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X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260531T080000
DTEND;TZID=America/Edmonton:20260602T170000
DTSTAMP:20260508T191633Z
CREATED:20250827T162014Z
LAST-MODIFIED:20260508T191633Z
UID:8774-1780214400-1780419600@canadianrdn.ca
SUMMARY:2026 Children’s Healthcare Canada Annual Conference\, “Tomorrow’s Promise\, Today’s Plan: Transforming Children’s Healthcare in Canada”
DESCRIPTION:May 31-June 2
URL:https://canadianrdn.ca/event/2026-childrens-healthcare-canada-annual-conference-tomorrows-promise-todays-plan-transforming-childrens-healthcare-in-canada/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Prague:20260602T080000
DTEND;TZID=Europe/Prague:20260604T170000
DTSTAMP:20250812T194154Z
CREATED:20250812T194154Z
LAST-MODIFIED:20250812T194154Z
UID:8711-1780387200-1780592400@canadianrdn.ca
SUMMARY:ECRD: Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases
DESCRIPTION:The ECRD is the largest\, patient-led\, rare disease policy-shaping event held in Europe. \nBy bringing together people with rare diseases and patient advocates\, policy makers\, healthcare industry representatives\, clinicians\, regulators and Member State representatives\, EURORDIS harnesses the power of this extensive network to shape goal-driven rare disease policies of the future.
URL:https://canadianrdn.ca/event/ecrd-rare-diseases-in-a-changing-competitive-europe-shaping-policies-to-address-the-unmet-needs-of-people-living-with-rare-diseases/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,International,Patient Focused,Policy,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260616T143000
DTEND;TZID=America/Edmonton:20260616T153000
DTSTAMP:20260527T155401Z
CREATED:20260527T155401Z
LAST-MODIFIED:20260527T155401Z
UID:10690-1781620200-1781623800@canadianrdn.ca
SUMMARY:PONDA Pop-up-Rare Care: What Care Support looks like for Patients and Families Affected by Rare Disease and Rare Diagnoses
DESCRIPTION:
URL:https://canadianrdn.ca/event/ponda-pop-up-rare-care-what-care-support-looks-like-for-patients-and-families-affected-by-rare-disease-and-rare-diagnoses/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260618T060000
DTEND;TZID=America/Edmonton:20260618T070000
DTSTAMP:20260527T195114Z
CREATED:20260527T160853Z
LAST-MODIFIED:20260527T195114Z
UID:10694-1781762400-1781766000@canadianrdn.ca
SUMMARY:Rare Diseases International-Innovative Models Reshaping Access to Diagnosis\, Treatment and Care - Practical examples and global case studies
DESCRIPTION:Scientific and medical advances in rare diseases continue to accelerate — but equitable access to diagnosis\, treatment\, and care remains out of reach for millions of people living with a rare disease. \nThis webinar offers a practical look at how innovative financing models can help close these gaps. The session will explore a range of financing mechanisms\, including venture philanthropy\, blended finance\, public-private partnerships\, solidarity funds\, and outcome-based models. Through real-world examples\, participants will gain insight into what makes these approaches work\, the conditions needed for success\, and how models can be adapted or combined across different health systems.
URL:https://canadianrdn.ca/event/rare-diseases-internationa-innovative-models-reshaping-access-to-diagnosis-treatment-and-care-practical-examples-and-global-case-studies/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1779876027736-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260618T083000
DTEND;TZID=America/Toronto:20260618T170000
DTSTAMP:20260526T020611Z
CREATED:20260526T020611Z
LAST-MODIFIED:20260526T020611Z
UID:10676-1781771400-1781802000@canadianrdn.ca
SUMMARY:4th Edition of the Sickle Cell Awareness Day Education Conference
DESCRIPTION:The Sickle Cell Disease Association of Canada (SCDAC)\, in partnership with the Interdisciplinary Centre for Black Health (ICBH)\, is bringing the sickle cell community together at the University of Ottawa for a one-day gathering of learning\, collaboration and action. \nThis conference brings together patients\, families\, healthcare professionals\, researchers\, advocates\, educators and caregivers.
URL:https://canadianrdn.ca/event/4th-edition-of-the-sickle-cell-awareness-day-education-conference/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Provincial
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1779405047460.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260626T070000
DTEND;TZID=America/Edmonton:20260626T080000
DTSTAMP:20260624T182340Z
CREATED:20260624T182340Z
LAST-MODIFIED:20260624T182340Z
UID:11079-1782457200-1782460800@canadianrdn.ca
SUMMARY:RARE REV-inar episode 027 - Living with systemic mastocytosis
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-rev-inar-episode-027-living-with-systemic-mastocytosis/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1782115230643.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20260627T130000
DTEND;TZID=America/Halifax:20260627T140000
DTSTAMP:20260702T193734Z
CREATED:20260624T183025Z
LAST-MODIFIED:20260702T193734Z
UID:11088-1782565200-1782568800@canadianrdn.ca
SUMMARY:RareKids-CAN: Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia
DESCRIPTION:Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. \nThese free sessions are designed for families\, caregivers\, and community members interested in learning more about pediatric rare diseases\, the diagnostic journey\, available supports\, patient advocacy resources\, and opportunities to participate in research and clinical trials. \n📍 Multiple Halifax Public Library locations throughout June and August
URL:https://canadianrdn.ca/event/rarekids-can-kids-rare-disorders-awareness-supporting-early-recognition-families-in-nova-scotia/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Provincial
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781261330862.jpg
END:VEVENT
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