BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Canadian Rare Disease Network - ECPv6.18.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Halifax
BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
TZOFFSETTO:-0300
TZNAME:ADT
DTSTART:20250309T060000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0300
TZOFFSETTO:-0400
TZNAME:AST
DTSTART:20251102T050000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
TZOFFSETTO:-0300
TZNAME:ADT
DTSTART:20260308T060000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0300
TZOFFSETTO:-0400
TZNAME:AST
DTSTART:20261101T050000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
TZOFFSETTO:-0300
TZNAME:ADT
DTSTART:20270314T060000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0300
TZOFFSETTO:-0400
TZNAME:AST
DTSTART:20271107T050000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Toronto
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Dublin
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:IST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:IST
DTSTART:20260329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20261025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:IST
DTSTART:20270328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20271031T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20261112T080000
DTEND;TZID=America/Halifax:20261113T170000
DTSTAMP:20261001T190948Z
CREATED:20261001T190948Z
LAST-MODIFIED:20261001T190948Z
UID:11741-1794470400-1794589200@canadianrdn.ca
SUMMARY:CORD Fall Conference 2026
DESCRIPTION:From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey\, Co-Lead Investigator & Policy for the 2026 RareCare Evaluation of England’s Rare Diseases Action Plans.
URL:https://canadianrdn.ca/event/cord-fall-conference-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/lg_SavetheDateFallConference2026-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261112T080000
DTEND;TZID=America/Toronto:20261113T170000
DTSTAMP:20261027T165652Z
CREATED:20261027T165652Z
LAST-MODIFIED:20261027T165652Z
UID:11885-1794470400-1794589200@canadianrdn.ca
SUMMARY:Journées scientifiques du CARES
DESCRIPTION:La CARES vous donne rendez-vous les 12 et 13 novembre 2026\, à Québec\, pour deux journées de rencontres\, de partage et de réflexions autour de la santé en régions rurales et éloignées.
URL:https://canadianrdn.ca/event/journees-scientifiques-du-cares/
CATEGORIES:Conferences,Healthcare,In Person,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/affiche-cares-2026.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261113
DTEND;VALUE=DATE:20261114
DTSTAMP:20261027T162520Z
CREATED:20261027T162520Z
LAST-MODIFIED:20261027T162520Z
UID:11845-1794528000-1794614399@canadianrdn.ca
SUMMARY:Research as Care: Why Rare Diseases Matter for Europe's Future
DESCRIPTION:More than 30 million people across Europe live with a rare disease. This event explores how research and innovation can become the standard of care for all rare diseases — building momentum for a coordinated EU Action Plan\, examining the Biotech Act’s role in strengthening Europe’s innovation base and competitiveness\, and demonstrating what happens when patients are true partners.
URL:https://canadianrdn.ca/event/research-as-care-why-rare-diseases-matter-for-europes-future/
CATEGORIES:Clinical Trials,Events,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Event-Registration.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261113T080000
DTEND;TZID=America/Toronto:20261114T170000
DTSTAMP:20261027T163009Z
CREATED:20261027T163009Z
LAST-MODIFIED:20261027T163009Z
UID:11851-1794556800-1794675600@canadianrdn.ca
SUMMARY:TREAT-NMD and the Muscular Dystrophy Association- LGMD Masterclass
DESCRIPTION:This masterclass is designed for healthcare professionals to support integrated care and includes sessions on diagnosis\, genetic testing\, imaging\, muscle biopsy\, physiotherapy\, cardiac and respiratory management\, clinical trials\, standards of care and patient advocacy. As such\, it may be of interest to neurologists\, paediatricians\, geneticists\, physiotherapists\, rehabilitation specialists\, cardiologists\, specialist nurses\, care coordinators and other allied healthcare professionals involved in the management of LGMD.
URL:https://canadianrdn.ca/event/treat-nmd-and-the-muscular-dystrophy-association-lgmd-masterclass/
CATEGORIES:Clinical Trials,Events,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Website-Banners-13.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261113T080000
DTEND;TZID=America/Toronto:20261114T170000
DTSTAMP:20261027T164655Z
CREATED:20261027T164655Z
LAST-MODIFIED:20261027T164655Z
UID:11869-1794556800-1794675600@canadianrdn.ca
SUMMARY:Canadian Symposium on Lysosomal Diseases
DESCRIPTION:The fourth Canadian Symposium on Lysosomal Diseases focuses on advances in disease mechanisms\, diagnosis\, and management of lysosomal storage disorders\, including Gaucher disease\, Fabry disease\, Pompe disease\, and Niemann-Pick disease.
URL:https://canadianrdn.ca/event/canadian-symposium-on-lysosomal-diseases/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/dYVqsImvNDqMz-4DMcw6vNQLacrQ1C9Vu-KelswRLoe1dOTozDLsQPyV8d2CpiZr10l_iNECJhl6lzvfyjmXqre61gRGFfLH3m7vKq-QLlEEMrazVvGXqFHk_wCSN_LznDTKxGLFLJRVr7GZKuY2IrQzD6WWaxri9t44sqC9S1M.jpg
END:VEVENT
END:VCALENDAR