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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Edmonton:20260514T110000
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UID:10640-1778756400-1778760000@canadianrdn.ca
SUMMARY:RareKids-CAN-Bill C-265 Webinar: Improving Access to Essential Medications in Canada
DESCRIPTION:Join RareKids-CAN for a timely conversation with MP Marcus Powlowski (MP for Thunder Bay – Rainy River) alongside healthcare professionals and patient advocates from across Canada\, on improving access to essential medications not currently available in the country.
URL:https://canadianrdn.ca/event/rarekids-can-bill-c-265-webinar-improving-access-to-essential-medications-in-canada/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1776961091115.jpg
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DTSTART;TZID=America/Edmonton:20260514T163000
DTEND;TZID=America/Edmonton:20260514T173000
DTSTAMP:20260514T011553
CREATED:20260507T150910Z
LAST-MODIFIED:20260507T150910Z
UID:10636-1778776200-1778779800@canadianrdn.ca
SUMMARY:Newly Diagnosed with a Genetic Aortic Disorder: What You Need to Know
DESCRIPTION:Led by patient advocates\, Lindsey Rusche and Liz Martin\, this educational webinar is designed specifically for individuals and families who have been newly diagnosed with a genetic aortic disorder. The goal of this session is to provide clear\, reassuring\, and evidence-based information to help patients better understand their diagnosis and feel supported as they begin their care journey.
URL:https://canadianrdn.ca/event/newly-diagnosed-with-a-genetic-aortic-disorder-what-you-need-to-know/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1777586095311.jpg
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