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X-WR-CALDESC:Events for Canadian Rare Disease Network
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UID:8771-1758441600-1758733200@canadianrdn.ca
SUMMARY:Undiagnosed Hackathon 2025
DESCRIPTION:350 million people live with an undiagnosed disease worldwide. Genome sequencing can provide answers for 40% of the People Living With Undiagnosed Disease (PLWUD) but around 60% still don’t receive a diagnosis. The purpose of the Undiagnosed Hackathon is trying to find new ways and collaborations to solve the undiagnosed diseases\, that can’t be solved today. In this unique event multidisciplinary teams of clinicians\, bioinformaticians/molecular biologists\, scientists\, developers\, AI specialists and brilliant minds will work together to tackle the most difficult diseases.
URL:https://canadianrdn.ca/event/undiagnosed-hackathon-2025/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/Undiagnosed-Hackathon-logo-1.png
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DTSTART;TZID=America/Toronto:20250924T080000
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CREATED:20250728T214440Z
LAST-MODIFIED:20250728T214440Z
UID:8601-1758700800-1758906000@canadianrdn.ca
SUMMARY:Connected in Care Conference
DESCRIPTION:As part of Pregnancy and Infant Loss Network’s long-term vision\, Connected in Care are hosting their second biennial educational conference at the Sheraton Parkway Toronto North Hotel & Suites in Richmond Hill on Wednesday\, September 24 – Friday\, September 26\, 2025.
URL:https://canadianrdn.ca/event/connected-in-care-conference/
CATEGORIES:Conferences,In Person,Industry,National,Patient Focused,Policy,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250924T100000
DTEND;TZID=America/Edmonton:20250924T120000
DTSTAMP:20260409T015747
CREATED:20250814T153021Z
LAST-MODIFIED:20250814T153021Z
UID:8751-1758708000-1758715200@canadianrdn.ca
SUMMARY:La dysferlinopathie: Une dystrophie musculaire affectant le muscle strié
DESCRIPTION:1st episode of the RQMO – RARE webinar series. QC presented by Camille Bouchard\, PhD student in molecular medicine in the laboratory of Professor Jacques P. Tremblay\, Université Laval \nModerator: Jonathan Pratt\, Executive Director of the RQMO
URL:https://canadianrdn.ca/event/la-dysferlinopathie-une-dystrophie-musculaire-affectant-le-muscle-strie/
CATEGORIES:National,Research Focused,Virtual,Webinars
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