they have created!
URL:https://canadianrdn.ca/event/child-bright-network-edi-di-youth-empowerment-program-knowledge-mobilization-showcase/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774903947681.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260421T190000
DTEND;TZID=America/Toronto:20260421T200000
DTSTAMP:20260403T134228
CREATED:20260401T193125Z
LAST-MODIFIED:20260401T193125Z
UID:10079-1776798000-1776801600@canadianrdn.ca
SUMMARY:Ontario Rare Action Group Information Meeting
DESCRIPTION:Join the Ontario Rare Action Group information meeting April 21\, 2026. They will be talking to you about what they’ve been up to the last month and how the community is continuing to grow.
URL:https://canadianrdn.ca/event/ontario-rare-action-group-information-meeting/
CATEGORIES:Caregiver,Patient Focused,Policy,Provincial,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774982101843.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260423T050000
DTEND;TZID=America/Edmonton:20260423T060000
DTSTAMP:20260403T134228
CREATED:20260401T192204Z
LAST-MODIFIED:20260401T192204Z
UID:10064-1776920400-1776924000@canadianrdn.ca
SUMMARY:Innovative Financing for Rare Diseases
DESCRIPTION:How can innovative financing approaches improve equitable access to diagnosis\, treatment\, and care for people living with rare diseases? \nJoin RDI-International for a new webinar series bringing together health economists\, policymakers\, patient advocates\, and payers. Through a multistakeholder dialogue\, this series will examine key financing gaps and barriers to access\, map these challenges to relevant innovative financing mechanisms\, discuss enabling conditions for implementation\, and inform policy and advocacy actions.
URL:https://canadianrdn.ca/event/innovative-financing-for-rare-diseases/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773674001238.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260429T080000
DTEND;TZID=America/Toronto:20260430T170000
DTSTAMP:20260403T134228
CREATED:20260401T194917Z
LAST-MODIFIED:20260401T195134Z
UID:10092-1777449600-1777568400@canadianrdn.ca
SUMMARY:CORD: Rare Disease Day 2026 Conference
DESCRIPTION:Join CORD for their Annual Rare Disease Day Conference in Toronto!
URL:https://canadianrdn.ca/event/cord-rare-disease-day-2026-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774467258083.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20260512T080000
DTEND;TZID=Europe/Brussels:20260513T170000
DTSTAMP:20260403T134228
CREATED:20260126T212140Z
LAST-MODIFIED:20260126T212140Z
UID:9668-1778572800-1778691600@canadianrdn.ca
SUMMARY:International Drug Repurposing Conference 2026
DESCRIPTION:Join the leading international drug repurposing conference to explore the future of patient-centric medicines repurposing.\nFrom rare diseases and AI-driven drug discovery\, to policy\, funding and community-led success stories\, iDR26 brings together the global drug repurposing community to navigate the next chapter in maximising patient benefit.
URL:https://canadianrdn.ca/event/international-drug-repurposing-conference-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/idr2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260513T073000
DTEND;TZID=America/Toronto:20260513T093000
DTSTAMP:20260403T134228
CREATED:20260401T192911Z
LAST-MODIFIED:20260401T192911Z
UID:10076-1778657400-1778664600@canadianrdn.ca
SUMMARY:Voices for Rare Advocacy Day
DESCRIPTION:A day dedicated to bringing the voices of Ontario’s rare disease community directly to policymakers.
URL:https://canadianrdn.ca/event/voices-for-rare-advocacy-day/
CATEGORIES:Caregiver,Events,Healthcare,In Person,Patient Focused,Policy,Provincial
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1775052370537.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20260522T080000
DTEND;TZID=America/Vancouver:20260523T170000
DTSTAMP:20260403T134228
CREATED:20260401T193919Z
LAST-MODIFIED:20260401T193919Z
UID:10089-1779436800-1779555600@canadianrdn.ca
SUMMARY:4th Heritable Aortic Disorders Symposium
DESCRIPTION:Join the Heritable Aortic Disorders community in Vancouver on May 22–23\, 2026 for an in-person event bringing together experts from across Canada and around the world to discuss the latest developments in the genetics\, diagnosis\, and management of hereditary thoracic aortic disorders. \nDay 1 is designed for healthcare professionals\, with updates on research\, diagnostic protocols\, and clinical management. \nDay 2 is dedicated to patients and families\, featuring presentations and small-group workshops led by local and international experts. \nUBC Robson Square\, Vancouver\, BC
URL:https://canadianrdn.ca/event/4th-heritable-aortic-disorders-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/04/HADLogo_SymposiumEF_4Web-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260531T080000
DTEND;TZID=America/Edmonton:20260602T170000
DTSTAMP:20260403T134228
CREATED:20250827T162014Z
LAST-MODIFIED:20250827T162014Z
UID:8774-1780214400-1780419600@canadianrdn.ca
SUMMARY:2026 Children’s Healthcare Canada Annual Conference\, “Tomorrow’s Promise\, Today’s Plan: Transforming Children’s Healthcare in Canada”
DESCRIPTION:📆Save the date: May 31-June 2
URL:https://canadianrdn.ca/event/2026-childrens-healthcare-canada-annual-conference-tomorrows-promise-todays-plan-transforming-childrens-healthcare-in-canada/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1755522066902.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Prague:20260602T080000
DTEND;TZID=Europe/Prague:20260604T170000
DTSTAMP:20260403T134228
CREATED:20250812T194154Z
LAST-MODIFIED:20250812T194154Z
UID:8711-1780387200-1780592400@canadianrdn.ca
SUMMARY:ECRD: Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases
DESCRIPTION:The ECRD is the largest\, patient-led\, rare disease policy-shaping event held in Europe. \nBy bringing together people with rare diseases and patient advocates\, policy makers\, healthcare industry representatives\, clinicians\, regulators and Member State representatives\, EURORDIS harnesses the power of this extensive network to shape goal-driven rare disease policies of the future.
URL:https://canadianrdn.ca/event/ecrd-rare-diseases-in-a-changing-competitive-europe-shaping-policies-to-address-the-unmet-needs-of-people-living-with-rare-diseases/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260929T080000
DTEND;TZID=Europe/Paris:20261002T170000
DTSTAMP:20260403T134228
CREATED:20250812T194434Z
LAST-MODIFIED:20250812T194434Z
UID:8714-1790668800-1790960400@canadianrdn.ca
SUMMARY:17th International Symposium on Sjögren's Disease
DESCRIPTION:This prestigious event\, which brings together researchers\, physicians\, patients and experts from around the world to discuss the latest advancements in Sjögren’s disease.
URL:https://canadianrdn.ca/event/17th-international-symposium-on-sjogrens-disease/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/images-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261018T080000
DTEND;TZID=America/Edmonton:20261020T170000
DTSTAMP:20260403T134228
CREATED:20251113T224713Z
LAST-MODIFIED:20251113T224713Z
UID:9153-1792310400-1792515600@canadianrdn.ca
SUMMARY:Kids Brain Health Network (KBHN) Annual Conference
DESCRIPTION:Save the Date! \nKids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference\, happening October 18–20\, 2026\, in Calgary\, Alberta!
URL:https://canadianrdn.ca/event/kids-brain-health-network-kbhn-annual-conference/
CATEGORIES:Caregiver,Conferences,In Person,Industry,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/11/subvention-recherche-2024-2025-copy-1-2.png
END:VEVENT
END:VCALENDAR