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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Edmonton:20250917T080000
DTEND;TZID=America/Edmonton:20250919T170000
DTSTAMP:20260403T114906
CREATED:20250722T211003Z
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UID:8587-1758096000-1758301200@canadianrdn.ca
SUMMARY:Canadian Cystic Fibrosis Conference
DESCRIPTION:Join CFC September 17 –19\, 2025 for Cystic Fibrosis Canada’s first Canadian Cystic Fibrosis Conference\, hosted in Calgary\, Alberta.  \nThe conference will spotlight the development of Canadian consensus and national standards for CF care\, explore early implementation strategies\, and highlight hot topics in healthcare and research and knowledge gaps that future research and clinical trials can address.
URL:https://canadianrdn.ca/event/canadian-cystic-fibrosis-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/images.png
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DTSTART;TZID=America/Edmonton:20250918T180000
DTEND;TZID=America/Edmonton:20250918T190000
DTSTAMP:20260403T114906
CREATED:20250916T184602Z
LAST-MODIFIED:20250916T184602Z
UID:8894-1758218400-1758222000@canadianrdn.ca
SUMMARY:EURORDIS Webinar: Patient Partnership 2025 – The Lupus100 Project
DESCRIPTION:The Lupus100 Project\, recognized as a winner of the 2025 Patient Partnership Good Practice Challenge\, highlights the crucial role of patient partnership in improving communication about rare diseases such as lupus.
URL:https://canadianrdn.ca/event/eurordis-webinar-patient-partnership-2025-the-lupus100-project/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1757432391221.jpg
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