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LAST-MODIFIED:20241021T215301Z
UID:4166-1741161600-1741366800@canadianrdn.ca
SUMMARY:RE(ACT) Congress and IRDiRC Conference
DESCRIPTION:The RE(ACT) Congress and IRDiRC Conference 2025\, held jointly by the BLACKSWAN Foundation\, the International Rare Diseases Research Consortium (IRDiRC) and the European Rare Diseases Research Alliance (ERDERA). From March 5th to 7th\, 2025\, we will gather in the vibrant city of Brussels (Belgium) for an unparalleled exchange of knowledge and ideas. \nThe RE(ACT) Congress will be celebrating its 8th edition\, and this convergence serves as a beacon for scientific innovation. Our assembly is comprised of visionary leaders\, distinguished experts\, and emerging talents from diverse scientific domains\, converging to unveil groundbreaking research\, foster dialogue\, and shape policies crucial to rare disease research. \nThis edition of RE(ACT) Congress and the 6th IRDiRC in person Conference\, is in partnership with the European Rare Diseases Research Alliance (ERDERA\, planned to start in September 2024)\, EURORDIS-Rare Diseases Europe\, and Rare Diseases International (RDI)\, and symbolizes a unified commitment to surmounting rare disease challenges through collective action and shared knowledge.
URL:https://canadianrdn.ca/event/react-congress-and-irdirc-conference/
LOCATION:Brussels\, Belgium\, Brussels\, Belgium
CATEGORIES:Conferences,Hybrid,International,Policy,Research Focused
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DTSTART;TZID=America/Denver:20250306T130000
DTEND;TZID=America/Denver:20250306T140000
DTSTAMP:20260409T114843
CREATED:20250225T041503Z
LAST-MODIFIED:20250225T041853Z
UID:7563-1741266000-1741269600@canadianrdn.ca
SUMMARY:ALS Clinical Trials Unboxed
DESCRIPTION:Join ALS Canada\, on March 6 at 1:00 pm ET\, for ALS Clinical Trials Unboxed. In this webinar\, Dr. Lauren Kett\, Medical Director of Clinical Development at Amylyx Pharmaceuticals will present on the Phase 1 LUMINA study\, an investigational antisense oligonucleotide (ASO) targeting calpain-2 for the potential treatment of ALS.
URL:https://canadianrdn.ca/event/als-clinical-trials-unboxed-2/
CATEGORIES:Caregiver,Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
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DTSTART;TZID=America/New_York:20250306T140000
DTEND;TZID=America/New_York:20250306T150000
DTSTAMP:20260409T114843
CREATED:20250304T033811Z
LAST-MODIFIED:20250304T033811Z
UID:7617-1741269600-1741273200@canadianrdn.ca
SUMMARY:Navigating the Transition from Pediatric to Adult Neuroimmunology Care
DESCRIPTION:This webinar will provide an overview of the transition from pediatric to adult medical care\, featuring insights from a pediatric neurologist\, social worker\, and a neuropsychologist. \nTopics will include maintaining continuity of care\, managing complex medical conditions\, self-advocacy in healthcare settings\, and addressing social and emotional considerations. The discussion aims to support patients\, families\, and caregivers in navigating this important transition effectively.
URL:https://canadianrdn.ca/event/navigating-the-transition-from-pediatric-to-adult-neuroimmunology-care/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
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