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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Halifax:20240612T080000
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DTSTAMP:20260410T082428
CREATED:20240522T214908Z
LAST-MODIFIED:20240531T030618Z
UID:4120-1718179200-1718384400@canadianrdn.ca
SUMMARY:Brain-Heart Interconnectome State of the Science Summit
DESCRIPTION:The Summit is an international conference set to highlight cutting-edge science at the crossroads of brain and heart health\, showcasing innovation and state-of-the art research. Learn from international experts\, leaders within the Brain-Heart Interconnectome and the next generation of researchers working in brain and heart health. \nThe event will take place June 12-14\, 2024 at the National Arts Centre\,1 Elgin St. in Ottawa\, ON.
URL:https://canadianrdn.ca/event/brain-heart-interconnectome-state-of-the-science-summit/
LOCATION:National Arts Centre Ottawa\, Ottawa\, Ontario\, Canada
CATEGORIES:Conferences,Healthcare,In Person,National,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240612T100000
DTEND;TZID=Europe/Paris:20240614T140000
DTSTAMP:20260410T082428
CREATED:20240522T215430Z
LAST-MODIFIED:20240531T030414Z
UID:4123-1718186400-1718373600@canadianrdn.ca
SUMMARY:World Congress for Rare Skin Disorders
DESCRIPTION:The objectives of the world congress for rare disorders are: \n\nTo learn on diagnosis (including pathophysiology and disease classification)\nTo develop a multidisciplinary approach and improve their skills to manage common problems in rare and complex skin disorders\nTo know more on last research findings and tools in the field of skin biology\, genetics\, therapeutics\nTo learn more on patient engagement and empowerment as well as patient education programs
URL:https://canadianrdn.ca/event/world-congress-for-rare-skin-disorders/
LOCATION:Maison Internationale\, Paris\, France
CATEGORIES:Healthcare,In Person,Industry,International,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/05/WCRSD_2024-bandeau1920x450-edd6593c.jpeg
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DTSTART;TZID=America/New_York:20240613T130000
DTEND;TZID=America/New_York:20240613T140000
DTSTAMP:20260410T082428
CREATED:20240603T234425Z
LAST-MODIFIED:20240603T234425Z
UID:4361-1718283600-1718287200@canadianrdn.ca
SUMMARY:Palliative Care Webinar
DESCRIPTION:Join Jett Foundation’s Community Webinar Series on June 13 to hear from Dr. Ashley Nichols on palliative care\, a medical care focused on relief from pain and symptoms of illnesses and diseases.
URL:https://canadianrdn.ca/event/palliative-care-webinar/
CATEGORIES:Healthcare,International,Patient Focused,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20240613T160000
DTEND;TZID=Europe/Helsinki:20240613T170000
DTSTAMP:20260410T082428
CREATED:20240523T203723Z
LAST-MODIFIED:20240523T203723Z
UID:4195-1718294400-1718298000@canadianrdn.ca
SUMMARY:Gene Therapy Webinar Series: Episode 8 – Genetic therapies and therapy developments for ALS
DESCRIPTION:Dr Vázquez Costa has a  MD in Neurology (2012) and PhD in motor neuron diseases (2019). Since 2013 he is devoted to the care of motor neuron disease patients and in 2020 he was granted a Juan Rodés excellence contract from the Carlos III Health Institute\, to coordinate the motor neuron disease unit at Hospital la Fe. He also co-chairs the ALS Genetic Spanish consortium (ALSGESCO) and is member of the Spanish research network for rare diseases (CIBERER). This unit is a referral Spanish and European centre for the treatment and research in ALS and SMA\, and participates in the European Network to Cure ALS (ENCALS) and the TRICALS consortium. Dr Vázquez Costa has participated in more than 20 research projects and in more than 30 clinical trials in both ALS and SMA\, and has published more than 80 articles in indexed journals in neuromuscular diseases. He has carried out research stays at the Psychiatry department of the Universitätsklinikum in Freiburg (Germany) and at the Martinos Center for Biomedical Imaging in Boston (USA) and has collaborated and collaborates with researchers from numerous research institutes and universities. Since November 2019 he is an associate professor of neurology at the University of Valencia.
URL:https://canadianrdn.ca/event/gene-therapy-webinar-series-episode-8-genetic-therapies-and-therapy-developments-for-als/
CATEGORIES:International,Research Focused,Virtual,Webinars
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