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X-WR-CALNAME:Canadian Rare Disease Network
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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Edmonton:20260114T190000
DTEND;TZID=America/Edmonton:20260114T200000
DTSTAMP:20260602T221128
CREATED:20260113T165855Z
LAST-MODIFIED:20260113T165855Z
UID:9617-1768417200-1768420800@canadianrdn.ca
SUMMARY:CanPKU+:  Advocacy in Action Update Sessions
DESCRIPTION:Join the Advocacy in Action Update Sessions with John Adams in order to hear updates on various campaigns and what needs to be done to move things forward for the PKU community.
URL:https://canadianrdn.ca/event/canpku-advocacy-in-action-update-sessions/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260115T053000
DTEND;TZID=America/Edmonton:20260115T063000
DTSTAMP:20260602T221128
CREATED:20260111T210920Z
LAST-MODIFIED:20260111T210920Z
UID:9596-1768455000-1768458600@canadianrdn.ca
SUMMARY:Rare Disease Internation-Moving the WHA Resolution on Rare Diseases Forward: From Promise to Action
DESCRIPTION:Join RDI for this public webinar where they will discuss the current status of the WHA Resolution implementation\, as they approach the World Health Organization Executive Board meeting taking place in February 2026. This webinar will engage in a multistakeholder dialogue focusing on the necessary path forward to accelerate the implementation of the Resolution and importantly the development of the GAPRD. \n 
URL:https://canadianrdn.ca/event/rare-disease-internation-moving-the-wha-resolution-on-rare-diseases-forward-from-promise-to-action/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260118T140000
DTEND;TZID=America/Toronto:20260118T150000
DTSTAMP:20260602T221128
CREATED:20260113T163557Z
LAST-MODIFIED:20260113T163557Z
UID:9602-1768744800-1768748400@canadianrdn.ca
SUMMARY:ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult
DESCRIPTION:Catherine (Catie) Becker is a Pediatric Nurse Practitioner at Massachusetts General Hospital (MGH). Catie received her master’s degree in Pediatric Acute/Chronic Advanced Practice Nursing from the University of Pennsylvania. She has worked in the MGH Leukodystrophy clinic since 2011\, working with a multidisciplinary team caring for both pediatric and adult patients with leukodystrophy.
URL:https://canadianrdn.ca/event/ulf-webinar-the-guardianship-transition-minor-child-to-legal-adult/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Belgrade:20260122T173000
DTEND;TZID=Europe/Belgrade:20260122T183000
DTSTAMP:20260602T221128
CREATED:20260113T170231Z
LAST-MODIFIED:20260113T170231Z
UID:9620-1769103000-1769106600@canadianrdn.ca
SUMMARY:ERN-EuroBloodNet-Session 1: Strong at Any Age – Redefining Frailty Together
DESCRIPTION:EuroBloodNet Topic on Focus: Ageing with a Bleeding Disorder”! \nThis educational program is coordinated by ERN-EuroBloodNet together with the umbrella patient organisation EHC – European Haemophilia Consortium\, represented by ePAG advocate Marius Tanase.
URL:https://canadianrdn.ca/event/ern-eurobloodnet-session-1-strong-at-any-age-redefining-frailty-together/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260122T190000
DTEND;TZID=America/Toronto:20260122T200000
DTSTAMP:20260602T221128
CREATED:20260113T164000Z
LAST-MODIFIED:20260113T164000Z
UID:9605-1769108400-1769112000@canadianrdn.ca
SUMMARY:Healthy Living and Aortopathy
DESCRIPTION:Save the date for your upcoming webinar with Dr. Nathaniel Moulson\, focused on exercise. This webinar will take place on January 22\, 2026 at 7:00pm\, registration details to be released in the coming weeks.
URL:https://canadianrdn.ca/event/healthy-living-and-aortopathy/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260128T120000
DTEND;TZID=America/Toronto:20260128T130000
DTSTAMP:20260602T221128
CREATED:20260113T164735Z
LAST-MODIFIED:20260113T164735Z
UID:9611-1769601600-1769605200@canadianrdn.ca
SUMMARY:PiPER Community of Practice for 2026
DESCRIPTION:Save the date on *January 28th 2026* from 12-1 pm for a dynamic session titled “Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials ”.
URL:https://canadianrdn.ca/event/piper-community-of-practice-for-2026/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260128T140000
DTEND;TZID=America/Toronto:20260128T153000
DTSTAMP:20260602T221128
CREATED:20260113T164448Z
LAST-MODIFIED:20260113T164448Z
UID:9608-1769608800-1769614200@canadianrdn.ca
SUMMARY:Canada's Drug Agency-Preconsultation Webinar: Improvements to the Drug Reimbursement Review Process
DESCRIPTION:Join CDA’s preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process. \nYou will hear from their senior leaders how these plans will advance our efforts to modernize and streamline drug reimbursement reviews.
URL:https://canadianrdn.ca/event/canadas-drug-agency-preconsultation-webinar-improvements-to-the-drug-reimbursement-review-process/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260131T110000
DTEND;TZID=America/Edmonton:20260131T123000
DTSTAMP:20260602T221128
CREATED:20260105T200351Z
LAST-MODIFIED:20260105T200351Z
UID:9591-1769857200-1769862600@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario (SCAGO) Learning for Life - Clinical Trials 101 What Every Patient Should Know Before Enrolling
DESCRIPTION:Considering a clinical trial? Join SCAGO for an informative virtual session designed to help patients and caregivers understand the process\, benefits\, and important considerations before enrolling.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-scago-learning-for-life-clinical-trials-101-what-every-patient-should-know-before-enrolling/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
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