BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Canadian Rare Disease Network - ECPv6.18.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Toronto
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261118T120000
DTEND;TZID=America/Toronto:20261118T140000
DTSTAMP:20261027T162658Z
CREATED:20261027T162658Z
LAST-MODIFIED:20261027T162658Z
UID:11848-1795003200-1795010400@canadianrdn.ca
SUMMARY:HDRN Canada Discussion Session: From IDEA to Action: Three New Tools for Health Data Research
DESCRIPTION:The session will introduce three practical tools developed From HDRN Canada’s IDEA Strategy & Action Plan:\n🔹 Unlearning Club Curriculum — to build foundational IDEA knowledge and connecting it to administrative health data research.\n🔹 IDEA Benchmarking Tool — to help organizations assess current IDEA initiatives and identify opportunities for future action.\n🔹 Core Questions Reflection Tool — to prompt researchers and data administrators to consider IDEA from the earliest stages of project design. \nHear the thinking behind each tool\, how they were developed and how they can be put to work in real-world settings.
URL:https://canadianrdn.ca/event/hdrn-canada-discussion-session-from-idea-to-action-three-new-tools-for-health-data-research/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1792701356267.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261118T190000
DTEND;TZID=America/Toronto:20261118T200000
DTSTAMP:20261027T164427Z
CREATED:20261027T164427Z
LAST-MODIFIED:20261027T164427Z
UID:11866-1795028400-1795032000@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada: Gene Therapy Education Night
DESCRIPTION:Join Defeat Duchenne Canada for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne\, sponsored by REGENXBIO\, Roche Canada\, and Solid Biosciences. Together with patient voices and clinical expertise\, they’ll help translate complex science into clear\, practical information you can use. \n 
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-gene-therapy-education-night/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1792075442229.jpg
END:VEVENT
END:VCALENDAR