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X-WR-CALDESC:Events for Canadian Rare Disease Network
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UID:7414-1740823200-1740848400@canadianrdn.ca
SUMMARY:RQMO 2025 International Rare Disease Day
DESCRIPTION:To celebrate International Rare Disease Day\, the RQMO is organizing an activity on March 1\, 2025 at the Sandman Hotel located at 999\, rue de Sérigny in Longueuil. \nThe event will take place from 10 a.m. to 3 p.m. and will be followed by a networking cocktail from 3 p.m. to 5 p.m. \nThe activity will be presented in hybrid\, you will have the possibility to attend in person or by zoom. \n 
URL:https://canadianrdn.ca/event/rqmo-2025-international-rare-disease-day/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
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DTSTART;TZID=America/Denver:20250306T130000
DTEND;TZID=America/Denver:20250306T140000
DTSTAMP:20260424T100944
CREATED:20250225T041503Z
LAST-MODIFIED:20250225T041853Z
UID:7563-1741266000-1741269600@canadianrdn.ca
SUMMARY:ALS Clinical Trials Unboxed
DESCRIPTION:Join ALS Canada\, on March 6 at 1:00 pm ET\, for ALS Clinical Trials Unboxed. In this webinar\, Dr. Lauren Kett\, Medical Director of Clinical Development at Amylyx Pharmaceuticals will present on the Phase 1 LUMINA study\, an investigational antisense oligonucleotide (ASO) targeting calpain-2 for the potential treatment of ALS.
URL:https://canadianrdn.ca/event/als-clinical-trials-unboxed-2/
CATEGORIES:Caregiver,Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250327T100000
DTEND;TZID=UTC:20250327T110000
DTSTAMP:20260424T100944
CREATED:20250318T022619Z
LAST-MODIFIED:20250318T022619Z
UID:7711-1743069600-1743073200@canadianrdn.ca
SUMMARY:Dragon Claw Friends Webinar - Breaking Down Barriers – Are Patients Aware of Their Autoimmune Disease Treatment Options?
DESCRIPTION:Despite significant advancements in the treatment of autoimmune diseases\, many patients remain unaware of their options. Social media platforms are filled with stories of people struggling with uncontrolled symptoms—so why aren’t these breakthroughs reaching those who need them most? To explore this issue\, Dragon Claw Charity Australia\, in collaboration with CaPPRe\, has conducted research into the awareness gap among patients with rheumatology\, dermatology\, and gastroenterology-related autoimmune diseases.
URL:https://canadianrdn.ca/event/dragon-claw-friends-webinar-breaking-down-barriers-are-patients-aware-of-their-autoimmune-disease-treatment-options/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1742149835460.jpg
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DTSTART;TZID=America/New_York:20250331T083000
DTEND;TZID=America/New_York:20250331T093000
DTSTAMP:20260424T100944
CREATED:20250326T033117Z
LAST-MODIFIED:20250326T033117Z
UID:7829-1743409800-1743413400@canadianrdn.ca
SUMMARY:Understanding what matters to children and families: The socioeconomic impact of childhood arthritis
DESCRIPTION:This presentation will share findings from the Health Economics research lead by\nDr. Marshall as part of the international UCAN CAN-DU and CURE research program\non childhood arthritis.
URL:https://canadianrdn.ca/event/understanding-what-matters-to-children-and-families-the-socioeconomic-impact-of-childhood-arthritis/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
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