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DTSTART;TZID=America/Edmonton:20251016T080000
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UID:8613-1760601600-1760720400@canadianrdn.ca
SUMMARY:2nd Canadian Symposium on Neurofibromatosis
DESCRIPTION:This Symposium is aimed at the patients and families\, as well as clinicians and health professionals (doctors\, nurses\, researchers).
URL:https://canadianrdn.ca/event/2nd-canadian-symposium-on-neurofibromatosis/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
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DTSTART;TZID=America/Toronto:20251016T123000
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UID:9023-1760617800-1760621400@canadianrdn.ca
SUMMARY:Aging Out: Transition of care for children with rare neurodevelopmental disorders
DESCRIPTION:Approximately one in 12 Canadians are affected by a rare disorder and two thirds of them are children\, according to the Canadian Organization for Rare Disorders (CORD). Due to the low number of individual cases\, qualified specialists are hard to find. After years of assembling a trusted pediatric care team\, parents are often faced with the challenge of finding a new adult care team once their child turns 18. The challenge is even more complex for rare neurodevelopmental disorders requiring multi-disciplinary care. \nWhat strategies would ease the pediatric to adult care transition? This webcast will bring health care providers\, medical experts and patient advocates together to share ideas and solutions to bridge the gap between pediatric to adult care for those living with neurodevelopmental disorders.
URL:https://canadianrdn.ca/event/aging-out-transition-of-care-for-children-with-rare-neurodevelopmental-disorders/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
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DTSTART;TZID=America/Toronto:20251016T200000
DTEND;TZID=America/Toronto:20251016T210000
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CREATED:20251014T180518Z
LAST-MODIFIED:20251014T180518Z
UID:9017-1760644800-1760648400@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat: Digital Storytelling with Krystle Schofield
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by rare diagnosis and rare disease on October 16 at 8 P.M. EST. and learn about digital storytelling. Learn from Krystle Schofield\, a RareKids-CAN parent partner\, B.C. mom\, digital storytelling facilitator + photographer.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat-digital-storytelling-with-krystle-schofield/
CATEGORIES:Caregiver,National,Patient Focused,Virtual,Webinars
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